Raised CA125

Hi I’m new to all this I have just been to the doctor and I have raised ca125 levels I have had a scan and been to the gynaecologist and he says that everything is clear could this mean that I could still get it or can it be related to something else. Sorry if I’m wasting anyone’s time I’m just really concerned why my levels are raised thank you 

Parents
  • Hi, 

    I’m not sure how much advice I can give, but I’m in the same situation. I’ve had three ca125 tests now and each time they’ve increased 37 then 43 now 51. My scab was clear too and now I’m waiting on next steps but my gynae has referred me back to the gp for next steps. It’s very frustrating, I would say call them and ask for next steps as you’re unhappy with no answer for your raised levels. 

  • Hi 

    my levels are at 147 and I phoned the doctors and they said they are happy with all my scans and tests and are planning to retest in a few months. 

    they said I shouldn’t worry about it but I can’t help but worry that it may turn in to cancer 

    have they said what will be happening with your raised levels x

  • I'm in the same kind of situation, but with me I was having bowel flair ups and I have pain on my left hand side, so the DR thought she should check my CA125 levels in case it was my ovary. My results came back raised at 45, and I was so scared waiting for my ultrasound expecting the worst and my ultrasound was clear. My smear was taken around same time too, which was normal. They decided to retest me, and it's 41, lower but still raised. They think it's more to do with my gut now, but I worry that the high CA125 could be related to another type of cancer like bowel cancer. I'm having colonoscopy and endoscopy this Wed, as I've had bleeding in stool since april and suffering with right sided pain around rib and around right side of belly button, and indigestion and flair ups etc. I know it's good I'm getting them done but I worry so much, esp with my CA125 bring raised also. 

  • Hi I have just been reading this thread, I just posted before I saw this, I have been having vaginal bleeding post menopause and am on the two week referral for scan. The interesting thing is nica00 saying possible bowel, I went through the colonoscopy endoscopy rout last year after changes in bowel habits and positive for blood in the stool, all tests came back normal thankfully, however my inflamatory markers and liver fucntion are very high. I had a big bowel bleed this week which initially confused me with the vaginal bleed but after i worked out what was what it might be that the vaginal blood was released whilst passing a stool (sorry tmi) nica00 are they scanning your gall bladder?

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  • Hi I have just been reading this thread, I just posted before I saw this, I have been having vaginal bleeding post menopause and am on the two week referral for scan. The interesting thing is nica00 saying possible bowel, I went through the colonoscopy endoscopy rout last year after changes in bowel habits and positive for blood in the stool, all tests came back normal thankfully, however my inflamatory markers and liver fucntion are very high. I had a big bowel bleed this week which initially confused me with the vaginal bleed but after i worked out what was what it might be that the vaginal blood was released whilst passing a stool (sorry tmi) nica00 are they scanning your gall bladder?

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