Ovarian cyst...what next

Hi,

scary posting here but my mind is in a spin and need somewhere to spill!

Think I ended up here by accident or sheer fluke.  Three weeks ago I went to my GP with pain in my right back area.  As I have a history of kidney stones she sent off a urine sample and referred me for an urgent CT scan.  I had this on Tuesday.  By Friday I had 4 missed calls from GP while I had been at work.  I called the surgery but was told my GP wasn’t in and would call me back Wednesday so I didn’t think it was anything untoward or urgent.  However, she called me back within 10 mins.  The results of the CT scan had come through quickly.  Kidney, ureters and bladder were all clear, no signs of stones and urine sample was clear.  The concern was a 3cm mass had been detected on my right ovary.  I am booked in Monday morning for ca125 blood test and she is referring me for urgent ultrasound.  Now I’m worried!

Yes I’ve been scouring the internet for information.  (But I’m also mindful of where I read information, I’m an ex-nurse, a biologist, and GCSE and A level science teacher!)  I didn’t think I had any signs/symptoms to suggest problems with my ovaries, turns out maybe I have......All other symptoms rather vague and things I have just learned to live with and put everything down to age (50) and start of menopause.  I have a little incontinence, I pee constantly but I’m a tea drinker and put it down to that, I have had extreme heavy periods for about a year and bleeding between periods, as a teacher it can be a struggle at times to get through an hours lesson without leaking.  I am constantly tired but was also found to have very low ferritin levels (4 when the normal is 22!) and take iron tablets for it. Lots of lower back and hip pain but blood results in August showed high inflammatory markers suggesting arthritis so I take naproxen daily. My mum also had breast cancer.

I know my mind is just on over drive.  I know I have very little evidence to suggest anything sinister, so far just CT results which require further investigations.  I know I need to be patient and wait for these other tests and then results.  A simple cyst would be great, a simple laparoscopic procedure to remove it would be a relief and then life and Christmas can all go ahead as planned. (Christmas is very important to me as my daughter died on Christmas night 2 years ago and we are determined to  have a big family Christmas to celebrate this year rather than all the tears and heartache of last year remembering what happened before).

Thank you for reading, thank you for letting me post....nothing more than putting it on paper so to speak.

Di

  • Hi Di,

    I can understand your worry and I think it's good to reach out.  I hope you have a supportive network around you.  
     

    I was recently told I have an ovarian cyst, a tumour in my uterus and raised CA125 my grandmother died of ovarian cancer so obviously I'm extremely anxious to get a proper diagnosis.  
     

    im 38 and have a 9 yr old son who is my world. I'm scared for him too and the rest of my family.

    These results came after a trip to A&E with severe abdominal pain.  Ive been having heavy, painful periods and have trace amounts of blood in pee. I've since had 2 urgent GP appointments, an ultrasound and transvaginal scan.  I've been referred to gynaecologist on a 2 week referral (suspected cancer pathway) but I'm still very hopeful if could be something less sinister like a simple cyst, fybroids or endometriosis.

    im in shock, confused and scared.  I'm seeing consultant on Tuesday and praying for good news.  I hope you get good news too.

    much love

    x

     

     

     

  • Thanks for taking the time to reply when you are obviously under an enormous amount of worry and anxiety for your own health.  I’m pleased the system is ticking along for you and your consultant appointment is imminent.  Fingers, toes and eyes crossed for a positive outcome on Tuesday for you.  

    Its is such a scary and worrying time dealing with the unknown. There’s strength in numbers...good luck xx

  • No problem at all.  I think it's good to know you're not alone. Also good to express feelings with others who can understand what you're going through.  The worry is awful.  I suffer with anxiety as well so trying to keep that under control whilst I want for more tests and results is the hardest part.  I look at my little boy and feel so sad.

    I really hope you get positive news. Best of luck, everything crossed for everyone who's in the same position x

     

     

  • I have just had some larger cysts removed along with ovaries and tubes as imaging was a bit inconclusive  for one of them, although one showed as simple and another was just a fibroid following ultrasound and MRI, but CA125 nearly 200.  All  OK in the end   but happy to have taken the precautionary route.   The tests and appointments took 3 months to the all clear as they found a few other things to investigate  so a bit nerve wracking to say the least, but worth it.   I too had awful time peri menopause, especially work. For at least one day a month it was hard to leave the house for more than 10 mins even with   a collection of super plus extra help.

  • Wow, everything moving fast...not sure if this is reassuring or if the urgency makes everything more worrying!

    CT Tues, GP call with results Fri, CA125 bloods taken Mon, results will be back by Thurs, Ultrasound booked for next Wed!  All in 2 weeks...I’m terrified

  • I understand totally how terrified you are. The gaps between my tests and appointments gave me time to imagine alsorts.  It sounds like your GP is organised so might be able to reduce the 'waiting' stress before Christmas, especially as it's an important and already emotional time for you.   They may monitor the cyst depending on results,  I thought that was what they were going to do with mine at first.   As before,  dont worry about the CA in isolation if it does turn out to be a bit raised.  I really hope all will be ok for you  too xxx