thickened uterus lining

I thought i had gone through the menopause until i had a tiny bit of bleeding two weeks ago, nothing heavy just period pain and a bit of pink blood, stopped after two days. My dr sent me for a scan on thursday and i was told that my uterus lining is 5.8mm just above the normal range of 5mm. Im worrying myself sick , not eating and feeling and thinking all the worst things, are they just bing over cautious , any comments would be helpful, thankyo so much. Im new to this forum and have been reading some of your stories, Wishing everyone on here the best of luck and love xx

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  • I had similar, with 6mm measurement.  As it was a bleed post menopause, although not heavy,  and lining not much over,  it triggered a referral  -  I also had a polyp which they removed  biopsied during a hysteroscopy  and was probably responsible for the bleeding and pain. They may give you a hysteroscopy.  I had one under GA although most seem to be without.

    I was very up and down, it's an emotional rollercoaster as you wait for tests and results, but they are just being thorough so that if it is anything, it is caught as early as possible.

  • Hi DaisyW

    thankyou for your reply , you’ve made me feel a lot better , I had a scan vaginally and it showed I had fibroids , whether they have caused my bleed I’m not sure , , I have an awful habit of going on Dr Google and convincing myself that i have cancer , as you said it is a emotional roller coaster!  Did your biopsy come back clear apart from the polyps ? Xx

  • The bath thing got to me, I had a shower before leaving hospital. Main things are not to get dissolvable stitches soaked and just pat wounds dry, don't forget and absentmindedly towel them dry.  Getting up out of a bath would have been a no for me first few days .  Check with the nurses likely time as I can't remember now but I don't think it was for too  long.   Or is there  any chance you could get one of those push on  hair wash shower attachments.  For the kettle just add mugs of water rather than carrying and filling up.

    It's hard to know whether surgery is the right thing,  but once we know about things then you feel you need to catch things early.  I still wonder if I'd have been ok without surgery but COVID hit shortly after my op so I would have been waiting a long time.    

    When you get your fit note, make it clear you are in a heavy lifting job so you get a full amount of time. 

    You sound so agile and fit that it sounds like you have every best chance of a quick recovery and stitches healing.  Keep asking questions of the specialist nurses, they are there as the surgeons don't have time and know lots x

  • Thank you...that's very helpful and I also bear in mind that with keyhole it might not be quite as severe as it was for you.

    I can't imagine being physically incapable of getting in or out of a bath???

    The bath tap attachment probably wouldn't work for me as I'd still have to stand in the bath and bend my head forward. I always wash my hair over the sink. I'd be worried about spraying water all over the bathroom and as my floors are wood it might rot them. (I live in a park home)

    Luckily I might not even be able to see the holes in my tummy as most of them will be low down. I am a bit worried that I won't have a normal tummy button any more as he said he is going in through that for one hole :(

    If as I have researched, I have atypical complex hyperplasia, and my lining is 2.5cm (250mm) and that must have been growing for quite some time, I don't think progestin is going to do any good any time soon. That would be my only hope and if I'd had HRT ten years ago I might not have got into this situation but nobody ever told me and I never thought to ask if HRT had any other use except allaying menopause symptoms...and I had no symptoms then!

    But what's done is done and I cannot turn the clock back

    I researched with the above conditions, my risk of this pre-cancer developing into cancer is up to 30%. This could happen in the next year or two. I am not a gambler and 30% isn't very good odds - it's a one third chance. I am never lucky with the lottery in any way. I am assuming that my luck with my health has run out and I could be in that 30% and therefore in a year or two I could be looking at a much bigger problem. The consultant seemed to be saying that he was confident that what is there is removable completely, and that my chances of needing subsequent radiotherapy are slight although he cannot yet of course rule it out. But I am still slightly doubting, and wonder how they actually can be certain and sure that these cells are bad ones. I might be throwing myself into years of incontinence for no good reason. On the other hand, if I delay a few months or a year, I could be condemning myself to death before I am 70. So perhaps I just have to bite the bullet and take a massive chance that the results are accurate and not a false positive or anything. I keep saying, I am not a Gambler and I probably ought not even be considering gambling with my health and my life!

    I still haven't 'got' why lifting a full kettle is going to split stitches in my tummy. I have practised doing so and holding my tummy and I cannot feel anything moving inside. On the other hand, when I walk I can feel all my tummy bobbing around.

    Who do you ask for a fit note? Does the hospital provide it? They told me last time at the hysteroscopy they would give me a sick note but then they never did. I took it as holiday anyway but would have liked to have a sick note just for the record in case my HR dept queried it in the future.

    My fear is that I will need and want to move around too much too soon but if I just have a tummy ache which I've had anyway since November, I just live with it and get on with life. If I have sharp pains - which I also had in  November but now haven't had for months - I neck a couple of paracetamol and get on with life. They don't work on me but the fact I have taken them gives me the illusion I can get on with things. 

    There won't be many stitches...just the outside holes and he said he cauterises the veins etc inside me. Not sure if I will have stitches at the top of my vagina where he will pull out my womb and other organs. I guess it's no worse than a new mother who has her vagina torn by birthing a large baby. I have never had kids so I don't know, but it's just what I have heard. Some young mothers have prolaspes and long term continence probs due to their birthing procedure so I guess at my age I ought to be grateful I've spent a long life not having any such problems. 

    I can't quite imagine how bad I am going to feel that I might not be able to dance around my lounge to music on the TV but without even asking, I have figured out that dancing is a no-no but I just don't know how soon it is safe to dance. I will dance when I want to dance...but, if I am going to split something inside and haemorrhage and not know until it is too late, I need to find out how to tell if I am not safe to dance. 

    I am very agile for my age. I had just bought myself a balance board as we have one at dance class and mine is a lot heavier and more challenging that our dance teacher's plastic one...I won't be able to use that for maybe many weeks :(  My balance was just coming back to the levels of when I was in my 20s and 30s and I'm worried I will now lose that for ever. 

    I am overweight which is the one thing the consultant pointed out whe n I asked why I have developed this. I have since researched that apparently if you are overweight the fat in your body produces excess oestrogen and then that creates a serious imbalance between that and progesterone so that when you lose most of your progesterone production after menopause, the oestrogen kind of takes over and that's what causes the endometrial hyperplasia in some individuals. I was at an AGM this aft and the whole committee bar one, are about 35-40 bmi minimum by the size and shape of them.They are mostly a bit older than I am too. I have no idea how many of them have ever had a hysterectomy but I found myself looking at their rolls of fat, to put it bluntly, and thinking how unfair it is that they don't have what I have, despite being gross. (They may have for all I know...but then they have maybe just got lucky and they don't have)

    My bmi is hovering just over 30, verging on 31. So I am not huge. I told the consultant and nurse that this is because when I was working in an insurance office for 8 years in my 30s, I used to snack on about 4 bags of crisps and two mars bars a day every day and even used to actively look for the highest calorie food items because I only weighed 7 1/2 stone all my life until I got to my early 40s and didn't realise that the weight I was very slowly putting on, was due to menopause and the build-up of all those calories I was desperately trying to fatten myself up with for years! They laughed when I said about the crisps and mars bars and I said, no it's perfectly true! I wanted to go to a "Fattening World" because all my colleagues were having a great social time at Slimming World...but there wasn't such a thing for me! So now I reap the results of all that, and my weight really is about the only risk factor I have for this because apart from my parents both having cancer but different cancers, I have no other definite risks that I can see. Although they do include never having had children, in the risk factors. 

    I don't quite understand what "healing" means. I cannot see any internal stitches or cauterisation. So how will I know when I have healed inside? Does healing mean, when you no longer have pain? I have all sorts of aches and pains in places even unconnected with my tummy and have even had this tummy ache for months and I just get used to it and don't even think of it as pain so if it eventually vanishes I probably won't even notice the difference. I never even took paracetamol until I got the sharp pains back in late November. Now, I take two paracetamol first thing before going to the toilet as that's mostly when I got the really sharp pain for a couple of weeks in  November. I don't actually need them and haven't for a long time but I take them "just in case" because if I think something will work, it does. (Also if I cannot believe something will work, it doesn't)

    I also wonder why I had that severe pain in November and now don't have it any more since then. Even my bleeding has stopped since I had the hysteroscopy, and is now just a slight discharge. The bleeding was going on for several months before. So I am a bit worried that whatever they did at the hysteroscopy, has resolved the problem and that if I had another test of my cells it might give a different result. The only thing is that I still have this low-level tummy ache but how can they be sure it isn't emanating from elsewhere and not from my womb after all?

    Nobody seems able to tell me.

    On the other hand, removing everything will lower my long term risk of cancer in that area completely. So I won't ever have to worry again about looking for blood there. I am just praying that the pay-off for peace of mind, won't be that I have incontinence problems now and in the future, or prolapse of something else inside me. 

  • Don't worry about the tummy button, I had 4 keyhole incisions too, they healed quickly, no sign of them.  Just keep the the tummy button clean and  dry with a cotton bud, no creams, salt and water or tea tree only.

    (My surgeon tried first with keyhole just in case it would work because she said it's so much better that way )

  • Thank you...and especially also for reading so patiently all my ramblings!!

    I am hoping they don't decide to do an open after trying the keyhole but he did say it would be keyhole and he wasn't seemingly predicting it would not be. 

    I have a long list of questions to ask my nurse, Gail, on Monday. I think she will be patient with me also - she was when we chatted face to face. 

  • If you think of this in terms of your dogs, if they had stitches they would say I want to scratch, I always have, I like it, I can scratch why don't you let me? It a bit like that and lifting things, you will be able to lift heavier things but probably shouldn't for a few days or so. 
    Like yourself I'd never had a sick note before in over 30 yrs of working full time so didn't have a clue, so much easier if the hospital write you one,  saves trying to get to the gp. I think they said they gave out 2 weeks for keyhole, 4 for open where I was, it varies, so that's why I thought stress the heavy lifting to them if the person on the day gets a bit stingy with it x

  • I keep reading that even with keyhole, I shouldn't lift more than 20 pounds for 6-8 weeks. That pretty much is a large part of my job! so although financially I'd like to be working sooner, I think I am going to have to have a full six weeks off. If they know what I actually do at work, I imagine they will provide a six week note without batting an eyelid! 

    Everything I'm reading implies this 6-8 week thing so I don't understand why they would only give a 2-4 week sick note when you aren't supposed to do housework or mow the lawn or lift a child before 8 weeks?? (Luckily I don't have a lawn...and my dogs don't care if all their hair is all over the lounge but I don't really understand why you cannot hoover as it's only pushing a hoover across the floor.)

    I have had several female dogs, all spayed. Had one who had a pyometra at the age of 9 so had to be spayed at that age for health reasons. I know what dogs are like after a spay - off their feet for about 24 hours, no bowel movement for about 2-3 days (I am scared stiff of that as I get bunged up so easily normally and I have never mised a day since I was nine, so missing two days is going to really panic me) and then after two days they are running about as if nothing had happened to them. And I wonder why humans are not like that when they have a hysterectomy? Almost all dogs are spayed with a large incision,  moreover, and not keyhole. I can only take my cue from my dogs and look towards reacting as they do - if they can be up and about so quickly (and it's very hard to keep an active dog from running around but they rarely if ever split their stitches with normal walking and running, even the day after surgery) then I'm sure I also can be!

  • Hi 

    I have the same symptoms as you. The lower back pain is awful. Had a biopsy under GA 2 weeks ago and had to stay in overnight ( bad reaction to the GA) and still waiting for results and going out of my mind most days 

    here if you need to chat  best wishes x

  • Well I feel I've sailed though that!!! Surgery was on Weds. I honestly can't believe how good I feel! and that was even from about an hour after surgery!!! 

    I have just posted the whole tale, chapter and verse, in a separate post in "Newly Diagnosed" so won't repeat all the details here. Suffice to say, having got that out of the way I am now enjoying what feels like a retirement, with all the time in the world to do whatever I want - go for a lie down mid-aft if I want to, eat when I want to, walk the dogs when I want to/they need to/as little or as far as I feel I want to and can....I can watch TV, read, no pressure to cook and eat and get ready for work at given times, and if I didn't need the money for the next three and a half years I actually think I'd be happy to retire here and now! 

    I was given a four-week sick note. I know my manager has arranged cover for about 7 weeks in fact, as I'd told him I was told 6-8 weeks. I have to go to the GP for an extension on the four weeks but I shall indeed lay it on thick that I cannot lug around heavy stock at work and that my manager has covered my shifts accordingly. I will be ready to go back in six weeks, but mentally not in four really as I am enjoying this freedom...I potter about doing little bits of "housework" I never normally can set my mind to, such as this morning I turned out the Girls' two toyboxes and found non-toy stuff in them so sorted that out. Pottering gives me a bit of exercise indoors, on the level I know I can cope with. 

    I wish everyone else had such a positive recovery period. I am aware that I am extremely fortunate and I'm not taking it for granted just yet as I know it would be too easy to go and do something foolish and set myself back weeks. 

    I've now come to an acceptance of my loss of health, which I likened to a bereavement. I've done the Disbelief, the Anger, the Fear, and Denial, and in a relatively short time have now reached Acceptance. 

    Slight possibility I may need radiotherapy but I won't know until four weeks after they have tested everything they took out which was the whole lot. 

    I have booked two weeks in France for mid-August, as well as our normal September week in Hunstanton and October week in Bude. So, lots to look forward to and even if I need radiotherapy, mid-August is likely to be beyond the time scale of that unless there is something badly wrong that they haven't yet discovered or suspected. 

    I actually feel like I have the healing pattern of any one of my dogs after their spay!! and I honestly hadn't expected that!

     

  • Wonderful news!  And yes do get that sick note extended and enjoy some long walks in the hopefully good weather ️

  • Yes the weather is a bonus as when all this started for me, it was wet and grim and unpleasant. I feel so much more cheerful in sunny weather and blue sky, or even dry is a bonus at times when you have two dogs to walk in a wooded area that never seems to dry out unless the sun beats down for a day or two. 

    I don't know what I'm facing in the future, but I feel much more in control of it now and ready to face whatever. I always do "live in the moment" anyway - I love sitting on a bench just enjoying the sunshine, or looking closely at all the little wild flowers as I walk my dogs along - so I can't really make any improvements on what I already do in my life, but just keep on doing them. My dogs always live in the moment, and I have always taken my cue from them before when I was the normal Me.

    I am now referring to BC and AD. Before Cancer and After Diagnosis. 

    Two different stages of my life. Oh and I discovered by chance on my last shift that yet another work colleague, about three years younger than I am, also had a full hysterectomy and a bit of chemo way back when she was about 34, for what she referred to as "a bit of cancer"! And here she is 25 years later walking around as if she had never had cancer or a hysterectomy! 

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  • Yes the weather is a bonus as when all this started for me, it was wet and grim and unpleasant. I feel so much more cheerful in sunny weather and blue sky, or even dry is a bonus at times when you have two dogs to walk in a wooded area that never seems to dry out unless the sun beats down for a day or two. 

    I don't know what I'm facing in the future, but I feel much more in control of it now and ready to face whatever. I always do "live in the moment" anyway - I love sitting on a bench just enjoying the sunshine, or looking closely at all the little wild flowers as I walk my dogs along - so I can't really make any improvements on what I already do in my life, but just keep on doing them. My dogs always live in the moment, and I have always taken my cue from them before when I was the normal Me.

    I am now referring to BC and AD. Before Cancer and After Diagnosis. 

    Two different stages of my life. Oh and I discovered by chance on my last shift that yet another work colleague, about three years younger than I am, also had a full hysterectomy and a bit of chemo way back when she was about 34, for what she referred to as "a bit of cancer"! And here she is 25 years later walking around as if she had never had cancer or a hysterectomy! 

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