Crying with anger and frustration

received my 3rd cancelled hematology/oncology  appointment and  I just dont have the energy to deal with this anymore and i dont even know what im facing,

I've been off work since July 19 with exhaustion, dizzy spells, memory problems and feeling foggy with vision problems. Blood tests showed high platelets rgradually rising over the last 5 years until recently when they went over the flag marker, and locom GP told me it was probably blood cancer. 1st referral cancelled with re do bloods as could be affected by infection and re refer, those came back below the marker so we repeated again a month or so later and they'd shot up again so urgent referral booked in Dec  2nd appointment booked for xmas eve cancelled as wrong departments. Now my 3rd appointment for the 14th has been cancelled again, the only positive thing this time is it arrived with rescheduled appointment for 18th Feb.

I do have a general GP appointment  that I booked a month ago ... it was the earliest I could get in to see my GP! ...for Thursday so I will be asking g why

But why can or do they do this? Never any exp.anation, I know it's a teaching hospital, but surely they should be teaching patient communication skills  too

  • Hello Clare

    I am so sorry to hear about your experience with the NHS. It can be absolutely terrifying dealing with the uncertainty alongside the physical symptoms, can't it? And thank goodness you have an appointment with your GP this week. Every day can seem like an eternity when waiting for a diagnosis - you get to the point when even hearing that it is cancer would be a relief as at least then you would know for sure and be able to start to next process. I am currently waiting for results from two CT scans I had last week and the waiting is dreadful. We seem to be powerless to do anything to speed things up, don't we? However, hopefully your GP will be able to chase up the hospital if necessary as suspected cancer should be dealt with on the two weeks program, shouldn't it?! If you are suffering from foggy-thinking, it might be worth making a few notes before you go for the appointment so that you can be clear about your objectives for speaking with the GP. It's so frustrating when you walk out of a precious appointment and then remember something important you meant to ask them! I've done it so many times before.

    Thank goodness we have this amazing forum to share our worries and frustrations.

    Lily

  • Thank you Lily  that's a very good idea. I'm in e gland so I believe I should have been seen before xmas,