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Waiting on cervical biopsy results

Lilybilly06
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Hello,

I'm new to this chat and currently driving myself insane. I'm 34 and a mum of a 7 year old boy. I have always attended my smear tests and a year before having my son I had abnormal cells and a biopsy sent but no further treatment needed. Just more frequent check ups.

All of my smears since came back normal until my recent one in July this year.  I recieved a letter after missed phone calls from colposcopy saying an appointment had been made for me as CIN3 and severe dyskaryosis with moderate changes had been detected. 

At my colposcopy appointment my consultant said it was unusual for such a high grade change in a short space of time. He took 2 biopsys and said he wanted to wait on results before performing any treatments. That was on 6th September. 

I have been back and forward to my gp from the beginning of this year with constant pelvic, hip, leg ,lower back pain, constant period like cramps and feeling beyond exhausted. However it wasn't until after my biopsys that I learned this can all be symptoms of cervical cancer so I have been worried to say the least. 

I rang the clinic today to ask if there was any update on my results. The receptionist said my results are back but the doctor is off this week! And they will send a letter with results. I'm just finding it very frustrating now knowing my results are there and I don't know what they say. Would the lab have sent my results to my GP also or does the consultant have to write his report 1st? 

Sorry for such a long post x

  • Offline in reply to lilly09

    Hi, I hope your results bring good news. The wait is such a worrying time.

    The consultant's secretary told me on the phone my results are in but I've not received a letter or call asking me to come in. That was Friday, 4 October. The lack of communication with my healthcare Trust has been very poor.

  • Offline in reply to lilly09

    Hi. Sorry to hear your feeling like us. Even though I've been told the doctor has looked at my results and I have another appointment I don't actually know what my results are but know they are abnormal. That's all I've been told. Even the thought of waiting on the next results if the do treatment is draining.

    Same with me I just really haven't felt right for nearly a year now. You just know something isn't right. So glad your team is fast though as it really is not nice the longer it goes on. Your mind goes into overdrive! Keep us updated, I wish you all the luck!! Xx

  • Offline in reply to Rammsteinqueen

    I can't believe your still waiting! Did you try ringing them? I didn't want to feel like a pest but the receptionist was lovely and at the end of the day it's your health. X

  • Offline in reply to Lilybilly06

    I left another voicemail last week. First time the line went dead then left message but not heard anything. It is so annoying! Secretary knows my results but I don't! I am so disappointed ️ 

  • Offline in reply to Rammsteinqueen

    I honestly feel so bad for you it's not fair.  It's your right to know something. I will keep my fingers crossed for you getting a letter this week! I should be getting my letter today or tomorrow and even though my results won't be in it I feel a relief knowing things are moving forward and I do need treatment. Xx

  • Offline in reply to Lilybilly06

    Thank you x I am glad you are getting things sorted quicker.  I will give it until Wednesday and if I haven't heard anything then when the post has been I will call down or even pop into the hospital Women's health and bloody demand to speak to someone because this is just crazy.  If they told me it would be up to six week wait fine, but they told me 2-3 weeks biopsy and 2 weeks max for MRI. Take care xx

  • Offline in reply to Rammsteinqueen

    Any luck with results for you today? I just want next Friday to come and get some proper answers. I haven't had a good feeling about it. X

  • Offline in reply to lilly09

    Hi have you got your results yet? I really hope it was good news! This week is going to feel like the longest week for me waiting to go in on Friday x

  • Offline in reply to Lilybilly06

    Hi, 

    I still have not heard anything re mine. It's 11 days today which I know for some wait a lot longer! It's just I was inform within 2 weeks. Fingers crossed today or soon atleast. 
    The first week of the wait has been excruciating, trying to hide the roller coaster of emotions from the children. Not felt too bad the last few days. 
    how are you all feeling? 

  • Offline in reply to lilly09

    Hopefully it will be any day now for you. I've been very up and down lately, very emotional at times. My consultant letter from the biopsies came on Friday and gave me no information at all. It just said abnormalities are dected and treatment is required so very vauge. Whereas my smear test letter explained everything that was wrong. My partner has been worrying too so the house has been quite sombre. I have booked time off work next week anyway to give myself a good rest as my job is very physical. Hopefully things will feel a lot clearer in my head by then x

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