Do you have any other symtoms? I have fevers after doing little walking of 10 mins or housework of 39 sometimes 40 and when resting mostly 38 or 38.5. The only restbite i get is the mornings. My fever goes up throughout the day and seem to suffer in the night. I have excessive sweating due to the fevers. All my bloods are normal except slightly raised blood count and immflamatory markers were slightly raised not enough to indicate infection. Ive had urine cultures which negative. I feel tired constantly and i recently had a episode of chest pain which came on suddenly lasted about 10 mins. I have shooting pains in the neck and under arm on left side but no lumps tp be felt. I have had left sided flank pain since october thats where it all started. I had a week where i itched every where but after antihitamines i only itch on my neck all over now. No rash. Ive lost a dress size amd a half since october. Ive been by heamtology consultant who dismissed me because bloods were 'normal'. GP feels i am showing b symtoms of lymphoma. Hope it all gets sorted. I know this is scary but it could just be from the infection. It can stay in the system for a few weeks. Keep an eye on it. If you are getting ill more often and taking longer to get over the illness go to GP. 

I dont have any other symptoms apart from the fever. I supposidly had tonsillitis 2 weeks ago even though my throat wasnt sore at all! I think the glands in my neck are up too. Im travelling home from holiday today and hope to get in with the doctor tomorrow! Are you checking your temperature constantly? I cant help but check mine all the time! Do you always have a temp or does it sometimes be normal? Mine was normal for a few days and now its up again. I feel drained constantly and nausous. Its stopping me sleeping as I wake up every hour feeling hot and sweaty. You must be going crazy with worry too! Are you managing to hold it together? Im really struggling :(

Hi Marj58,

I am fascinated and heartened by reading your story about defying the odds........long may it continue!

I’m wondering what your initial symptoms were and how long before you were finally diagnosed?

My concern revolves around a chronic cough I’ve had for nearly two months coupled with a stiff neck and mild back pain........and chronic tinnitus since the end of April. I should get chest CT results some time next week, the X-ray a month ago showed some inflammation and atelectasis in the lower left lobe.

Sorry about the thread hijack by the way!

Dave

Hi Dave, no problem you didn’t hijack at all. My post is for anyone who wants to chat, ask question whatever they need to chat about. I didn’t actually have any symptoms or so I thought at the time. However looking back I know see that there were a few. Yet none led me to even think cancer. I was visiting a friend in Coventry at the time. She had mowed her lawn whilst I strimmed. Something flew into my mouth. We all have something called gag instincts. Where anything in the back of your throat makes you cough. I stated coughing, I coughed so much I brought some blood up. I was not concerned I just assumed I had nicked the back of my throat. I continued to cough up blood for almost 3 months. Now I paid another visit to my friend in Coventry. This night she needed to see a doctor, we visited the walk in center whilst I was there this coughing up blood I decided to see a doctor to the possibility of having a few stitches. Cutting a extremely long story short I ended up at hospital. The feast of the story is so long, and what happened that night was so bizarre I thought I had landed on Mars it somewhere. I will not tell you tonight. If anything I would prefer privet message. Only because something on this public forum you can’t say. So do not be surprised if the hospital name is removed. Eventually when I got home I visited my own GP for stitches. I know some people would think why did I not see someone before 3 months. I just used logic every time I coughed I kept opening up the cut. That’s the logical reason. When I went to my GP I was asked a lot of questions. He told me he was making me a fast track appointment at the lung clinic. At that time I thought it was a bit ridiculous to be fair I was still sure I had cut the back of my throat. Everything was done so quickly it wasn’t long before they told me I had lung cancer. I know this will seem strange to some people. I just said never mind s...t happens. I am sure they thought I was in denial but actually I wasn’t it’s just my way. I was asked to spend time with Macmillan. I said I was going after 10 mins I need to go shopping l. I really did get some strange looks. What I actually did was go get a coffee. I sat down and then I did my thinking. I looked back for anything obvious that might have been a indication. It was only then I perhaps had a few tell tail signs. On and off for over a year I woke up feeling a little unwell, as if I was running a temperature. Feeling shivery yet at no time did I have a temperature. Truthful I am definitely not trying to scare you. I did have on and off some pain in my neck which I put down to sleeping funny. It get coming and going. So I took a pillow away, no it kept happening is if I had cricked my neck. I had already had a couple of minor chest infections. That soon cleared up with antibiotics. The actual week leading up to me seeing a doctor, in fact it may have been a couple of weeks. I just kept getting up feeling a bit tired than normal. No one knew why for just over a year I was getting up feeling like I was running a temperature and slightly unwell. My bloods did show a increase of the white blood cells. As I am sure you know when they go up it’s a sign your fighting a infection of some type. Drs put it down to a virus. So a few weeks as I was saying prior to diagnosis I just assumed here we go again. Went shopping with my friend Zoe. Who I just happened to say a couple of days prior to going to the walk in centre. That this time this virus is taking its timr to go. It was the day after I had this bizarre experience in Coventry. For the first time ever I took myself to bed in the afternoon for a couple of hours. The cough I had. I thought was going to turn into a chest infection but it didn’t, just remained a cough. I also had lower back pain. That I had no concerns about. Years prior I had slipped and put a couple of discs out. They wanted me to stay in hospital for 10 weeks in traction. Which was a joke. With 3 young children and my husband at work I said no a chance. They said I would suffer on and off for the rest of my life.being honest I very rarely had problems with my back, in the 22 years I had put the dics out. I just remember the odd time where I perhaps turned wrong. Or lifted something really heavy without bending the knees. So again being at my friends her mattress on the spare bed wasn’t as firm as I was used too. So every little warning signs that where there. I had something to say it’s because of  so and so. That is if they actually where warning signs. I now actually believe a couple where. Like feeling I had a virus that didn’t really want to go, plus each time I had that feeling of a virus. It just seemed each time we’re taking longer to go. The neck pain. By removing pillows didn’t seem to ease it any. The cough that didn’t develop into a chest infection. When you put them altogether I still honest to god never considered cancer. Not once. Apart from the white blood cells bring high on a few occasions. Nothing absolutely none of them made me feel it was anything at all serious. You know what not even coughing up blood. I am not a unintelligent person. Yet logically what I said with a cough and bringing blood up, because it coincided with something hard flying into the back of the throat it would take its time to heal. Especially coughing would keep opening any healing that was happening. As it transpired what the coughing had done. When whatever I had flat into my throat I coughed so much I had burst a tumour in my lungs. I had a bigger one also with a couple of smaller ones. Now why I wasn’t coming up more blood than I was I do not know. Even my xrays saw something but the lung spealist didn’t think it was serious. I found out a couple of weeks later his main reason for sending me for a CT scan. Back in the May 5 months previously. One of my younger brothers came back if holiday and the day he came back. He ended up the the heart until at the same hospital. His organs was starting to close down. He had so much water around his heart, it was only quick thinking of the doctor on the heart unit even though my brother was awake the put drains in him without anything to help the pain they didn’t have time. They where draining of the fluid, then they put another drain into his lung his left lung was also filled with water again while my brother was awake. On further investigation as to why and what was going off. The doctor who sent me for a CT scan he diagnosed my bother with terminal cancer in 24 hours of going into hospital with everything closing down. That came as such a massive shock because no history of cancer ever been heard of in either side of the family. It was only when he asked me if their was any history of cancer. I told him what had happened that night back in May. It literally was pure luck I just mentioned it was at the heart unit at the very same hospital I was at. He asked me his name. Yes even with my brother having been diagnosed with cancer back in May it still never crossed my mind not at all. It transpired him that sent me for a CT was the same lung doctor that had to tell my brother he was terminal. I didn’t see him again when I got called in early to discuss my CT results. I saw a different doctor. It was her that told me I had cancer. Just needed a biops and PET scan to be 100% sure. Although she was 98% certain. Anyhow Dave I am keeping my fingers crossed for you. Now you do not have to accept it but I am going to send you a friend request. I am doing that because I want you to keep me informed of your results. Also if you need anything to say. Which you will need someone to talk too. At least you can swear steam whatever in a private message. Being truthful. With so much getting taken out of a public forum. Like names of hospitals, names of consultants, many other thing. Even things you want to say and do not mind telling one person but not the entire forum it’s all then done by private messages. I will be honest. I will not name names but a couple of us are sending private messages now. Ok. It’s up to you. All I will say is I am always here if you want to chat. Sometimes you may have to wait a couple of days if I am not feeling good though. Ok I can’t say more than that. Good luck and I am thinking of you. Please do let me know the results of your CT etc lots of love and best wishes 

 Marj xx

Thanks Marj.

That detailed story won’t just prove useful to me, but also many others that use this site wondering how serious  their symptoms could be. Hopefully, it will prompt people to get themselves checked out.

I’ve been under the weather all year since an operation on the 4th January and there has been one thing after another. But I seek solace in the clear chest X-ray in April such that anything sinister ‘might’ be less advanced if they find anything on the CT scan. Touch wood, I’ve not coughed up any blood so far. 

Keep soldiering on........here’s to another 6 years

Hi dave, how are you? Are you still getting raised temps? Have you had your ct scan yet? 

Marj, you really have been through so much. I hope you get through this rough patch and start to feel better soon. I will pray for you! 

My anxiety is quite bad today. I found a lump in my neck last night. It is quite hard and I cant tell how big it is as it goes deep into my neck. This has heightened my anxiety so much and deepened my fears that I have something serious wrong :( 

About the fevers, my friend was telling me to use an oral thermometer as an ear one isnt as reliable. Especially when I'm taking my temp in the middle of the night and lying on my ear. So last night I woke up hot and sweaty. The ear thermometer said my temp was 37.5. But the oral one said it was perfect at 37! So maybe I'm not throwing as many fevers as I think I am. Im gunna keep checking on the oral one now...

Hi Smoore921,

The usual pattern (groundhog day) continues unabated:

I awake in the morning with a back ache and stiff neck but breathing normally with slight rales on inhaling.

Get up and begin to cough when I shower.

Cough is mostly dry, but when I clear my throat it isn’t.

Cough subsides in the morning but returns around lunchtime and worsens until I lie down or slouch on the bed in the evening.

Daytime temperature feels raised (face and neck), but back pain eases.

Sweat a bit at night too, but not the past semi-drenching sweats when I wake up (which I had in April).

.......and repeat.

The CT scan was slick and the radiologist was very professional and informative. She said it’ll be 7 days or more before I’m contacted about an appointment to discuss the results.

There is something wrong with my lungs, but I am clinging on to the fact that there were no shadows or pleural effusion on my x-ray a month ago, I am not coughing blood and I have ‘form’ in that I have bronchiectasis, post nasal drip and a hiatus hernia. So the problem might not be immediately life threatening. I say ‘immediately’ as bronchiectasis can become serious if not managed and the silent reflux could cause lung or esophagus cancer in later life if not managed.

If your sweats aren’t drenching, you may just be fighting a virus. Lymphoma night sweats are supposedly quite distinctive.

Try to relax (says the bloke dreading scan results).

Cheers,

Dave

Hi Dave, sorry for the late reply but I try not to come on here as often as it makes me more anxious! Im still waiting to see hematology and still getting low grade fevers in my sleep. Just trying to get on with it as I wait to see a specialist!

Have you received your CT results yet? I hope you have got good news!

Hi,

Not received the results yet. Chased it up yesterday but the secretary dealing directly with my case is on leave until next week. However, a colleague of hers looked me up on the system and claimed a letter was drafted on the 9th August and ‘could’ be on it’s way in the post. She wasn’t allowed to read it out over the telephone to me, but said I would be referred on to a Chronic Cough Specialist and a bronchoscopy has not been requested. From that, I assume it’s not a clear-cut case and if it was an emergency, a bronchoscopy might well have been requested, but it’s all just guesswork really and I won’t count my chickens until I see the full letter.

Meanwhile, the cough is less severe but mucus production seems to be at an all time high.......sorry if you’re having your lunch whilst reading this!!

Cheers,

Dave

Received a brief letter today which stated that the CT result echoes that seem previously on the x-ray, I.e. mild bronchiectasis and basal atelectasis (probably resulting from recent respiratory infection). It also stated that blood test results weren’t yet complete but there were signs so far of Haemophilus influenzae, a type of bacteria that can cause many different kinds of infections including pneumonia. It recommends I have a vaccination.

I also received a text pointing me to a referral letter on the NHS on-line portal which stated that I have an appointment with a chronic cough specialist on 28th January 2020 (!)

Although I am obviously relieved that the CT scan seemingly hasn’t shown anything immediately life threatening such that a swift follow-up is not required, I am not going to suffer these symptoms all the way to January before I get a chance to address the problems, no way. Sorry if that sounds impatient!

So, tomorrow I will be calling the telephone number to try to bring the appointment forward.

Hope your fevers finally relent soon - try to stay positive if you can.

Hi Dave,

I'm glad they aren't overly concerned but I agree that January is a long wait!! I can only imagine how frustrating your symptoms and constant cough is! Let me know if you are able to bring it forward! 

Brought forward.........to December. Best they can offer.

They said to ring up every week to see if there’s been a cancellation. I’ve left a message on with the respiratory specialist’s secretary requesting a brief telephone consultation to explain my CT results to me in plain English!

Cheers,

Dave

Brought forward.........to December. Best they can offer.

They said to ring up every week to see if there’s been a cancellation. I’ve left a message on with the respiratory specialist’s secretary requesting a brief telephone consultation to explain my CT results to me in plain English!

Cheers,

Dave