2 week suspected melanoma referral and terrified!!

Hi everyone,

Sorry for the long thread but I want to give you all as much info as possible..

I've been under xxx hospital for nearly 3 years now for an ongoing bowel condition (which started as constipation after my Son was born 10 years ago) I suffer from chronic constipation and have to take laxatives daily and have awful stomach cramps, embarrassing anal itching and a general feeling of my anal area being swollen and painful to sit. I had an MRI with shapes (I had to swallow) nearly three years ago and the Consultant said I've got lazy bowel transit. Since then I've been under 6 monthly review with the nurse-led colorectal clinic and all they ever do is prescribe me a new type of laxative (which never works as the only one I find effective is Senna.)

I've asked about colonoscopy and told it wasn't necessary. I have my next appt with the nurse-led colorectal clinic on 22nd October.

However, I have also recently found a lump on my neck and as such have been referred via the two-week urgent pathyway to the skin clinic and have an appt on 15th October (two days time).

In the past few months I have been feeling increasingly tired, losing handfuls of hair and just feeling generally unwell and run down but I'd put this down to starting a new job, working full time and being a busy mum of two children (one of which is Autistic and takes up a lot of my time and energy)

The only reason I went to my GP about the lump on my neck/shoulder is because I was having neck pain which radiates down my arm (and I attributed it to work again) and I was rubbing some deep heat into my neck and noticed a skin tag which I'd had for years had grown...so I got my Husband to take a photo and it showed two different colours and I panicked. So I booked a GP appt (which I had to wait 3 weeks for!!) and she told me she was referring me urgently...and here I am.

I've done what no person should ever do and looked online but all I've found is countless stories of people with undiagnosed bowel cancer and terminal malignant melanoma! I'm now terrified as I'm only 36 with two children and don't know what I will do if they tell me I have cancer - especially as I've felt something wasn't right for such a long time.

Plus I don't know what to expect on Tuesday because surely they can't just tell me there and then I have melanoma? What will they do to test on the day? (if anything)...I'd appreciate any advice please or any similar stories to mine.

Thanks in advance

  • Hi,

    I'm sorry you are facing all these worries, especially when you already have an ongoing health worry. 

    On Tuesday a dermatologist will examine your skin tag, probably using a dermatascope (a magnifying instrument which shows any unusual cells in the mole). They will also probably examine the lump in your neck/shoulder. They will then decide if the skin tag needs removing for biopsy. It's rare that this is done at the initial appointment unless they have the time, staff and theatre availability. They usually give you a date to go for removal as a day surgery patient (it's quick and involves a few stitches but there is a lot of waiting around before & after the procedure). The mole is sent for biopsy & the results, on average, are taking 4 weeks at the moment. Make sure you have someone with you on Tuesday, just in case they can remove it there & then and to help remember anything you've been told by the consultant.

    There is a good chance that it will be OK - for every 10 that see the dermatologist only 2 or 3 are diagnosed with melanoma. Should it be melanoma, don't panic! Treatments are getting better & are having great results. Your other symptoms may not be connected to your mole, especially losing your hair & feeling very tired - they aren't a recognised symptom of melanoma.

    My advice is DON'T look on Google! The information is out of date & only gives worse case scenarios. If you want more information please stick to the CRUK website, Macmillan or the British Association of Dermatology websites. 

    Good luck and please let us know how you get on,

    Angie (melanoma patient)

  • Thanks so much for all the info Angie, I feel a bit better knowing what to expect on Tuesday now as I was completely clueless.

    I'll just be glad to get Tuesday over with so at least I know what I'm facing.. Hopefully you are right and I'm in the lucky 7 out of 10... I note from your message you are a melanoma survivor. Do you mind me asking a bit more about your story so far? 

    I will of course keep you updated from Tuesday. 

    Thank you again

    Sam X

  • Hi Sam,

    I was diagnosed with early stage melanoma 23 years ago. After surgery I had 5 years of check ups and then was discharged. Unfortunately I was in the 5% of early stage patients that has a recurrence and mine happened 13 years later. It had spread so I am now Stage 3, however I am fit and healthy and still here 10 years later! Melanoma is a sneaky cancer but research is starting to catch up in the understanding of how it behaves and finding treatments that are showing great promise! xx

  • Oh wow...So there really ARE melanoma survivors out there! Everything I've read online just suggests its a death sentence so im happy to read you are still here 23 years on...despite your relapse. I'm so sorry to hear you have been bitten by it again, but very glad to hear you are still fighting fit!

    Thank you again for the reassurance, I hope I will be messaging you soon with good news...

    Sam Xx

  • There are definately survivors out there, more and more as research improves treatments and finds new ones that are are showing promising results. Crossing fingers for you tomorrow x