My colonoscopy experience. Female, 46

Hi there,

I just wanted to add my very positive experience of my colonoscopy on the NHS that I had yesterday. I know people experience these procedures differently, for many reasons, but there are a lot of scary stories out there, believe me, I read them! and I wanted to add mine just in case it helps anyone allay their fears, because mine was a good one.

I was petrified to the point it was all I thought about. The fear consumed me, and on many occassions I visualised myself cancelling or not actually turning up, even though I was referred on the 2 week programme due to a change in bowel habits.I’m a worrier when it comes to the unknown and this indeed was just another of those experiences. 

I took movi prep. It didn’t taste nice, but was very do-able. I wasn’t bothered about the taste and had convinced myself I’d take it everyday rather than go through the next day’s procedure. My advice, however horrid it is, take good sized gulps and follow with small sips of water. It gets it down quickly which I think is key to not being on the loo too long. I took the first litre in just over an hour and within 40 mins I was on the toilet and it just pours out (sorry to be graphic). No tummy pain, no soreness. I did use Vaseline in between visits, but only as I’d read it was a good idea. It worked - no soreness whatsoever! I only spent about an hour going to the loo. Then I had a two hour break. Next litre was more difficult because the taste isn’t nice, but again I chugged it and managed not to be sick. Again was on the loo shortly after and only for about an hour. Then the prep was behind (excuse the pun) me.

I had an unsettled night, nothing to do with the toilet as I didn’t need to go, just the worry. I had a panic at 3am as I’d missed the chance to have a final full glass of water. It was sips only for me from 2am to 6am. My appointment was 8am. 

I followed my husband into the car like a lamb to the slaughter at around 7.15am I felt really pathetic and I looked it, lol.

Everyone was lovely. I checked in, contemplated running out of the building, then waited to see a nurse. She took my vitals and gave me the shorts and gown. They are really comfy! They’d be great for chilling out at home lol. I then waited a little more and a nurse came to take me to the room! I said goodbye to my hubby and shed a few tears as I followed the nurse, wearing my huge gown and socks and pulling the little trolly they’d given me to put my belongings into.

i got into the room and from then on it was a breeze. I explained my fear and said I wanted pain relief, probably sedation but I was worried about being out of control and not being able to ask them to stop. He easily popped a cannula in my hand, I’m fine with needles, then I laid on my left side. I scrambled for the nurse’s hand and she held it the whole time, but I would have been fine in hindsight without it. I had a low dose sedation 2mg of Midazolam and an average dose of painkiller 5ug fentanyl. He said he could top them up if I needed. I didn’t. I didn’t need the gas and air either although he said I could. It was FINE. I didn’t feel any pain. A little discomfort around 2 bends. Apparently there were 4 bends, but I only felt pressure twice. I could talk through it. Very pleasantly surprised! I’ve had worse smear tests. It all seemed to happen so quickly. I was in there 25 mins but it felt like 10 -  maybe that was the sedation I certainly didn’t feel sedated. I felt in control and well looked after the whole time. I laid on my back at one point and back on side again for the end. It was done! I couldn’t believe it!

Waited in a little ward for 40 mins but only as I’d had a little sedation. I sat up and just waited and had a glass of water. Chatted to the nurse. Then I got dressed, met my husband in another room where I had a mug of tea and two packets of those little biscuits. Then went into a room where a nurse told me it went well. They’d taken 2 biopsies apparently and I’ll get results in 4-6 weeks. 

Could I do it again if it was like that? YES without hesitation.

I might have to have a gasostrophy in the near future, but I hope I would go into that with less fear now after such a positive colonoscopy. 

Good luck and remember by far most of these procedures go smoothly. Not all, but the majority do. There are drugs if you need them and they would stop before carrying on if you needed them to (I didn’t need him to stop at any point but I did check that with him first ).

 

 

  • Hi MrsCa and welcome to the forum.

    I just finished reading about your colonoscopy experience and wanted to let you know how pleased I am that it went so well. 

    As you said at the beginning, not everyone has the best experience when having this done but I'm sure our members who come across your post will feel a bit more at ease if they are waiting to have this done so thank you for sharing this with us :)

    Kind regards, 

    Steph, Cancer Chat Moderator

  • I am so glad your colonoscopy went so well.  I have had four colonoscopies and due to my tortuous colon, I was not so lucky with the last two.  I was not informed that I could ask for more sedation or pain relief if so desired.  Also, I didn't realise and was (still) not Informed that at age over 70, the dosage of both would be lessened. Would they, (I ask myself) put you out completely in that case if you are in pain or distress?  

  • This is so reassuring to hear I have a colonoscopy in a few days after 18 months of worrying symptoms I'm terrified of what they may find but your post is extremely comforting for me that the procedure itself won't be too bad. Thanks for sharing x

  • I had my colonoscopy yesterday, and I was very much assisted by many of the posts on here - thank you so much - which gave me information and courage beforehand, so I thought I would share my own very positive experience in the hope that others might be similarly encouraged.   I appreciate that everyone’s experience is different, but maybe something here will help.

     

    I’m a 61 year old male, and had undergone the procedure twice before, both times without sedation, and found it painful, though tolerable.  This time  I was asked to eat a low fibre diet for five days beforehand, and take two sennakot tablets each evening for five evenings, not including the last one.    I rather enjoyed it: normally I eat lots of “healthy” food with lots of fibre, so this was a bit like eating childhood comfort food - cheese on white toast, ice cream, yum.    And given the stress this all caused, comfort food was rather what I needed.

     

    Two days before I was asked to reduce my meals to one third size, and on the day of my procedure (which was in then evening) I chose not to eat anything.  Didn’t fell like it anyway.

     

    One litre of moviprep the evening before,  one the next morning.    I picked up the tip of making the moviprep up an hour before and putting it in the fridge on this forum, and that really made a difference.   Honestly it wasn’t that bad.   In fact, it was almost nice.   A bit cloying, but that was all.   I’d read about people gagging, but this really wasn’t that bad.  Maybe they've improved the preparation.    Sprite goes down nicely with it.

     

    I started to produce liquid diarrhoea about an hour after the first litre, which continued almost right up to the procedure.   Having read other posts here I was prepared for a Niagara Falls experience with soreness and pain and had a giant vat of sudocream ready, but there really wasn’t that much coming out, Niagara Falls were off, and I’m now the proud owner of a large tub of unused sudocream.   Maybe eating so little over the last two days mean there wasn’t much to come out?   By the end it was kind of like producing cloudy yellow wee from my bottom.

     

    I’m the ultimate wimp and although I’d tolerated the procedure before, without sedation, I was keen to try sedation this time.   I feared I might have to fight for it, but the nice nurse offered it and more or less recommended it.  Then I was taken in to a room and asked to lie on a bed whilst a cannula was fitted.   I thought this was just for the sedative and there would now be a wait for the sedative to take effect but, no, this was the whole thing, and as soon as the cannula was in, off we went.   The same very nice doctor fitted the cannula and did the procedure.   I could watch on a screen, it looked a bit like the tunnels in the film Alien.   `No monsters though.   The nice doctor asked me what I did for a living, I told her I work as a mediator, and we chatted a bit about mediating inheritance disputes.   There were a couple of sharp but tolerable pains, over in seconds, and I was just expounding my views on inheritance law when the procedure was finished!    Off to recovery and that delicious tea and biscuit!

     

    I asked how long the colonoscopy took and was told 24 minutes.   I’ve replayed the conversation I had with the nice doctor and it can’t have been longer than five to ten minutes, so I’m guessing I must have slept through some of the procedure.   The nice doctor had said I might talk to her or sleep.

     

    I think everyone is different and has a different experience.    This was - by far - the best of my three.    So if you’re having one, there’s no guarantees but maybe you’ll be lucky!  I think thing things I did that may have helped me:  

     

    1.    The five day low fibre diet may have helped?   I was asked to take it by my hospital - I don’t know whether everyone should do it or not.

     

    2.    Eating one third size meals the day before, nothing after 5.00pm, and nothing on the day may have meant that the diarrhoea wasn’t so bad as there wasn’t much to come out?

     

    3.    Moviprep made up an hour earlier and put in the fridge definitely a good idea.

     

    4.    If I do this again, I’m definitely having sedation.   It’s now the day after and I can’t say I’ve felt any ill effects from the sedation, though I am still getting stomach cramps, which presumably will continue for a while.   But as I was so very fortunate as to receive the all clear, I’m not worried about those.

     

    If you’re about to undergo the procedure, good luck, and I hope you have a similar experience.

  • Hi 

    I'm having a colonoscopy on Wednesday so been doing the beige diet since Friday with senokot each evening! Movi prep from tomorrow night! 
    I'm so scared of it all and especially of what they will find! 
    your post did make me smile I have wanted to cancel so many times and even picked up the phone today to do it ‍♀️ But thought I better go through with it as blood was detected and a high calprotectin,  I also have grandchildren I want to see grow up! 
    but I'm still scared I know some that have had it and one was in a lot of pain! The rest all say the bowel prep is the worst!
    Thank you for your insight into it as it's settled me a bit! x 

  • Thank you for this I'm having mine on Wednesday and really worried about it all! Especially as what they may find, I don't a low fibre diet for 5 days with senokot I've not really eaten a lot as I'm so worried so lost 6lb I'm pleased with that lol! 
    movi prep tomorrow night then another on wed morning my appointment is at 1.30! I can't sleep I'm of work as I work in healthcare and can't concentrate lol I'm a mess! 
    but thank you for your story it did help x

  • Hi, thank you for posting this.  I have mine in two days' time and was really worried after a friend told me her experience was not a good one.  Hopefully, mine will run smoothly as yours did.  

  • Hi I'm having a colonoscopy soon and was wondering how yours went ...hope your OK...I'm the same as you are I can't stop thinking about it  all xx

  • Hi 

    don't worry it was much better than I expected, the worst bit was the prep drinking all that, the colonoscopy it's self was quick.

     I opted for sedation and gas and air all of it lol and once it was in it was a little uncomfortable at one point but other wise fine, they were lovely I couldn't t believe they had finished and was so surprised at how quick it was, she told me results straight away, wheeled me through to recovery laid there for about 10 mins, then got dressed went through to another waiting area had a cup of tea and a biscuit, some obs done, a nurse explained any findings (diverticulitis was found) then discharged and joined my husband waiting,

    if your in England you have to have somebody with you if you opt for sedation if your alone they won't give it to you.

    so don't worry at all, like I said the prep is the worst bit, just stay near a toilet and have some sudocrem ready lol , you will be fine, hope it all goes ok for you good luck xx

  • Going on Thursday for colonoscopy and I am genuinely terrified. I've been through breast cancer which was pretty awful but this procedure just seems so invasive. I'm not looking forward to taking the medicine or the bathroom visits, but the thought of the actual procedure is making me feel unwell, which is presumably normal. I know you shouldn't worry until afterwards, as getting results should be the time to worry. Are results given on the day?

    Everyone's posts are great and so reassuring...thank you.