Hi. I’m awaiting an urgent endoscopy and like you, I am worried sick. I can’t think about anything else. And my symptoms have gotten worse since my referral too. I think we both need to try and calm our minds somehow until we know for sure what we are dealing with. But it’s easier said than done. Just wanted to say I know exactly how you feel. Xx

Hi i'm pretty much the same as you emotionally. I have a swelling one side of my neck, been since the beginning of December I've noticed it more, i get emotional everytime i look at my two children and i'm waking all hours of the night with my heart pounding in fear for a diagnosis. I cant concentrate in work. I made myself worse as i googled neck/throat cancer and most of my symptoms matched. Hoping for positive results for you, and myself. Sorry not very helpful, so some reassurance you are not alone xx

Hi lola, try not to worry.

I found a big lump in my neck in Nov, sent to ENT two weeks later. I had a camera put down my nose and my throat was clear although I have been having trouble swallowing. I was sent for an ultrasound and needle biopsy two weeks later. The same day I had a chest x-ray and CT scan. 

Two weeks after that I went to see my consultant who told me I have lymphoma but the biopsy results were not in to show what type. 

A week later I was called in and told I needed a lymph node removed to gain a better biopsy, as the needle biopsies didn't have enough samples, this I had done in hospital the next morning. ( last week). Yesterday I had a CT scan on my lower half to see if it's spread. The first CT scans show I have it in my neck, chest and lungs.

I am still waiting to hear from the hospital for my results. It is hard not knowing but they shouldn't have put in the letter suspected cancer patient, I find that strange! If you do have lymphoma I do know it is treatable. Keep us informed please x

Don't google, please go to your GP

I haven't just googled, i have been to my gp who said it was acid reflux and should settle in 2 weeks with tablets, and if it didnt i'd be referred to ent withing 4 weeks, my gp appt is today for referral. I googled while waiting as my symptoms have worsened in the last 4 weeks.

Thankyou everyone for taking the time to reply. I appreciate it so very much. Im so sorry we are all going through this. Life seems a cruel lottery.

I have the most awful taste in my mouth. Its making me feel sick. My whole mouth feels out of sort. I wish I could be seen quicker than this. I want to forget about it and get on so as not to worry my family and friends but I feel like its there reminding me. I dont know what to take to make myself feel better.

Im so worried about my children. They are at home with me so are completely dependant. We have noone to help with childcare, they are too young for school etc. They have even had to come to my appointments. I have no idea how we will cope if I get ill. They are already sensing something is wrong. I feel so alone. My husband is worried sick and has been in floods of tears. I think its just come as a shock. My doctor said im still really young so im best placed to fight anything wrong. But thats it I dont feel young, im exhausted from looking after 3 kids 24/7. I dont get a minute to myself, i dont even get a full nights sleep so how the hell I am going to potentially fight cancer I do not know! I am not brave, I want to run and hide to be honest. Where do you all find the strength?

So I finally got the tests done and the results back. Thankfully it is not cancer. They tested for throat, mouth and neck cancer and said it wasnt any of them. Ive still a few tests to have but the consultant thinks they will be fine.

Anyway I just want to thank everyone who replied to my message. The past month has been utter hell in terms of worry and concern. I really recommend if anyone else finds themselves in a similar situation do not look on google. It scared the hell out of me. Wait and see a proper specialist doctor, they know best.

I want to wish everyone luck who is awaiting tests and results. I hope it will be ok for you too.

One thing this experience has given me is a massive wakeup call. I need to live a healthier lifestyle. It really does bring it home to you when you genuinely feel your health is in danger.

I really hope the endoscopy went ok for you. Hope you got reassuring news x

I really hope you are ok and getting treatment now. Thankyou so much for replying to me x