Worried about bowel cancer

Hi there.

I previously posted on the forum, as I was having regular flair ups since late last year every couple of months. My diet wasn't great, however I never had problems until last year. The flair ups would start with bad indigestion, constipation but wanting to empty bowels, then going to toilet a few times until the indigestion went. It would then be like a release and I felt better once I was sick, and had got the stools out. I felt sick, bit shivery and weak, and at the end it would turn into diarreah. These flair ups would last a day at atime, but the last flair up was around 4 days long and really bad in May time. Generally after the flair ups I'd go back to normal, but since the last flair up I have been pretty bad. I've had a sharp pain on the right side above my navel, and sharp pains on the right abdomen, it started like a nigglling pain but they're so much worse now, it's really sharp at times and more dull at other times. I've also been having terrible acid refluxindigestion last couple of months, andwith a sore tummy when I need to emply bowels, it'susually in the morning time.last couple of months, so I'm on Lansoprazole for that but last week I'm getting it much worse. It seems to be worse, in the morning when I need to go toilet but then I go, the indigestion and tummy gradually gets a bit better. I already have IBS, had it for a few yearsbut never expreinced this. It'shorrible when it comes on. The sharp pains are worrting me too, I only get them on the right handside and it's so sharp and noticable, I can't get on with my day without feeling them. It starts on bottom right hand side of navel, and goes all up my right abdomen, to under my breast bone. It's so hard to explain, and no one I've seen has these types of symptoms. I've also since april, been getting the smallest bit of blood in stool on approx, 5 occasions. It's barely noticble but I have been looking. The first time was in April, and I was so scared - it was like a maroon red color, but so small. Last time Inoticed was about a week ago, and again was tiny. I had bloods done a couple of months ago, and my CA125 was raised to 45, so I went for ultrasound and all came back normal, so I was so happy about that. Had another blood done a couple of weeks after and it went down to 41, so it's still over the threshold but the Dr is not concerned nowin that area. Idid have high placelets on my first FBC test -after my last flair up, but then they went back down to normal, so they weren't worried in the end aboutthat either. The Dr is saying it's now my gut/stomach so I'm having endescopy/colonoscopy 11th Sept. I feel like I've been waiting for so long to get to this point. I just want to know if anyone else had experienced what I've expereinced, or even a little of it. Or if any one has any ideas of what it could be? I find it so hard to explain my symptoms but it's affecting my daily life. I've changed al my diet, and I've eaten healthy for last three months. I am overweight, so it's good to lose the weight but I even worry that I'm losing weight quickly, even though my diets so much healthier now than it was. I don't eat fatty foods, drink alchohol etc.

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  • just bumping the post as not sure if this post has been seen. I’d really appreciate if someone could share thoughts :)

  • Hi Nica00

    I'm sorry to hear about the health issues that you've been dealing with since the end of last year. I can see from this, and previous posts, that you've been feeling anxious about what the cause of this all may be. 

    It's reassuring that all your ultrasound and all bloods have all been normal apart from your slightly raised CA125. Your GP sounds as if they're taking your concerns seriously by referring you for an endoscopy/colonoscopy. I know that it feels like this has all taken such a long time but your appointment is now only 2 weeks away and hopefully it will shed some light on things. 

    You mention that you find it difficult to explain your symptoms. Prehaps you might find it easier to write down how things affect your daily life so that you're able to show this to your Dr at your appointment. 

    I hope that things start to improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • thanks so much for your reply. You may not know the answer to this, but from your experience from this forum have you ever seen a link with people with higher CA125 and vowel problems or is it only gynocoligical problems? It seems odd that the CA125 is raised twice but my pelvis area is fine. And also if higher placelets for short anount of time is an indicator of inflammatory bowel conditions 

  • Hi Nica00, 

    CA125 results can rise for many reasons including endometriosis, menstruation, ovarian cysts, and sometimes ovarian cancer. This is one reason why it cannot accurately be used as a screening test for ovarian cancer. 

    If you'd like to speak to someone then you could give our team of nurses a call on 0808 800 4040. They're available Monday to friday 9am to 5pm.

    Best wishes, 
    Jenn
    Cancer Chat moderator