Positive FIT test has led to an urgent referral. Terrified

I am 32 and have suffered from IBS for a number of years. In the last year, since having my daughter, my symptoms have become much worse. I had blood tests last month and did the FIT test. On Friday the GP rang me as my test had come back with an abnormal result. He said they needed to make an urgent referral for a colonoscopy as they were looking for more sinister causes for the blood such as cancer. I'm so worried that I have bowel cancer. I have had a change in bowel habits in the last month and I've googled too much and scared myself. My family are very positive and are trying to make me think positively but I am just so scared. 

  • Hi Nat

    I’m glad to hear you’re getting a CT scan. I know how anxious you must be. You’re in the system now though and that’s positive. 

    Btw, Ithink the scores go up to 1000 so 258 is deffinately a long way from the top.

    It’s difficult not to google...but from what Google says it could be anything, there’s like loads of things it could be from something as simple as piles and they all have similar if not exact symptoms. It’s crazy!

    You are having the CT scan on the 16th but I wondered why you need meds to clear you out for a CT scan or are the meds for when you get called for the colonoscopy. 

    Have you got help/partner to look after the kids. They’re only letting the patient in, no one is allowed to accompany for out patient appointments at my local hospital.

    Where have you had pain. Was it all over pain in your tummy from bloating or sharp pains in a specific area. 

    xx

     

     

     

  • I have also been calling my doctor regarding my sigmoidoscopy as I have blood in stool. They apparently can not risk having people in for a camera and then they get Covid, so I’ve been put on hold. I was offered a ct scan, but I don’t want that done, I would rather sigmoidoscopy as that sees more.

  • Hi ya,

    You also need to be cleared out for the colonography so they can get a clear picture.... but researching again im upset and scared as it says a ct colonography can miss things and if there is something wrong its another horrific waiting game.

    As I have 3 kids its causing me to feel angry and let down by the NHS while others are clapping they do not realise that people with potentially life threatening diseases and being told 'sorry you just have to wait' no compassion or reassurance

    Im single mum and was in a really happy place until this.... now I cant focus at all. I have an amazing support network but i feel alone.

     

    Reading about positive fit tests all state a high fit test only point towards cancer

    Fecal Immunochemical Test (FIT): common questions

    What is a FIT?

    FIT (Fecal Immunochemical Test) is a stool test used to look for possible signs of colorectal cancer. This test is able to look for a specific type of blood in your stool which helps identify if you have any polyps (pre-cancerous growths) in your colon.

     

    Sorry to be so down its just crazy how something in a short space of time can turn life upside down. 

  • Hi Nat

    I have read what you posted and you have to read the words again especially the word “PRE”- ........PRE-cancerous and you just have to hold onto that thought the best you can. I know it’s *** and scary. I have kids. I know where you’re coming from. I’m on my own too. It sucks but you’ll go under mentally if you don’t hold on to the positive thoughts.x

    I believe your CT scan is today and I hope it’s gone well for you. I have read about CT scans and I think the PET CT scan (combined) is a good scan and pretty accurate at picking anything up. I don’t know which you’ve had or how soon people have had results back but hopefully they will be back soon and okay. You just have to hold on to that thought. 

    I hope once you have had your scan, you will be in the system and get a colonoscopy soon too but that’s something I just pray everyday will happen for everyone out there. 

    Let me know how it goes hun.

    xx

  • hi

    ...could you not have the CT scan and then a sigmoidoscopy when they start doing them again.x

  • Hi

    i have just been phoned by gp to say had positive fit test and also low iron stores , so scared , hoping they are still doing urgent cancer pathway !!!  This is just the worst time isn't it 

    claire xx

  • Hi [@Claireg73]‍  please let me know if they give you an appointment, my situation is just not being taken seriously! I have to wait till all this pandemic is over to get an appointment, I don’t understand why. 

  • [@Kadash]‍ ‍ The consultant said he would advice me not to have it :( 

    i am honestly becoming increasingly worried about this blood. There’s spots of blood on stool.

  • Hi

    they are doing telephone consultation with me on Wednesday .  I will happily take a CT , just want something doing . X

  • Hey I to had a telephone consultantation where there consultant said I would have to wait till this pandemic is over and he doesn’t know how long that would be. Do let me know what they say to you. Thank you x 

    Also can you see visible blood in your stool, what are your symptoms if you don’t mind me asking?