Worried about neck lumps

I have three lumps in my neck. I have had them for about 5 months. I have been to the GP repeatedly and been told they are likely due to other things. I have an autoimmune disease (psoriatic arthritis) and also scalp psoriasis and two GPs have thought it was this. Another GP thought they were just fatty lumps. They are each about 1-2cm and move around when touched. I just cannot understand why they have not come up before when I’ve had my initial autoimmune disease for over 10 years.

I spoke to my Rheumatologist about them and she said she didn’t think they were common with my autoimmune disease and has referred me to ENT for further investigation. 

My appointment is not until November 22nd and I am majorly catastrophising trying to keep calm in the interim. I know they could be something else but it’s hard not to think the worst. I am 28 and mum to an amazing 3 year old. This is not a battle I feel ready for at the moment. It’s been a tough year for our family so far, we lost my grandfather suddenly and my mother in law is currently going through chemo for oesophageal cancer  

Would love to hear some of your experiences. I do not really have any other symptoms, I am tired but do put that down to motherhood and a busy job. I am also itchy but not excessively and put that down to my psoriasis (I hope!). 

Thank you so much! 

  • I've got exactly the same thing going on as you. Ive got around about 5 lumps on my neck doctor revered my on an urgent appointment to ent. I was there today. They have put a camera up my nose and now I've got to go for biopsy ultrasound scan and ct scan.

    im terrified. I'm 35 with 3 kids 13 11 and 5.

    im just awaiting appointment now for the other tests.

    I have had immune problems in the past so reading what you've put gives me a bit of hope both ours could be down to that.

    i had something called erythema nodusum a few years back and another flare up of it maybe June this year. I'm not sure if the lumps are connected. I've looked up everything trying to see what else it could be. 
    sorry I couldn't give you any more answered just wanted to reach out as seems we are in the same boat

  • I’m sorry to read you are going through the same thing. Hopefully in a few weeks this will all be nothing and we can move on <3

    What happened at your ENT appointment? I’ve just had the letter come through with no additional details so wondered if it would just be a chat with a consultant or anything additional. How long have you had the lumps for? Do you have any other symptoms? When is your ct scan? Xx

  • They felt my neck looked in my throat and put a small camera up my nose down into my throat it wasnt very nice but over in minutes. I'm not great with that sort of thing. It was the consultant I spoke to today I go back in 3 weeks to discuss results of ct scan ultra sound and biopsy just waiting for appointment to come through I'm guessing it will be soon though if I've to go back in 3 weeks.

    Its horrible all I've done is google probably the worse thing I could do.

    i had full bloods done at doctors and they came back fine.

    i will keep you posted at each stage. I'm so worried I'm sure you are the same. Sorry I have no more information x