Venus989 I too have fibo and pain in my collarbone and neck and doctor's like to just put everything down to fibo the pain how your explaining sounds like myofacial syndrome with the pain in your jaw and neck, ask too see a Orthodontist if the pain doesn't go away and do you grind your teeth hopefully you can get a answer from someone good luck x 

Thanks for info .. not my teeth and jaw .. it's my glands and back pain and shoulders pain hurts more .. breathing is short on exercising.. used to be a dental nurse so I am sure not grinding and clenching teeth xx  

Can't feel lumps on collar bone area just squidgy like fluid but not .. if u know what I mean .. my glands up on neck on side small lumps there .. it's driving me mad thinking all sorts what could be wrong and no one listening .. unless I pay privately which is expensive

Hi 

I know this is an old thread but just wanted to check [@Venus989]‍ how things are now and if you found out the cause?

I too, have been having pain at the bottom of my neck (front) in the centre of my collar bone and left side of my neck. Like a tugging, sharp pain. Had all bloods checked and everything was fine and not related to thyroid, also suffering from sinusitis symptoms that won't shif. Can't feel any lumps or swelling. 
 

did anybody get a diagnosis for what this pain was?

Thanks and wishing you all well 

Hi! 

I am still on the NHS roundabout. 

1 GP found arthritis in both joints of my clavicle from an old injury. Some steroid injections ease this. 

He however is concerned RE jaw/neck/armpit pain. Everything has been on hold from covid and they basically fobbed me off. I'm going back this week. So fingers crossed 

Hi there, 

I hope you don't mind, but I am wondering if you have an update?

I came across your post. I have been getting pain in my collarbone, hips, legs and ankles for some time. It feels like something is gnawing at my bones only way I can describe it is it feels like a stinging pain. Very uncomfortable. It came and go to start with, however it is now regular. 
 

I have had bloods taken which came back normal and I have had a stool test, which showed no signs of inflammation. MY GP basically told that because of my age -30 year old male - and because of COVID I've got next to no chance being referred for tests. Not helpful at all and at a loss really.

I hope you're well.

Adam

Hey, [@Venus989]‍  and [@plyydm]‍ 

I'm wondering if anyone else is finding it abit of a hassle trying to get through the GPs recently. I'm only very young, but when I was younger I had a really rare form of leaukemia. Since august this year I've been back and forth to the GP first with an incredibly painful sore throat that I got told with tonsilitis, but unfortunately I've spent the last 4 months with a tonsil with very large cavities in it and a white spot, no pain, but the occasional sore throat. I've been referred to an ENT and I'm petrified that it could be something bad again. I've recently just started getting sharp collar pains and the doctor said my lymph nodes are swollen on my neck and collar bone.  She said it's related to a sinus infection, but honestly with how much I've had to fight recently to even get help I'm really petrified and sleepless that it's something bad going on again.

I've had about 10 different phone calls with different people their advice ranging from gargle salt water to I'll give you antibiotics if it will stop your anxiety, which I think is highly unprofessional. Being so young however it's hard for people to take me seriously, but I have underlying health conditions such as hypothyroidism, asplenia and I'm an ex cancer patient! But they all lump me in with a crazy anxious person and it's just so hard.

I hope you're both managing okay in these times, I've turned to this forum because honestly I'm scared and it's probably not cancer, most cases arent but I'm so scared I just wanted someone to understand me.

Stay safe everyone

Hi did you get any answers I have the same!!!

I'm experiencing these same problems.  I'm worried sick.  Left clavicle area puffy and squidgy no significant lump as such just a mass of fluid lije swelling.  It never goes away and I'm now experiencing dull left neck left shoulder ache which is constant.  I'm tired a lot and don't feel "right" gp referred me for ultrasound but still waiting and I'm now starting to get palpitations (maybe worrying too much) the neck ache is getting more and more I think. Such a worry. I'm 47 and fairly healthy otherwise.