Has anyone had an enlarged lymph node for six/seven years?

Hi everyone, I'm new here.

I've been trying to find examples online of chronically enlarged nodes which people have had for maybe six years or more. Not much has come up; I suppose often people might get them looked at a bit sooner than that.

I have had one in the top of my thigh for roughly that long. I found it either just before or just after my last child was born, I can't remember - it felt hard-ish and lentil-sized, and I made a note but it didn't do anything, so I just kept monitoring it. After a year or two it was probably the size of a baked bean, and then a couple of years later more like a small kidney bean I suppose. It was mobile, and smooth and seemed to fluctuate a bit - I assumed because of hormones, or whatever was causing it to be enlarged in the first place. So it got a bit bigger, then smaller again.

At that point I went to the GP about it, but she wasn't able to feel it and just said watch and wait. Anyway a month or two ago it started to feel a bit uncomfortable, like it might be pressing on a nerve I suppose, and although it wasn't really noticeably larger it was bothering me; I've been able to see it through the skin for a couple of years, in certain positions, and I don't like it being there. So I went back and she could feel it this time, and said she would send me for an ultrasound. And I had blood tests which have come back more or less fine, so I'm just waiting for an appt and freaking out a bit.

Having searched it up, it seems as though it would fit the profile for Follicular Lymphoma quite well. I can't feel any other lumps anywhere, and I haven't had any B symptoms.

I suppose I'm trying to find a differential diagnosis for it other than FL, but I can't seem to come up with much - everything seems to be either about reactive nodes, which are softer and go away after a while, or malignant ones - it doesn't feel hard like I imagine a metastatic node would, and it isn't fixed. So if it isn't an indolent form of lymphoma then I'm not sure what else it could be.

If anyone else has got, or had, a weird solitary (I hope) node like this, for years and years, I'd be really interested to hear from you - even if it was malignant. Just going a bit mad I suppose.

Thanks for reading if you got this far : )

 

Parents
  • Hi, I don't know if anybody is ever really on here but i'm looking for reassurance. i've just turned 18 so please go easy on me because i'm so scared at the moment!So about about late september time i felt a small lump at the bottom of my hairline on the back of my neck. it's not that big but it is kind of hard. i obviously thought to call the doctors. so i booked an appointment and the doctor felt it and told me that it was kind of hard but not solid and that he wanted to see what happened in the next 6 weeks, because it could've been an infection on the way.  

    i was still very worried so i decided to request a full blood test to put my mind at ease. the results came back around a week later and my liver and kidney function was fine and so were some of the landmarks that they said they look for with most cancer so there was no real cause for concern. they did say that i had EBV at the time which was such a relief, but i got a call a few days later to say that that wasn't actually the case and it was misread. they did say that my thyroid levels were slightly raised (i have hypothyroidism-under active thyroid) and that could be due to an infection. this was verified by 2 doctors at my GP.

    so nothing was that clear to me. i can't just go on like i'm fine, i'm always worrying about it. two weeks ago i booked a phone appointment with the doctor and i went through everything again and he told me that he would refer me to the hospital to get an ultrasound in the next few weeks, but to call back if i get symptoms such as weight loss, night sweats and unusual bruising. i'm still awaiting the referral letter 

    the lump seems a lot more raised when i wake up in the morning and seems to calm down slightly as the day goes on, i'm holding onto this fact as i think it's a good sign but i'm not 100% sure. i haven't had any of the symptoms that they are worried about, but i'm making myself feel ill worrying all the time. 

    i really hope someone can offer me some reassurance because google obviously isn't helping! 

    Thank you

  • Hi Emily, 

     

    Welcome and sorry for the delay in answering. I hope you are doing OK. 

    What has happened so far all sounds standard, and precautionary. Doctors feel lumps all the time, and they know when it's something to worry about - there are signs they look out for, like a lump that is growing quite rapidly, or in certain locations, or with a certain consistency. So you would have been told by now if they thought it was worth getting alarmed about. 

    Not hard is good, and the fact that the size seems to fluctuate is also good. Malignant masses tend not to do that.

    The symptoms you have been told to report - night sweats and so on - are what are known as "B" symptoms, if I've got that right, and if you had any of them it would warrant a quicker process to rule out malignancy. So it's great if you haven't.

    Ultrasound can usually distinguish between a malignant node or mass and what is called a reactive node, which is basically a node that has swollen as a result of infection or inflammation. So this ought to give you some reassurance. 

    Please try not to worry too much. Small, reasonably firm nodes are really common, and the vast majority prove to be harmless. 

    I know how easy it is to let the thought of it being cancer take over your thoughts, but from what you have said I really think the odds are on your side that it's nothing to worry about. 

    Let us know how you get on, 

    Take care, 

    AK

Reply
  • Hi Emily, 

     

    Welcome and sorry for the delay in answering. I hope you are doing OK. 

    What has happened so far all sounds standard, and precautionary. Doctors feel lumps all the time, and they know when it's something to worry about - there are signs they look out for, like a lump that is growing quite rapidly, or in certain locations, or with a certain consistency. So you would have been told by now if they thought it was worth getting alarmed about. 

    Not hard is good, and the fact that the size seems to fluctuate is also good. Malignant masses tend not to do that.

    The symptoms you have been told to report - night sweats and so on - are what are known as "B" symptoms, if I've got that right, and if you had any of them it would warrant a quicker process to rule out malignancy. So it's great if you haven't.

    Ultrasound can usually distinguish between a malignant node or mass and what is called a reactive node, which is basically a node that has swollen as a result of infection or inflammation. So this ought to give you some reassurance. 

    Please try not to worry too much. Small, reasonably firm nodes are really common, and the vast majority prove to be harmless. 

    I know how easy it is to let the thought of it being cancer take over your thoughts, but from what you have said I really think the odds are on your side that it's nothing to worry about. 

    Let us know how you get on, 

    Take care, 

    AK

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