Ovarian 11cm cyst

Hi everyone, 

I've been going to the doctors for the past 5 years with constipation, bloating etc and they diagnosed me with early menopause at 39 as my bloods came back with various hormone results. 6 months ago I noticed a lump that had gradually got bigger on my lower right back. The bloods came back with low level foliate and b12 as well as a high inflammation marker. I went for a US scan last night and the doctor rang first thing this morning saying I had a 11cm cyst on my right ovary and wanted me down immediately for a CA125 blood test and fast tracking me to gynaecology. I'm freaking out a bit coz they said it is worrying with my symptoms so is it coincidence I was diagnosed with early menopause and now I've a large cyst and any advice on what happens next would be great x

  • Hi, 6 weeks ago I had a full abdominal hysterectomy and removal of a 45cm cyst attached to ovary. First of all, didn't feel a thing! I am feeling really great and 2.5 stone lighter. I didn't know I had cyst, just thought I was getting fat and in menopause due to other symptoms. I am 48. Of course I can only tell you what happened in my circumstances . I went to Dr she arranged blood test and I had call saying I had raised levels of a marker. Didn't know what that meant so looked up on internet all possibilities and came up with all sorts of worrying things. Really shouldn't do that as we are all different. Next was a trip to gyny consultant, some scans and then hysterectomy was advised. I was so big they thought I was pregnant at first. I was lucky to have a fantastic consultant  who immediately got me sorted. They had called me and had explained that I had a large growth, which they later called a cyst but that they would treat it with caution and as if it could be cancerous just to be on the safe side. So they operated in the oncology department with the specialist surgeons and nurses. They had told me to prepare in case it was cancerous. I think my symptoms started about 6 years ago and in that time I never felt unwell or in any pain and couldn't believe that I may perhaps have something nasty in me. Yes it was scary and I have a fear of hospital and medical things and blood and am very squeamish but Dr's and nurses really were all great. Went into hospital on a Tues morning, by 7pm I was chatting to hubby on phone feeling absolutely fine. Next morning surgeons said they had removed everything in hysterectomy and my appendix and also cervix and abdomen layer, oomph something or other. Lymph glands were left. They had also removed this huge cyst 45cm they said. Anyway, by sat afternoon I was home and really was feeling fine. I had to wait 4 weeks for results of biopsy of this cyst which they had called borderline tumour probably not benign, it was on my discharge from hospital note. As it was a long time waiting for results I began to think all must be fine otherwise they would hurry as up to this time the whole event of getting blood test at Dr's and having op was all done within 2 months, pretty quick. Had results 2 weeks ago and all is fine. Dr's are happy that cyst was stage 1 grade a, lowest possible and pre cancerous and everything else that came out was, clear. No further treatment required! So, I hope this helps you. Yes it's scary and, worrying but can all be fine in the end. I had raised level ca125, huge cyst, but in the end it was dealt with. I still can't believe that I have just had all that done. I am very proud of myself! Never in a million years did I think I could cope with something like that. Good luck to you. 

  • Lou38 thanks so much for your reply it really means a lot. Its amazing what you have been through and I hope I have half the strength for what happens next. I went today for the ca125 blood test so will just have to wait for the results. Trying to be positive but feel so alone in dealing with my thoughts and being upbeat in front of my daughter. I look 6 months pregnant even when I'm lying down I mentioned to the nurse today that I was worried as the doctor just told me over the phone. I asked the nurse if it could be ovarian cancer and she just shrugged her shoulders and said maybe. Not very sensitive to say the least. I asked the doctor on the phone yesterday if they misdiagnosed me with early menopause and it's this cyst and she said the coincidence is probable. I know it's early days so I just need to take a deep breath and try not to worry. 

    I'm so glad everything is good with you now xx

  • I am lucky to have lots of family and friends for support and I dealt with it better than I ever imagined. I even talked about what wig I might get if I had to have chemo. I was mentally preparing myself. I'm sure I would feel differently if that had became a reality but a really nice cancer gyny nurse rang me 4 times to see how I was and she was so helpful, reassuring and informative before and after my op. When I got my results I left her a voice message to say thank you and how much she had helped me. I can't believe how well I feel after hysterectomy . Worse I have had is a few minute twinges in various places around my tummy but only last a second. Guess that is internal stitches and things just settling. Obviously I am not doing a lot physically and relying on others for things but have to remember not to do certain things myself, which is hard when I feel fine and normal. Am having to deal with hot flushes now as in menopause but taking herbal tablets to alleviate that. Best thing is now I can see my toes! Ha ha and all my old clothes fit again. My mum washed and ironed my entire wardrobe so I can wear my nice clothes again. I will now be selling all my oversized clothes on Ebay ! So hopefully you have good things to look ahead to. Keep positive, I did also get a smoky quartz and kept it with me, helps against ovarian cancer, who knows, maybe it worked. Best wishes. 

  • I've put on so much weight around my middle the past 5 years and can understand you wanting to sell the clothes you don't fit into. I'm trying to find clothes to fit at the moment and I've never been this size in the past. 

    Really amazing what you have been through and your positivity is infectious. 

    Thanks for replying and take care x

  • Hi, just wondering how things are for you, if you want to chat. Hope things worked out OK.