Scared!

Hi.

In the summer I found out that I carry the faulty BRCA1 gene. since then I have been seen in family breast clinic and gynae.

after a scan and blood test I was given the all clear on the ovarian side of things and the surgeon has given me a date of 23rd January for a full hysterectomy. I got my head around it and felt relieved that things are moving forward.

on 16th December I had my first breast MRI, the strangest thing I've ever had to do and while I was anxious, at 39 I knew I would likely get the all ok. Then a letter landed two days before Christmas, asking me to come back for more tests. The fear of god set in, and while I know the odds are still in my favour, I am scared.

the appointment is tomorrow. I called them when I got the letter to ask for more info and the breast nurse said they could see something small on one side that they want to look at closer. 

Every emotion has gone through me over Christmas and now I'm just feeling really teary. What am I going to find out tomorrow! I'm terrified.

can anyone tell me what to expect? They have said I will need an ultrasound and maybe a biopsy.

 

thanks x

  •  

    Hi,

    I am so sorry to hear that you are a carrier of the BRCA gene, but glad to hear that the breast clinic is keeping an eye on you since you were diagnosed. It is always worrying when you receive a call back to the clinic for further tests, but this quite often turns out to be because the previous tests did not provide a clear view.

    It is not at all unusual to be tearful at this stage. You probably won't find out that much more than your breast care nurse has already told you tomorrow. If you are having an ultrasound and a biopsy tomorrow, you may have to wait for another week or two before you get the results of these.

    I shall be thinking of you tomorrow and, I hope that nothing untoward is deteted.

    Do please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you so much for your reply and kind words.

    I am trying to remain positive and hopefully the worry will be for nothing. What it has done is reinforce my decision to have a double mastectomy to avoid having to go through this repeatedly.

    I will let you know how tomorrow goes.

     

    x

  • Hi. I just wanted to let you know that after a long morning of being poked, prodded and squeezed... the outcome was a positive one. The area they were concerned about was just into my armpit so was hard to get the mammogram to capture what the mri had but they finally decided that it was just glandular tissue and nothing to worry about.

    Feel very relieved and am looking forward to a good nights sleep.

    thanks again for your supportive words xx

  •  

    Hi there,

    Thank you for updating your progress this morning and, I am delighted for you that it was just glandular tissue and, that nothing untoward was found.

    What a lovely way to start the New Year. Have a Healthy and Happy 2020.

    Kind regards,

    Jolamine xx