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Waiting on CT Scan Liver/Pancreas - nervous as hell

elektrik80
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Hi everyone, new here.

So i have been having loose, pale or yellow stools.

i have had my bloods done and my bilirubin levels were moderately high but then they always have been elevated so the doctor wasnt too worried. They mentioned Gilberts disease. It was originally 23, then it was 31 and now itbhas gone back to 26 again.

All my blood counts came back okay, I had a slight increase  in my ALT’s but again that has started to come back down. It was 15, then went to 25 and has gone back to 20 again

I still have my symptoms but no jaundice of skin or eyes, no massive itching, swollen abdomen or any of the other usual signs that are associated with Pancreatic or Liver Cancer.

So went to A&E last night. The doctor there said that in her opinion she would be surprised if there was liver or pancreatic cancer or liver disease.

Spoke to my GP doctor today who was a little more concerned but again said that my bloods are okay overall but there were some question marks over some of the results.  

She didn’t want to say too much as to the possible other causes as she knew I would worry so left it slightly open. Overall she said she would be surprised but that there was still a possibility of something more sinister.

As a precaution I had a CT scan privately (thank god for PPI money) on Wednesday. She said CT scan would show up everything and that we will know if there is either cancer or liver disease.

All i have to hope for is that it is my gallbladder and that there are some issues with sludge or stones.

I just want to know now, i have been waiting too long. I have 2 kids, who rely massively on me and my mum has just being diagnosed with Anal Cancer and is just starting therapy

Im so scared and nervous. I just want to know now so I can prepare my family and put plans in place if that is the case.

How do you deal with the wait, it feels forever away.

M

 

 

  • Hello M and welcome to the forum. 

    I'm sorry to hear that you've had some health problems recently. It's understandable that you're feeling worried about things. 

    It sounds reassuring that the GP isn't overly worried about the results that you've had so far. Hopefully you won't have to wait too long for the CT results and they will give you some answers and reassurance. 

    In the meantime I hope that you're able to find some time to relax and enjoy the children and that your Mum's treatment goes smoothly. 

    Do keep in touch M and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Offline in reply to Moderator Jenn

    Thanks for replying, I appreciate it.

    My poos have returned to normal for now but i do seem to have dropped alot of weight which is really concerning me despite everything thats happened in the past 5 months.

    I have also developed back pain as well which isnworse when I lie down.

    to me everything points to advanced Pancreatic cancer which means I won’t be around for very long.

    Waiting till Wednesday is terrifying tbh, i just can't sleep and struggle to eat.

    i just feel like my body is riddled with cancer. It’s so deeply upsetting.

     

  • Offline in reply to elektrik80

    Hey how are you getting on. Any update on this? 

  • Offline in reply to KKGab

    Hi there

    So I have had my MRI today.

    The CT scan back with a lesion on my Pancreas but they couldn’t tell if it was cancer or not. They said the lesion was jot typical of cancer and showed no masses but need the MEI to check.

    They mentioned and attack of Pancreatitis, fatty infiltration or a cyst could also be whats there.

    they also needed to check my gallbladder in more detail to see if there was anything floating around blocking occasionally.

    since the initial ct scan, my body has stared to hurt kore, back & chest and my bowels have been very inconsistent so i do feel like its all going to be bad news.

    i guess its just a giant waiting game now and the longer the wait goes on the better the news i suspect.

    in between all this i have also just helped mum go throuh radiotherapy and chemotherapy. It weird to think this may be my journey too.

    thanks for asking btw - its most appreciated.

  • Offline in reply to elektrik80

    Hi there, stay strong! I know it is a really tough time as I am concerned and worried too. Keep me updated on this and no worries in terms of the reply. 

  • Offline in reply to elektrik80

    Hi electra, I know it's been a while but just wondering what the outcome was? x

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