CGIN cells and recent LLETZ

Hi, 

I'm very new to this forum but wanted to get some advice and share my story with others. 

 

8 weeks ago I had results back from smear - HPV positive and moderate to severe changes.

 

Referred for a colposcopy which I had 5 weeks ago. Mentioned there wasn't anything severely abnormal but took some biopsies. 

 

Had results 2 weeks ago which found CGIN cells, went for LLETZ treatment last Tuesday not even a week ago.

 

Since then I've had constant lower back pain, some twinges/period pain, and now hip pain. Feeling tired, got a little bit of smelly discharge but not much in consistency, a bit constipated, bad heartburn & acid. My hot water bottles never had so much use! 

 

Anyone any idea what's happening? Due to have my results in 3 weeks time, gyno advised I might not need more treatment but was told everything was OK the first time I went.

 

What can I expect from the LLETZ results? Will I have to have the treatment again? Will it confirm grade precancerous or even cancerous cells? I'm 28, not had any children as yet. 

 

Appreciate any advice anyone has.

 

A x

  • i have moved from essex london back to west of ireland where i'm from ... 

    i completely agree with not being ok with the decision being taken away from us in regards to hysterectomy even if we did not see any more kids in the future 

    i have had no info at all only that i have this appointment in may and that's it my CGIN was graded as high grade but didn't explain it 

    and the HPV so that's two things the confusion is real and reading stuff on the internet dose not help as i have seen a lot of where people have gotten that treatment and ended up needing a hysterectomy anyway ... or getting pregnant and having some issues ... so i just don't know 

    we are still in full level 5 lockdown here and no sign of coming out of it so he will be over there where he can work untill it opens up here 

    do you have instagram?xx

  • That is so tough for you. I'm from Northern Ireland - Belfast. I'm finding it hard not being able to go home, to see my mum particularly, with lockdown etc. When I phoned to tell her all this, was first time I've ever heard her worried, she's usually really positive and I came off the phone feeling worse. 


    I didn't realise Ireland was still locked down has hard, I know the North has an easing of some restrictions from today. 
     

    I hate the thought of a hysterectomy but at same time I wonder if maybe it's just the way to go - I don't feel like I'm coping well with all the endless waiting etc, I think I'd offer up my cervix and whatever else they want just for this agonising worry to be over! 

     

  • i know my mom was the same to be honest 

    i have just added you might be easier to keep in contact if you don't mind i have found some comfort in hearing from u to be honest 

    yes i feel the same about the hysterectomy as i'm scarred that something worse will come up and then it will be too late that's my thoughts and what's constantly in my head that if i do anything else it won't work ... i know it's so silly but that's the reality for me and my thinking xxx

  • hey sorry to hear of your news i too have the same results as u 28 years old and have 3 kids i have my appointment with my consultant tomorrow to discuss my options in hospital how long have you been waiting for your surgery ?? this all started in september for me so it's been ages i feel x hope you are doing ok xx 

  • Hi everyone I hope your all well!  I'm not new here but struggling to find my post from a few months ago. Here's my story... 
     

    I hadn't had a smear in 5 years due to being caught between pregnancies and irregular bleeding and I have been having numerous symptoms signalling some sort of cervical/womb issue I had an ultrasound which was clear and they suspected Crohn's disease so referred me to gastroenterologist before that appointment I was sent to an emergency surgical unit down to severe lower and upper abdominal pain. During that long wait of 24 hours on a chair in a hallway I had a CT scan to investigate Crohn's disease. 
     

    waited in the hall for results and a Gynae doctor called me in and explained a mass had been found on my cervix and I had fibroids, as I'm 30 they were reassuring it is less likely something major but obviously it's was possible and they just had to look into it. Sent home and referred to emergency gynaecology doctors for further tests and I underwent a colonoscopy due to still suspecting Crohn's also and that's was clear. 
     

    mri was completed and a smear test. Mri was clear apart from fibroids While I was waiting for my smear after an examination they decided a colposcopy and biopsy due to being able to see the mass with the naked eye. Smear test came back abnormal as expected but now I've had my biopsy results which show CIN 3 and have been told I will undergo LLETZ treatment. I understand CIN 3 is NOT cancer and I'm guessing I have the all clear in that respect but when I have the LLETZ should I prepare myself for anything as I'm unsure if it's possible to change to something more by the time I have the LLETZ. I rang the helpline linked to this website and the nurse was throughly reassuring and explained all in detail but I found it hard to ask out loud if there is still chance of progression or if it's just goi to be a case of taking the cells away until hpv is clear. As they suspect I have hpv present. 
     

    sorry for the length of my post. Just looking for what results a LLETZ can possibly show and find out others experience. I've looked all over and not seen one case so far progress more than CIN 3 which is reassuring 

     

    Thankyou all.