Endometrial biopsy

Hello I'm new, I've been trying to find out the answer to questions and stumbled on this site which has been very informative.

I've had an endometrial biopsy done today and despite still being drowsy from the GA, my mind is racing and I can't sleep.

On 11th November 2019 I had a very heavy bleed after a 20 month gap so called my GP.  I had a smear done in March 2019 which was clear but was told at the time to phone if I had bleeding again, I had very slight bleeding after an 11 month gap which I mentioned at my smear.  It has been excruciatingly painful getting a smear done and had to eventually be carried out at hospital this time.  I have a tilted cervix/womb and a cyctocele which blocks the view of my cervix so getting a speculum in causes pain like I've never experienced.

As soon as I told my GP about the bleeding he referred me straight to the rapid access unit at the women's health and I got a letter the next day with a date for the appointment and information.

The appointment was 18th November and everything was really efficient.  The internal ultrasound showed thickened lining, polyps and fibroids so I was whisked straight into another room to have sonohysteroscopy.  The doctor explained that she wanted to take a polyp for examination and a biopsy.  I was allowed to watch on the screen but she was unable to get a clear view so wanted to use the speculum.  I emphasised the problems I have so was offered gas and air and a local anaesthetic but was in so much pain that I suffered a vasovagal episode and blacked out, and that was before they even started cutting anything.  When I came to I could feel a warm wet sensation which I thought was me loosing a lot of blood but in fact was the release of the water being used to fill my womb.  I'm sure I subconsciously heard something to the effect of "we've lost her" and I thought I was dead.  It is the most horrendous experience I've ever had.  So the top and bottom of that is that they couldn't perform the procedure so had to be booked in for GA.

It has been very stressful as we had a 10 day cruise booked for 27th November which I wanted to cancel but the insurance wouldn't pay out as there was no diagnosis.

So I've had it done today and now need to wait for the results.  They told me a week which is right before Christmas so not sure if I want to know if it's bad news.  Our first born turns 18 at the beginning of January too so all in all, lousy timing all round.

I've tried to find out what they do that takes a week to find out and am scaring myself that they are saying a week when so many of you have been given longer timescales.  One person commented that they deal with the more urgent cases quicker.  When I was in recovery ok heard that a polyp had been removed but there was no mention of size or opinion. 

I think I'm most shocked by the fact that they send you a letter with the results, so people are reading that they have cancer rather than meeting with a consultant face to face to be told, where is the compassion.  

I know I could be jumping the gun but want to try and be prepared for the worst so trying to find out what the longer term prognosis looks like if it's bad news, what are the chances of beating it.  Ive had heavy painful periods since I was 11.  I'm 53 now and started my menopausal stage around 5 years ago when the gaps got longer.  I've had lower back and hip pain for approximately the same length of time but I ignored it and put it down to fibromyalgia.

Sorry for the long waffle but just need to not bottle this all up and don't really want to discuss with the family until we know the results

  • Hello lovely, 

     

    Hope you are ok after tour biopsy today. I am having mine under GA later today, I am bei g tested for lymphoma and have also been told 2 week wait. However my sister had lymphoma 6 years ago, was told 2 week for results and she was told a couple of days after her biopsy had been sent off to Leeds that she had hodgkins. So I'm dreading that I could fk d out over xmas also, I only gave birth on the 7th November aswell! I'm all over the place- oh and my birthday is 6th jan, so what timing eh. 

     

    Everyone deals with things differently but I've taken it by presuming they are going to tell me its lymphoma, because anything less serious will be the best news in the world. Just taking it a day at a time xx 

  • Hi Lozza

    Sorry to read what you are going through...but I just wanted to pick up on your point about letters being sent telling people they have cancer. I don’t know anyone for whom this has happened. Everyone I know has always been called in to discuss any kind of results with their consultant-good or bad. I had biopsies of my cervix and was also told a week for my results. I was given an appointment to come back in a week for a face to face meeting with my consultant. Have you actually been told that you will receive a letter with results rather than an appointment? xx

  • Hi Minkska

    yes I was told I would receive a letter with the results which I find very cold.  Ive also read on here that other ladies have received letters with good and bad news

  • oh dear I hope that you get good news, Im freaking out with the thoughts that are going through my head regarding my kids and the milestones that will pass and you just take for granted that you will be around to be there, I cant even imagine what you must be going through having just given birth.  Your hormones will be all over the place to start with.  fingers crossed for your biopsy today.

  • Hi Lozza

    Gosh-that is truly awful. I’m so glad I didn’t face that. When someone is diagnosed with cancer, there are lots of questions...treatment plans to be put in place, all sorts. Sending someone a letter telling them they have cancer seems pointless because they will still require an appointment with a consultant for further discussions. I have also not been told good news by phone or letter...still had to have a face to face appointment. xx

  • Well I had the biopsy done and they took out two lumps as opposed to the one. Grape and walnut size. The doctor/consultant who performed it said I had more than than realised after ultrasound once i was  opened up. I asked what his thoughts were and said although they cant confirm until the results are clear, that it looked lymphoma. 

    Just wanting results now to know exactly what I'm dealing with. Trying so hard to stay strong for my little boy xx

  • I'm on the 21st day of waiting for results, had hysteroscopy 21 days ago as transvaginal ultrasound picked up thickening 10mm, gyny thought polyp, during hysteroscopy (I was awake) he said it wasnt a polyp but needed to do biopsy.

    He said I will receive results through the post in 2-3 weeks as pathology dept is very busy

    I rang his secretary end of last week and she said the consultant had not yet received the results and unfortunately the office is closed this week due to xmas, she told me to try and enjoy xmas and if I've not had a letter by 28th, to ring her back

  • Yeah I had the biopsy performed 17th, I was told 2 weeks for results which takes to New years eve/day. They said with it being christmas that's why they expected it to be around that time frame. I believe I will be given a call from hematology to go in and speak to them but I'm not sure. No news as of yet. Hope you get your news soon. Maybe each area is different for whichever hospital? X

  • 4 weeks today and still heard nothing, consultants secretary on leave so I have no one to call to chase it up, the waiting is so frustrating