Hey I posted a few months back! 

Just wanted to update as it's really good for people to see the expectations and different outcomes. 

I had the total duct excision on Friday (2 days ago). On the morning I was so nervous and kept overthinking about the situation. I could not fault the hospital at all! From start to finish the staff were so professional and supportive.

I had my obs taken  (temperature weight, height and blood sugar levels). I had a consultation with same locum surgeon who was very supportive last time, (I was so relieved to see her). She went through all the paperwork, consent and complications etc. She marked my body. I signed paperwork and this was then checked over again another 3 times. I was taken down to the theatre. General Anesthetic wasn't bad at all, the team were so reassuring, it was that quick I don't remember ha. All I remember was picturing my 4 year old daughter. I was in theatre for 1 hour and 45 minutes. They removed my ducts in right breast. They said they could see where the affected ducts and where discharge was coming from.

They have sent off to lab and I should get my results in 3 weeks. Aftercare was also brilliant, the nurses were checking in and helping with the stockings. I went home same day.

It is tender, sore and achey.. But the pain is bearable and with a couple paracetamols all is fine. I'm just scared of my daughter jumping on me! I'm going to remove first layer of dressings tomorrow night. Nipple looks fine just swollen compared to other. 

Feel tired and drained. Defo book time off work you'll need time to recover as GA does knock it out of you. 

I'm hoping my results are fine xxxxx  fingers crossed. Hope everyone is OK. Xxxxx

Hello I was reading ur experience,  i have same problem i have single ducts removed on 11,1,23 now its been 5 week i have just check if i still have discharge and white discharge came out from it. 

Plz let me know did u get the same

Sorry to resurrect an old post, but I was so grateful to find and read your accounts as I've found it very difficult to find anything... 

I am a 41 year old mum of 4 under 12. I breastfed all 4, and had mastitis multiple times with each, and always only in my left breast. My fourth started rejecting the left breast on and off, then completely when he was about 1 in 2019. I have had a full ache across the breast and under my armpit ever since at best, and at times it's so painful. 
I saw my GP in 2019 and referred to the breast clinic. They did a physical and gave me two weeks antibiotics. My son immediately started feeding from that side again. Within 6 hours of finishing the course of antibiotics, he was back to refusing it. They did another two week course, he fed once again, and refused as soon as it was finished. I asked for more antibiotics and told 4 weeks was the max and there was no issue... the paint and discomfort continued, and he never fed from that side again. He fed till 3, by which time he would point and say "yuck" if I even tried that side. Roll forwards to 2023 and I've continued with the pain and discomfort constantly. It wakes me up at night and I can't hug anyone on that side. In January I was upstairs and fainted apparently, waking up with a soaked shirt covered in yellow puss and blood stains. GP saw me next day, took a sample, and sent me away with nothing. Two days later I had sepsis, and the hospital finally put me on antibiotics, and referred me back to the breast clinic. 

Saw the same consultant, he did a physical and said nothing wrong and no nipple discharge - he was practically tickling me so I don't what he expected to get. So I took hold and expressed thick yellow puss and blood, as I can do on demand. So he took swobs and slide samples... Because I was then 40 he then did a mammogram and ultrasound. Said mammogram clear, ultrasound showed slight "debris" in the ducts. Focused on insisting I stop smoking. I've never smoked in my life. Literally, never... but it felt like I was a naughty child being told I was lying and had been found out as he was adamant... 
Gave me two more weeks antibiotics - and when I went back said the thick yellow discharge and blood was "my normal" and that I didn't need anymore antibiotics despite the puss, blood and pain. Sample culture came back with nothing. I had to insist that breasts shouldn't be discharging thick yellow puss and blood, and that living with pain, to the extent it wakes me up most nights, is not okay... 
follow up appointment was last week - I was told they would repeat the mammogram and ultrasound to try and "see" whatever it was in my breast when it hasn't just erupted. They didn't. Just a physical, and again consultant couldn't express anything but I could, from multiple ducts and they took another smear. No meds and told I needed a total duct excision, that my breast may collpase and be deformed (his words not mine) afterwards. No reconstruction options given where I live, and it would be a day case. 
I am just a little lost... my mum died of cancer (ovarian) when I was 23- there was never a BRCA 1 or 2 test done on her at the time - and I seem to be fighting for anyone to actually give me one, despite the genetics Dept recommending one as well as a full hysterectomy. High incidence of colonic and ovarian cancer across my family, but I have no support or contact from any other female family members since my mum died and for the first time I feel completely alone with all this. 

has anyone needed any kind of reconstruction afterwards? What form does that take if so, are there multiple options dependent on how extreme it is? Has anyone had implants or similar afterwards - I would presume not but just trying to think all the thoughts so that nothing is a surprise as that's when I will have a meltdown.

again, thank you all for putting your own stories and questions out there as they have already helped so much.