Lymphoma tests

Hi I was wondering if anything who has been diagnosed with lymphoma or had tests to check could offer some advice.

For around 4/5 months I have been wakening up in the night drenched in sweat whether my room is cold or warm. I have enlarged lymph nodes I can feel hard lumps on my voice box and around my neck, behind ears, armpit and possibly groin and tummy area. My white blood cell count was a little on the low side, I am exhausted beyond belief my throat is very dry and a tickly cough. I’ve lost over half a stone in a short period of time and I have really sore achy muscles/bones mainly in neck/shoulders/back.

My doctor prescribed antibiotics incase of infection and stated if they never worked could be possibly lymphoma. All symptoms stuck around after antibiotic and I was scheduled for an x-ray at ENT. The consultant asked me my symptoms and had a feel only around my neck she sent me for an X-ray on only my neck also. Came back lymph nodes in neck appeared “healthy”. To go back under care of GP and recommends another blood test to check cell count.

My worry is that maybe the X-ray on just my neck wasn’t enough to confirm as it could possibly be in another area? I’m just extremely worried due to my symptoms I also have a 9 month old baby and I would hate to think anything may have been missed.

Any opinions, advice or experiences would be greatly appreciated.

Many thanks 

Parents
  • I have just had my first Chemo treatment for stage 2 Non hodgkins Lymphoma and to reach the treatment stage you need to know what type of lymphoma you have, 

    My journey went like this

    I noticed a lump in my groin and went to doctors who within two weeks had a ultrasound and biopsy which detected cancer cells. I then had another byopsy which was sent to Leeds to find out exactly the best treatment.

    In two weeks had a Ct scan and a further week a pet scan

    These showed up where the cancer cells are and within another week I have had r chop treatment that was on the 13th Dec 2019 

    Hope this helps

  • Hi there how big or small was the lump in your groin if you don't mind me asking? 

     

     

  • Dont mind you asking at all it grew to L40mm W30 and shaped liked an egg wasnt sore and didnt ache plus they found another small lump on the PET scan. 

Reply Children
No Data