Why is the biopsy wait so hard! (Thyroid Cancer)

Back story - Thyroid cancer Dec 2018 - Total TT no RAI as low risk and no spread. New swollen lymph node 12 weeks ago. :-( 

Went to GP about a new swollen Lymph node - GP said its just gristle but lets get a scan anyway - forward to Friday just gone, i go for my scan, and its not gristle. Its a new node. 5 in total but the new one looked 'worrying and sinsiter'. Previous noted node also grown in size. After all my FNAs im a pro! FNA done straight away (well 5 actually, and they hit a nerve this time...ouch!)

Problem is, my GP patient access on the same day stated, normal, no further action. However thats apprently because there is no further action from my GP. So i call the GPs and the Receptionist tells me, we do not deal with that. I question who does as all my biopsys are done at one hosital and my oncologist is at another (i doubt he even knows i have had them done tbh)

I have just called ENT at the hopsital the biopsys where taken at and they have said they will let me know, so i guess at least i know who will be contacting me. Its now day 4 and counting. I know its likely the cancer is back, i have received a copy of the ultrasound report on my PA and the clinician was very open with me (mainly because i am one of these annoying patients that asks questiosna and watches everything and he knows me from all my others) and to be honest, im fine with that, i just need to know. Honestly, the waiting is worse than the actual cancer diagnosis. I have never had to have FNAs on the same day, i normally have to go back in another time.

Sorry, i think i just needed somewhere to rant as im keeping it to myself until i know. I do not want to ruin xmas again. 

 

arrrgghhhhhhhh!

 

  • I don't have cancer, I hope, but couldn't not reply. I have never appreciated how difficult it must be waiting for results to see if you have cancer or not. I had a needle biopsy on Thurs of a breast lump, find out results a week tomorrow.

    When will you find out your results? I'm nearly 49, have been seriously ill the past with crohn's disease, loads of miscarriages but nothing has ever been as difficult as this wait. First time I've experienced panic attacks.

    Here's hoping our days go quick. 

    Hugs x

  • Hi Bibi49.  

    it's been different each time. Normally around 4/5 days, but for my actual first cancer diagnosis it was around 7 days. It's the not knowing that's hard. I can deal with anything thrown at me, I just need to know what it is. From experiance, keep yourself busy. I always go to bed early also. My mindset is I can't think about it if I'm asleep, and tomorrow will get here quicker! I'm just hoping tomorrow's the day I hear something. 
     

    sending massive hugs x