Advice on ultrasound for lymphoma

Hi, thanks for reading. I went for a guided biopsy for lymphoma yesterday following a short stay in hospital. I have a small swollen node in my neck, which I've had for a few months, an achey pain in my chest and around my back (similar to a pulled muscle pain) elevated liver enzymes, low grade fever for 4 weeks and hot flushes at night. I've felt absolutely exhausted/extreme tiredness the best part of a year.

A doctor at the hospital has told me it is possible I have lymphoma.

During the guided ultrasound yesterday, the radiologist told me that the node looks perfectly normal and that she wouldn't do the biopsy.

I'm waiting for a call from the doctor advising me what happens next. Obviously I'm pleased she felt that node wasn't suspicious, and I'm not looking for a diagnosis with this post, however I can't shake off the feeling something is wrong.

Has anything happened to anyone similar? Did you have a prolonged fever when you were diagnosed with lymphoma, or an ultrasound that looked ok?

FYI glandular fever, which they had hoped it was has been ruled out.

Thanks for reading x

Parents
  • Hi, I've just read your post and I can completely understand how you feel, I have swollen lymph nodes in my groin on left, they have been swollen for over 8 months now I've had many ultrasounds and was told it was reactive lymph node at first, but when I asked what its reacting to they said an infection. Yet I dont have an infection!!! .... I then got referred to hematology and because the lymph node is slowly getting bigger and now more on the right side of my groin they have referred me to have a US GUIDED BIOPSY! ... went there today and basically got told it wasn't anything to worry about and they just stay swollen. I wasn't happy as its taken sooooo long to get a biopsy and the radiologist said he wont do a biopsy because he doesn't think there's anything to worry about. 

    All my bloods are fine!

    Im so upset and heart broken.

     

    I've been so ill, Being sick, Sweating at night. Head aches. Loosing so much weight! 

     

    Im so sorry no one seems to help but I do understand how you feel. 

     

    Sammy x

Reply
  • Hi, I've just read your post and I can completely understand how you feel, I have swollen lymph nodes in my groin on left, they have been swollen for over 8 months now I've had many ultrasounds and was told it was reactive lymph node at first, but when I asked what its reacting to they said an infection. Yet I dont have an infection!!! .... I then got referred to hematology and because the lymph node is slowly getting bigger and now more on the right side of my groin they have referred me to have a US GUIDED BIOPSY! ... went there today and basically got told it wasn't anything to worry about and they just stay swollen. I wasn't happy as its taken sooooo long to get a biopsy and the radiologist said he wont do a biopsy because he doesn't think there's anything to worry about. 

    All my bloods are fine!

    Im so upset and heart broken.

     

    I've been so ill, Being sick, Sweating at night. Head aches. Loosing so much weight! 

     

    Im so sorry no one seems to help but I do understand how you feel. 

     

    Sammy x

Children
  • Hi Sammy,

    I know your post is from a couple of months ago so was wondering if you have had a diagnosis or ang answers yet?

    I started about 8 weeks ago with itching all over my head, face, neck, back & arms, a fever on and off, night sweats & pain across my collarbone & shoulders & extreme fatigue. Some days it's all I can do to drag myself out of bed. A couple of weeks later a lump appeared on the front of my neck. My GP has been brilliant & referred me to the 2 week wait. I saw a specialist in ENT and he said the lump was to do with my voice box (I have no sore throat or hoarse voice), he then referred me for an ultrasound which I had on Tuesday. That doctor said part of my thyroid is swollen but it's nothing to worry about. I spoke to my GP again yesterday & she's not convinced so has referred me urgently to the Haemotologist & I have an appointment on Monday.

    My GP also said on my last blood tests my kidney function was low & my white blood cell count abnormal.

    None of the symptoms have gone away.

    Like you I am scared & worried sick to the point I can't sleep at night, I don't think I've had a full nights sleep in 3 mths. 2 to 3 hrs a night is my average 

    Hope to hear back from you.

    Lyn xx