Good morning all,

I recently had a smear which showed HPV and abnormal cells were back again but the letter read different this time, it recommended a colposcopy within two weeks and it was more detailed regarding needing treatment. I have had two colposcopies before but not needed treatment, this felt different. I received a call Monday morning and went in 3:20pm that day. I was told I had CGIN so LLETZ treatment was recommended, doctor said they will take as much as he felt necessary but asked questions like have I finished my family. I found it all a little overwhelming trying to take in all the information then knowing the procedure was happening there and then. I was so emotional Monday, my head was spinning but I feel so much better about it all as I have had time to read and get more of an understanding of what could happen and what my options are. 
 

The six week wait for results seem like a long time to make people wait but I am hopeful I will get news sooner, has anyone else had their results through sooner?? 
 

Also can I ask for a hysterectomy???

Hi my daughter had a recent colposcopy for cgin. Her smear came back low grade changes and hpv . On coloscopy they took a biopsy which showed cgin . She went back for lletz and has had it confirmed the area was successfully removed . She has to have check ups every 6 month by the same colposcopy lady who has been brilliant . All this happened in a very quick timescale the lady fast tracked the results and got them back and to MDT within 8 days . Excellent service . Daughter is 26 has had her family but hopefully fingers crossed close monitoring will avoid a hysterectomy and things will return to normal , best wishes to you 

hey i am wondering was that the only treatment you were offered ?? as i am in the exact same boat as u same age 3 kids two abmnormal smears first one no one done anything blamed it on me breastfeeding now CGIN high level and HPV i have a consultation on the 12th of may to see what my options are ? i'm trying to get as much info as i can really 

Hay,

Yes was offered Lletz again or straight in for the hysterectomy I decided to try the lletz again thankfully they managed to remove all remaining cells n told have 6monthly smears which I had to today I drive my self crazy trying to work out the best decision but for now just went with my gut feeling really hoping they haven't returned! Hope ur doing okay xx

oh thank you for replying means so much as any info i got was very uninformative

i have spent 5 years trying to be referred to gynaecologist but oh you are so young etc i have had terrible issues and now this i feel like the 12th of may is so far away as i had the smear in september and it's now march maybe i'm just being impatient but i'm so stressed my gut is telling me hysterectomy as my mom had the exact same everything gyne related and the smear and had to have one at 28 hope you continue to do well xx 

Hi ladies 

Sorry for jumping on this post, but I have found it really helpful. I attended for colposcopy back in February and had biopsy taken, doc said she didn't think visually would be overly high but asked what I wanted with regards to treatment. As I am 36 I said regardless of CIN 1-3 I wanted anything "abnormal" gone. I had an appointment on Friday passed for treatment based on this so I wasn't overly anxious, more relieved that this worry would be over.

The doctor informed me I also had CGIN, which I wasn't prepared for at all. She gave me information with regards to Lletz which she was doing at the appointment and the next steps with regards to second Lletz if these cells are not fully taken on this occasion - then ultimately hysterectomy if this is not successful. 

To say my head was spinning is an understatement. I spent the entire Lletz procedure sobbing and struggling to compose myself in any way. 

I am really thankful, that this has been found, and that we are moving forward with treatment quickly. My doctor has been so lovely and understanding that I'm feeling really, really anxious advising me to contact her secretary any time for update on results.

I can hear all these positive things, and try to think sensibly about the whole thing - but I am just dwelling on the negatives in the unknown. Terrified that these results will discover something worse than pre-cancerous cells and this is going to get even worse. 
 

I don't really know what I hope to achieve with sending this message. I guess, it's just good to speak to people who understand and have been through this. People are very nice and understandably are trying to reassure me, but it's getting me down already having to pretend to be okay, to save their feelings - when I know I'm really falling to pieces inside. 
 

Thanks for listening x

hey hope u are well 

i completely understand every feeling you have i am the exact same i am devastated with the whole thing i have HPV and CGIN high grade ... it's been a long time really to u got my smear in october and result just after xmas 

then app for colposcopy a month ago and now waiting my appointment on my 12th it feels like for ever 

i cannot help but feel like there is more wrong i have had so many issues gyne related and nobody cared because of my age it's silly to me but what can i do i'm here now waiting to see what i should do i don't even know my two options only that lilizet treatment i was told i would be offered two but as it was on the phone they said it would be discussed when i go in 

have you gotten the treatment done ? how long is the wait ? xxx

Hi Sammy

I hope you are doing okay, it's definitely a horrible rollercoaster of emotions to be on and personally I have found it to be very lonely. 
 

I had my first Lletz on Friday, the procedure in itself wasn't too bad - I was just a little crampy during and then that evening but it's all subsided now. I also haven't had very much bleeding at all. 

You must be so anxious if you have had your own concerns before all this, I didn't have any concerns until the smear results. 
 

Is your appointment 12 of April (tomorrow) or may? I would imagine you will get your Lletz done at that appointment after your discussions. 
 

I really hope your doing okay - your wait has been lot longer than mine and I know, is so angonising. Xxx

thank you for the reply

no the 12th of may it's crazy everything was pushed back because of covid 

ya i'm just over thinking everything at this point but i will share how i get on 

i have only just moved home also after being away for 6 years and my husband has not been able to come back as planed because of covid so i'm on my own with my 3 babies so i think it's all just getting to me 

do they biopsy again after the treatment u have had done or just another smear in 6 month xx