Pineal Lesion

I’m really struggling to keep it together after an MRI on my 13 year old son has shown a pineal lesion. I took him to the GP because of ongoing headaches with no other symptoms. He was sent for a hospital appointment and the paediatrician was almost sure it was anxiety related but recommended the MRI ‘just in case’. She was reassuring in as much as she says she can see ‘nothing sinister’ but he has to have contrast dye and also a spinal this time around in London,

I am torn between relief at having found something small and early on and sheer terror at what it could be. Does anyone have any advice or experience in this particular area? 

Apparently pineal tumours are very rare. 

Thanks in advance - feeling sick.

  • Welcome to the forum Tracy although I'm sorry for the reason you've joined us.

    I can't begin to imagine how stressful this time must be for you at the moment but I just wanted you to know that you are not alone. Many of our members have gone through similar situations with their children so will understand what you're going through at the moment and will hopefully be along soon to offer their support and advice. 

    We have some information on our website about pineal tumours if you'd like to find out more and our cancer nurses are available by phone if you'd like to have a chat with them about this as well. They can be contacted on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Wishing your son all the best with his tests in London when the time comes.

    Best wishes to you both,

    Steph, Cancer Chat Moderator