Don't be frightened of upper endoscopy

Please don't let horror stories from others put you off having an upper endoscopy. I had this procedure a few days ago with sedation, as I was very anxious about both the procedure and the possibility of worrying findings. I had the local anaesthetic throat spray, then 4mg of midazolam IV, which felt like about a half-bottle of wine but no more. I was relaxed but in no way 'out of it'. I was expecting to be asked to swallow the scope when it was introduced into my gullet, but before I was aware it had been inserted my endoscopist was already saying she was at the base of my stomach and telling me what she saw. The procedure was all over and done with in between 3 and 5 mins, including painless biopsies taken from 4 sites. At no point did I have any feeling of suffocation or even any gagging. Like I say, I felt the narrow 'snake' of a scope in my mouth but did not feel it going past my palate and into my gullet and stomach.

If anyone is also frightened of gastroscopy for fear of the results,  you are better off knowing the cause of your symptoms, and you might, like me, receive reassuring results! My endoscopy was urgent because of my symptoms of 'dysphagia', with food (especially bread and meat) sticking in my gullet and sometimes being regurgitated. I convinced myself I would have the stomach cancer which took my aunt. However, my endoscopist told me that I only have mild scarring at the junction of my gullet and stomach from a hiatus hernia, and some mild gastritis which could be H. pylori. I don't even have Barrett's Oesophagus, so am good to go with acid-reducing medications!

I am so happy now that I didn't let internet horror stories put me off taking what turned out to be a quick and barely uncomfortable procedure. Be brave and get it done- you'll be glad you did, whatever the outcome!

Parents
  • Hi all 

     

    I don't want this to be lengthy so I'll just get to it lol

     

    I have a colonoscopy as well as an endoscopy this Sunday! 
    I've never had anything done like this before and very anxious! 
    I'm being sedated due to my age, but I've never been sedated before or even had really strong pain releif! My fear is, even though I'm sedated will I gag when the tube is going into my throat and when they remove it as well? I have a huge thing about being sick so it's really making me worry! And how long does it to take you to come round after sedation? 
     

    Best wishes to all! 

  • Hi Heather

     

    just wondered if you have had your endoscopy yet, I've just got my appointment for December and overnight my blood pressure has increased just worrying about it.  Never been so frightened of it before.  I need to try and relax but it's hearing lots of horror stories that's putting me off

  • Hi

    I am having a Gastroscopy on the 3rd August with sedation to see if I have celiac disease,  but I am scared that something is going to go wrong like a tear or bleeding. I have also heard that you can have problems with the sedation eg: breathing problems.

     

    Any advice to put my mind at ease would be appreciated.  I want to get it done so that I know if I am celiac.

     

    I look forward to hearing from you soon

     

     

  • I have copd and had no breathing problems. I had a sedation and a pain drug. I dont remember or felt a thing. They put a plastic mouth guard over my mouth, next thing I remember was waking up in recovery all high.

  • Hi Flower5757,

    Thank you for your reply, is it a mild sedative injection they give you and do they monitor your breathing all through the procedure. I have never had one before so I am a bit nervous

    So it is not that bad then,.

  • I had Fentanyl 50mcg (which I believe is a mild sedative and Midazolam 3mg (pain reliever) by IV. Yes they monitor your vital signs. I was really scared beforehand and didnt feel or remember anything. Would rather have an endoscope again than an mri, which made my arms and neck ache holding still. I'm in Oxfordshire. Hopefully your endoscope will be the same.

  • Thank you Flower 5757 I am in South Yorkshire and I hope my endoscopy is fine and has no problem 

     

  • Hi Flower 5757,

     I went for the endoscopy this morning, it didn't go well 

    I couldn't swallow the tube at all and this was with throat spray and sedation which didn't have any effect on me at all so they had to leave it and they are going to find a alternative procedure because the endoscopy is a really uncomfortable procedure and a doctor told me that a lot of patients struggle with the procedure. So I have more waiting now to see what happens next. 

  • Oh no you were unlucky, how awful. My sedation knocked me out, I didnt remember a thing. I wonder if they waited long enough for the sedation to work. You poor thing, strange how the sedation doesant work on some people. Hopefully they can find an alternative investigation for you. Keep me updated, try not to worry it's not your fault xx

  • Hi flower 5757,

    thank you for your reply I will keep you updated, yesterday I read my report from the hospital and it said that I was unable to have fentanyl because I am allergic to the ingredients in it and this is why the sedation didn't work it wasn't strong enough.  I think the alternative is a barium swallow or maybe they will diagnose me for celiac with the four tubes of blood they took from me yesterday 

Reply
  • Hi flower 5757,

    thank you for your reply I will keep you updated, yesterday I read my report from the hospital and it said that I was unable to have fentanyl because I am allergic to the ingredients in it and this is why the sedation didn't work it wasn't strong enough.  I think the alternative is a barium swallow or maybe they will diagnose me for celiac with the four tubes of blood they took from me yesterday 

Children
  • Did they only find out you were allergic to Fentyl yesterday, goodness. Yes I'm sure they will be able to find out diagnosis from other tests. Tbh my endoscope didnt really show much anyway, it did show no cancer in the parts they looked at, but that was all. Good luck xx

  • Hi

    I have an update and that is that I have to have the endoscopy again this time they are going to try a drug called propofol and see if that works,  To be honest I am not sure that  I want to go through that again and I am also concerned that I am 16stone in weight and when I looked up the drug Propofol I have found out that is the drug they use to kill people with.

     

    so not sure what to do about this I am thinking of asking them if there is another way to diagnose Celiac Disease and also I am also worried about wasting another 3 days of annual leave if I have to isolate 3 days before the test again.

     

    any advice would be appreciated.

     

    thank you

     

    Lindsey

  • I had Fentanyl 50mcg and Midazolam 3mg, knocked me out nicely. 

  • I was supposed to be knocked out last time but it had no effect on me at all and I obviously don't want that to happen again because it is a total waste of time.

     

  • Hi,

    I have another update, I am going for an Gastroscopy with propofol sedation on Friday 21st January at 7:30am.  

    I am still a bit nervous about it probably because I have never had propofol before and I am still worried that I won't wake up but maybe I am being daft because I will have an Anethestist with me at all times and they are their to keep you safe aren't they.

    My consultant said it is a safe procedure, I was wondering if they have done this procedure with propofol on overweight people like myself.

    I look forward to hearing your experiences of this.

  • I.didnt have propofal,  but Google says its a conscious sedation, so it only sedated for a small period of time, 5 to 10 mins.

    I don't think your weight will be of any signifance, they will give you the correct dose for your weight. 

    It's scary the thought of having it done, but they ate very good at ensuring your comfortable and adequately sedated. I didn't remember anything after they put the mouth guard on and was awake within 10 minutes. Try not too worry xx

  • Hi everyone,

     I went for the gastroscopy with propofol yesterday  and it went really well they measured my height and weight yesterday and then a lot of waiting and they put a cannula in and then went to the endoscopy unit at the end of the ward and got hooked up to machines and they put a mouth guard in and next thing I know is that I am waking up on the ward 20 minutes later. Just have a sore throat and feeling a bit tired get results in 3 weeks xx