Tomorrow I find out - feeling afraid and very alone

My whole world has been turned upside down in the space of 10 days. I had an MRI as part of a routine scan on something to do with my hand. Got called back in as an emergency to see my Neurosurgeon consultant. Two tumours found in the verterbrea of my spine. He explained benign ones are very common but that they were concerned with the appearance of these. Next step was to have a CT scan. Get my results tomorrow - it's been 10 days of utter fear and dread. At first although it was a shock I wasn't as worried because I don't have any symptoms! I read that cancer usually metasises to the spine from the breast or lung in women and... I have no symptoms! Then I realised all of a sudden two days ago that I've been having excessive burping for about 6-12 months (which I noticed because I never, ever used to burp for about 30 years, then started). I've always suffered from acid reflux but never thought much of it. Now I have this horrible, horrible feeling about it all and can't function or concentrate on anything. I'm a just-turned-40 year old female who doesn't drink or smoke and not overweight, so I guess cancer of the esophagus isn't common - but can still happen. What has made my worry worse is that the consultant didn't say "bengn tumors are very common but we need to make sure" - he seemed very solemn and non-committal abot it all, plus everything I've read says an MRI is the primary diagnostic (over a CT scan) for cancer of the verterbrae, so that has compounded my worry. I live alone, family live a long way away and have never felt so alone and frightened. Would really appreciate any advice or words of wisdom!

  • Hi Gilla999,

    Yes, this waiting is horrible. It sounds to me like the doctors haven't made up their mind. You haven't been formally diagnosed. So yes, the doctors are feeling concerned, but they need more information before drawing any conclusions. So you've still got a chance of great news, and a chance that this time tomorrow you will be on top of the world. 

    You won't get much sleep tonight, I fear. But rest assured that all the members of this site know what you are going through, and will be wishing you all the very best. You are not alone.

    Harry 

  • Thank you Harry, I really do appreciate the kind words. I'm trying not to worry friends and family with how concerned I am but it really is such a scary thing to go through alone. It's a very strange feeling to be totally fine one day and then suddenly on the brink of what feels like the end of the world the next day. Made worse by everything I've read online which says that if it is already secondary in my bones then it's not "good" (for want of a better phrase). On the one hand it feels faintly ridiculous to feel so relatively healthy and yet be contemplating something so devastating being wrong with me, but I keep replaying the conversation and how he phrased it with me. Would you (or anyone!) happen to know if it's usual for things to be done that way around - an MRI scan and then a CT scan? I read that a CT scan is less detailed than an MRI which is what has confusesd me somewhat. I've no idea if he's just being careful or if I need to prepare myself for the worst. Thanks again for listening Harry x

  • First, I hope you're appointment went well as well as could. Write away here if you need to vent, or to share good news. 

    MRI vs CT? They are complementary ways of viewing what's going on inside us. Specialists seem to alternate between using one or the other. I wouldn't read too much into one being used before the other. But your doctor will explain the reasons if you ask. 

  • Thanks for taking the time to reply Harry. I'm pleased to say that the doctor confirmed they are atypical haemangioma (benign) and no further action is needed except for a check on them in 6 months. He explained that atypical ones mimic malignant ones in their appearance which is why he was so concerned and spoke about it in the way he did with me. The entire experience has left me indescribably grateful but also incredibly humbled as a result of reading through some of the stories here, at the strength and courage of those who have been affected by cancer in one way or another. For what it's worth I'm sending some positive vibes out to everyone. Thanks again for the replies Harry x