Advice please re: potential Lymphoma?

Hi all,

Just joined as kinda getting to the end of my tether and need some advice. 

I've been feeling rubbish for a few years, and over the past 12 months lost around 17kg unintentionally, alongside massive loss of apetite. 10 months ago had lumps in my neck which I said was all in my head and just my anxiety. Eventually enough people commented on the weight loss and looking drained, and my boyfriend demanded I went to the GP. They kept an eye on me over a few months but seemed to not worry about this, with other symptoms that began creeping up like profuse night sweating, itching like mad and weird chest pains. Had bloods taken for quite a few things and all came back clear.

Saw a student AP 2 months ago, incredible. The most caring, attentive and supportive practioner I've had. She saw me twice more as was a little concerned, before phoning me up 2 weeks ago post-appointment. She said she had discussed further with a senior GP who was concerned and wanted me to see him with her, so called in on the Monday (that was the Friday).

Both agreed at the appointment that they were concerned. She had previously discussed maybing referring me for neck USS to check the lumps so this was what I was expecting, but the GP said he needed to do an urgent referral to Haematology Oncology. Okay didn't panic too bad. Went back to work straight after and two hours after the GP appointment the H.O centre called to say they wanted to see me next week. 

 

I've had the appointment with a Lymphoma Consultant. She said she wasn't as concerned as she was expecting to be based on the GP referral, but the nodes were still a concern and she was most worried with the weight loss and sweating/itching. So after that I had lots of bloods taken (but not really sure what or what for, but had 7 tubes taken). Then went for a chest x-ray (again, anyone know what this is checking in particular?). She had said I will have a PET-CT scan in 2-3 weeks and see her in 4 weeks for results and discussion. 

I'm a Nurse so I can't stop my self thinking about all the different possibilities and what each test is really looking for/what they'll actually be looking at. I've also worked in said centre on the 4 wards so it's just difficult being on the other side of it. 

I just needed to get this out I guess, so apologies for the long-winded message. I think I'm really asking if I should actually be worried. Or like, do I have the right to be worried and panic or am I just being silly? I can't figure out which way the Consultant is swinging with this. I.e. does she think it's likely and these tests are to confirm her thoughts, are does she think it's unlikely and just wants to rule it out? I know that's both the same answer but I can't help but freak out currently because I can't gauge where she's going with this. I've also been allocated a Young Adult Specialist Nurse and again is that just normal process or is she expecting something. 

Anyway, thanks for the time and hope everyone is well. 

Kiwi x

  • Hi Kiwimonkey,

    Welcome to Cancer Chat. I'm sorry to read about how you've been feeling recently and what you've been going through. I understand it must be difficult and especially so as you're used to being on the other side of it, as you say.

    The main thing I would say is to try not to second-guess any reasons for any tests or any thoughts the doctors may be having. Any tests and measures they're doing are to be sure in their knowledge so try not to worry about any of the processes - it is best that you find out everything you need to know, once the results come in.

    Whenever there is uncertainty like this, and a period of waiting, it is unsettling and so of course natural to be worried. I can only suggest keeping yourself busy and distracted until you find out your results - and make sure at the appointment you ask everything you want to ask. You could write any questions down beforehand and also make notes at the appointment.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator