Hi there

I just recently been getting a lot of gas & having lost my mum late sept due to liver failure via hep c, thought I'd have a blood test for Hep C. Interestingly the result gave me clear for hep c but Dr said my platelet level in blood is 39, but should be 100-400, also possibly liver issue, which requires a scan.

I'm now finding it really difficult to digest the usual processed foods I eat, but the worst being a steak which caused a lot of pain left and right sides all night long & so have researched the right foods for someone with spleen / liver issues and now eating all foods I usually wouldn't! My next blood test is on the 30th dec and my ultrascan 23rd Jan. Needless to say I'm fairly concerned, especially when I'm up in the night, tummynrubling, lots of burping and trying to get comfy. I'm used to sleeping through & have a 5 month year old and a 5 year old to deal with. I'm praying it's nothing serious and have ordered a strong probiotic formula to keep tummy happy alongside a decent milk thistle supplement to aid symptom relief (have u tried any). But yeah overall it's deffo a time of uncertainty and concern. I'm not telling my 5 year old boy, he's already lost his granny and great grandmother in the last 12 months. Really hoping something can be done as I know something's not right. My pain is more left of the tummy button & feels like fluid or gas trapped in lower belly. Even getting strange pain in my hip joints. 

Anyway please don't be too worried, it doesn't do you any good & I know for me on a positive side at least this means better eating habits for life now. I had no idea what my poor liver was being put through.

Do you know what's caused your problem / can you share any more on what your doing in the meantime?

Best regards

Dan

Hi there

I hope things go well for you. The worry and waiting is awful! 

I have a 4 year old and a 16 year old and constantly keep trying to put a brave face on and not show any worry. 

It all started just noticing my bowel habits had changed and got night sweats at times. That is when they noticed the spleen enlarged. 

On boxing day I was sent to hospital and stayed in over night as I had dull pains near belly button and all around, they wanted to rule out apendicitus. 

I did mention my spleen to them and the Dr is certain these pains have nothing to do with the spleen. 

I did have a ultrasound and bloods but all positive. 

Was sent away with pain killers, told to ensure I go to my Hematology appointment to get bloods looked into still and the Dr is also sending me for a camera scan. 

I just feel full constantly, weak, cba mood and dull pains come and go. 

You take care and keep is upto date x

Hi,

Well, sounds like your Christmas has been a bit difficult, especially when you still need to be mum to your kids. I felt awful Christmas day after 2 hrs sleep.. Felt terrible & barely ate anything. Thankfully my 5 year old hardly noticed anything, but I've been discreet about it all.  I hope you had as good a Christmas as poss.

Sounds like there's a lot of positives there, and lots of hope. I'm glad to say I've had some relief in that I'm not feeling the pain in the same place (liver / spleen), it's now mainly to either side of my tummy around my hips & my back (like there's fluid in there?/pressure). Hot baths really help relieve symptoms, although I am still not feeling quite right as tummy and appetite not back as normal yet. I had another blood test, blood count is improving but not sure how much exactly. Urine test came up ok too.. 

My scan is coming up soon.

I was terrified during the night when all this started, it's totally challenged my perspective on life & made me take stock & challenged my faith. I also suddenly care a lot more about the NHS! 

I'll share anything helpful, could be we have a similar issues although in fairness the possibilities are probably massively varied. In the words of Dr Rajz be happy, be healthy & get well soon!

Keep in touch xx

Hi, 

I hope everything is going well for you? 

X

Hi, 

I hope everything is going well for you? 

X