Has anyone had an enlarged lymph node for six/seven years?

Hi everyone, I'm new here.

I've been trying to find examples online of chronically enlarged nodes which people have had for maybe six years or more. Not much has come up; I suppose often people might get them looked at a bit sooner than that.

I have had one in the top of my thigh for roughly that long. I found it either just before or just after my last child was born, I can't remember - it felt hard-ish and lentil-sized, and I made a note but it didn't do anything, so I just kept monitoring it. After a year or two it was probably the size of a baked bean, and then a couple of years later more like a small kidney bean I suppose. It was mobile, and smooth and seemed to fluctuate a bit - I assumed because of hormones, or whatever was causing it to be enlarged in the first place. So it got a bit bigger, then smaller again.

At that point I went to the GP about it, but she wasn't able to feel it and just said watch and wait. Anyway a month or two ago it started to feel a bit uncomfortable, like it might be pressing on a nerve I suppose, and although it wasn't really noticeably larger it was bothering me; I've been able to see it through the skin for a couple of years, in certain positions, and I don't like it being there. So I went back and she could feel it this time, and said she would send me for an ultrasound. And I had blood tests which have come back more or less fine, so I'm just waiting for an appt and freaking out a bit.

Having searched it up, it seems as though it would fit the profile for Follicular Lymphoma quite well. I can't feel any other lumps anywhere, and I haven't had any B symptoms.

I suppose I'm trying to find a differential diagnosis for it other than FL, but I can't seem to come up with much - everything seems to be either about reactive nodes, which are softer and go away after a while, or malignant ones - it doesn't feel hard like I imagine a metastatic node would, and it isn't fixed. So if it isn't an indolent form of lymphoma then I'm not sure what else it could be.

If anyone else has got, or had, a weird solitary (I hope) node like this, for years and years, I'd be really interested to hear from you - even if it was malignant. Just going a bit mad I suppose.

Thanks for reading if you got this far : )

 

  • Hi, sorry to hear about what you are going through. It sounds really stressful and I get why you are concerned, but if the ultrasound shows a reactive node, then that is usually very accurate - there are things that you can see if you know what to look for, and lymphoma nodes look different to reactive nodes. It's possible to have swollen nodes for a while, even if the infection has gone. I would try not to be too worried. I'm sure your doctor knows what they are doing.

    My own son has had nodes in his neck that came and went, and we still don't know if he had glandular fever or something else, but it took a long time to go away completely. 

    Best wishes 

    AK

  • Omg thank you . Its so nice to hear something positive . Is just it was going down and than after we finished antibiotics he got temperature again in 3 days and we rushed to hospital because I got worried so much . And than they done the ultrasound and blood test . Hopefully he will get better now and that lymph node will slowly dissappear.  Is just hard for me right now as I am pregnant with my second baby and its so stresfull to see my son like this.

     

    I hope you are keeping well too 

     

    Thank you 

    Best wishes 

  • Just reading through your thread as I've had swollen lymph nodes in my face for 7 months now & despite several different courses of antibiotics & steroids (prescribed by doctors whilst in Spain for the winter) the lumps are still there, and probably spreading to more places. I had a biopsy also whilst in Spain & was told it wasn't a cancer - to my enormous relief!

    But now I'm back home in uk and still have the lumps (some lumps visible if you look closely) I'm sort of thinking I should stop ignoring this because of the Covid crisis & not wanting to bother the over-stretched nhs resources...

    Be very grateful for your advice, & hope your situation is ok now!

    Thanks - FairyNuff

  • Hiya. Sorry to hear you are concerned about this, and I understand your dilemma over whether to bother your GP with it at the moment.

    I think first of all it is a very good thing if you have had a biopsy already and nothing was found to indicate cancer. But that doesn't mean the lumps are welcome, and especially if you think there are more of them, I would think it worth going along just to say, look, what do you think is causing this.

    It's very unlikely to be anything terrible if no one has suggested a serious diagnosis so far, but it might be treatable. 

    So in short I'd probably always recommend trying to get a diagnosis if you are able to, but I shouldn't worry too much about what it might be.

    I hope that helps a little bit. All the best and let us know how you get on.

     

    AK

  • Thank you so much for your response!  I guess it's just worrying me that after treatments with anti-bs & steroids they ENT & Dermatology in Spain couldn't really say what's going on. I will prob have to start all over again here, but as the lumps are becoming more visible & tender I will try to see my GP...

    thanks again!

    FairyNuff

  • Yes I know it's really hard when no one knows what's going on. But sometimes that's a good thing, because they are used to looking for red flag symptoms for things that are serious, and obviously you don't seem to be causing alarm : )

    Also if they are tender, that is another thing that often suggests a benign or infective cause. 

    Good luck, whatever it turns out to be. 

    AK

  • Hi AngieK, 

     

    I was just reading through this thread and I'm not sure what stage you're at with things but I thought I'd share some reassuring words. 
     

    I've had a swollen lymph node in my neck for atleast two years (to my knowledge) and this thing is BIG. It's about an inch or so long on the right side of my neck, quite hard, but still remains moveable. I started getting it looked at in October 2019 but showed no symptoms typical of lymphoma so I was given a few blood tests and everything was normal. That was that.

     

    I've seen three different doctors since then about this as unfortunately two members of my family have lost their lives to cancer in the last three years so the idea of it terrifies me. None of the doctors ever seem concerned which, considering how large it is, I always find confusing. I've had blood test after blood test and a chest X-ray (suggested by the third doctor to shut me up I think) but everything is fine.

     

    I've always been really susceptible to tonsillitis, getting it around 4/5 times a year for as long as I can remember, and the doctors always say it's simply a reactive node and will most likely stay that large as it's always preparing for the next infection. 
     

    I have another blood test to take in August just to monitor my chronic inflammation but aside from

    that, the doctors are really not fussed. They always end with saying 'if you start losing massive amounts of weight without trying, or you start having night sweats, you must let us know' which, is a bit scary, but they say it so flippantly that it doesn't cause much concern for me. You just have to think matter-of-factly.
     

    I guess what I'm trying to say, is a swollen lymph node, especially if there are no symptoms, seems to be pretty normal so don't think the worst!! I really hope everything works out for you!! 

  • Thanks so much. It's really kind of you to post - I'm OK, it wasn't a lymph node after all and you can see what happened after this if you click on my profile and look at my other posts, but anyway I'm doing OK.

    I'm glad you are too, and I know for sure I would have been very reassured by your post when I was freaking out last autumn. 

    So thank you again. I really appreciate it and I hope others in a similar situation will too. 

     

    Best wishes, 

    AK