Testing for Ovarian cancer, 23 years old

I've been struggling with severe symptoms which initially my doctor and I believed were IBS (massive bloating, abdominal pain, unpleasant bowel activity...). After trying some eliminations in my diet (I don't eat dairy anyway but we also tried gluten) we haven't seen any improvement - it's actually got a lot worse, esp. the severe bloating. So I went back to the GP today, and she said that it sounds more like IBD, and that we need to do some tests to find the cause, which could be Crohn's, colitis or coeliac disease. Also, and even more worryingly, she said my symptoms are very synonymous with ovarian cancer, and that although I'm only 23, it's going to be really important to test for that. I've been in shock since my appointment, and very upset - couldn't go back to work today. I was told I can't do the blood tests for cancer & the other stuff yet, first because I need to eat gluten again for a bit for that test to work. I also read that it's not good to do the ovarian cancer blood test while menstruating because it alters the results, and so I need to wait for my period to end before taking the test.

Basically, I'm finding it very hard to cope with all of this. I'm not sure how I'm supposed to get on with life as usual. I've always been super susceptible to falling apart with health scares. Looking for advice about whether I should push to take the test earlier (I could even go to the hospital tomorrow, in theory), or if I should wait and just deal with it. Also, advice from any younger people facing the prospect of ovarian cancer

Parents
  • Hello,

     

    I'm a bit late to the party with my response, but I do hope everyhing has worked out well for you.

    Although ovarian cancer is highly unlikley to affect woman under 40, it does happen. I was 22 when diagnosed in late 1999. I had no symptoms apart from an inbetween bleed which I mentioned to a nurse during a contraceptive pill review at a local Family Planning Clinic. The nusre offered to perform a pelvic exam to 'put my mind at rest'. I agreed and was stunned when she said I needed an emergency ulrasound the following day as she believed I was approx 5-6 months pregnant. 

    The scan reveled a large ovarian cyst - 16 inches (the size and shape of a rugby ball!). I've always struggled with my weight so it was very well hidden under my extra pounds, I think I was a UK size 14 at the time. 

    I had the cyst removed along with my right ovary and fallopian tube via open surgery the following week. I'm now the proud owner of a large scar that runs from my navel to my pubic bone. 

    Much to the surprise of my consultant, the routine biopsy came back positive for cancer. I was told at the time of my diaognosis that I was the youngest person in the UK to have ovarian cancer. I was incredibly lucky, the cancer was contained inside the cyst, so when the cyst was removed, all of the cancer went with it - I didn't need chemo or radiotherpy but I was very, very closely monitored over the next 15 years. I was finally discharged from the care of my Gynae Professor aged 37.

    Kathy xx

Reply
  • Hello,

     

    I'm a bit late to the party with my response, but I do hope everyhing has worked out well for you.

    Although ovarian cancer is highly unlikley to affect woman under 40, it does happen. I was 22 when diagnosed in late 1999. I had no symptoms apart from an inbetween bleed which I mentioned to a nurse during a contraceptive pill review at a local Family Planning Clinic. The nusre offered to perform a pelvic exam to 'put my mind at rest'. I agreed and was stunned when she said I needed an emergency ulrasound the following day as she believed I was approx 5-6 months pregnant. 

    The scan reveled a large ovarian cyst - 16 inches (the size and shape of a rugby ball!). I've always struggled with my weight so it was very well hidden under my extra pounds, I think I was a UK size 14 at the time. 

    I had the cyst removed along with my right ovary and fallopian tube via open surgery the following week. I'm now the proud owner of a large scar that runs from my navel to my pubic bone. 

    Much to the surprise of my consultant, the routine biopsy came back positive for cancer. I was told at the time of my diaognosis that I was the youngest person in the UK to have ovarian cancer. I was incredibly lucky, the cancer was contained inside the cyst, so when the cyst was removed, all of the cancer went with it - I didn't need chemo or radiotherpy but I was very, very closely monitored over the next 15 years. I was finally discharged from the care of my Gynae Professor aged 37.

    Kathy xx

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