Worried about lymphoma

I’ve had swollen lymph nodes on my neck for the last month now - my right one is particularly swollen, even the doctor seemed pretty surprised when she seen and felt it. I also have a swollen lymph node at my groin. About 3 weeks ago I had a fever, severe night sweats, chills and a sore head. All of these symptoms went away after about a week. However I am still exhausted all the time and my body feels extremely week - especially my arms. I’ve also become very itchy over the last week, mostly my arms and my chest and my stomach has been very bloated despite not eating very much. Over the last year I have lost 3 stone, but no drastic weight loss over the last month. 

Whenever I google my symptoms (I know I shouldn’t) lymphoma always seems to come up. I got my bloods taken on Monday, just waiting for the results they will hopefully come in tomorrow but I am just very worried! A lot of the posts I have read say that lymphoma is often mistaken for other less serious health issues and I just want to make sure that doesn’t happen! I’m not even sure if lymphoma would show up in a blood test?

 

Any advice or anybody going through the same type of thing with the same symptoms would be appreciated xx

Parents
  • Hi! Sorry you have been brought to this site. I see your post was at 3am aswell :( 

    I am in the same situation and waiting to see a hematologist. I have had fever and chills on and off for 3 months now! I also have swollen nodes in my neck too. All my bloods are normal. The waiting and not knowing is so hard to deal with. Please try and stay off google. Although I dont follow my own advice! I find it hard in my spare time not to spend it googling but it does nothing but convince me I must have lymphoma.

    Maybe phone your doctors and see if your bloods are back yet? 

  • Hey, thanks for replying! Sorry to hear you are in the same situation too :(

    I just had an appointment with the doctor there, all my bloods came back normal, but she has referred me to a lump neck clinic so I’ll just be waiting to hear back from them now. She said I should be 30% worried about lymphoma... which I felt was actually quite high

    Hope you hear back soon and everything goes well for you!

  • Im sorry she has worried you. I wonder why she says 30%, I know it sounds high but you have more chance than it isnt lymphoma than it is so try to keep that in mind! I know its so hard not to worry though! 

    Do you have any idea how big your neck lump is? Mine is deep so im unsure. My doctor referred me to hematology under a red flag 2 week wait, but they downgraded it to urgent which is an 8 week wait. But they are understaffed and still hasnt been able to give me an appt yet! 

  • I know you’re right! Trying to think positively!

    I’m not sure how big it is, it feels quite big to touch though and is also really tender. 8 week wait that’s annoying that you’re having to wait that long :( hopefully you get one soon! I’m not sure when I’ll be able to get an appointment either! 

  • It's good the symptoms you had went away, the sweats, chills etc. Do you still have the itching? Also, your lump being tender is another good sign. Hopefully you arent waiting too long to be seen! Im hoping I get a call next week about an appt, if not I'm going back to my doctor!

Reply Children
  • Hey sorry I’ve not been on this! 

    Yeah i am still getting very itchy, mainly my arms and legs now, it’s not constant but it comes and goes and I’ve never really been itchy before so it’s very unusual. Yeah I read that the lumps being tender are a good sign.. I had two swollen lymph nodes on my neck and now the smaller one has actually gotten bigger and is really quite painful. I’m still extremely tired as well, putting that down to not eating as much as I should be hopefully. Have another doctors appointment tomorrow as a check up so I will let her know about all this again, still not heard from the clinic!

    How are you getting on? Did you get a call? Are you still having all the same symptoms?