IBS or bowel cancer?

I thought I made a post a few days ago but I cant find it? Anyway, starting again...

About 4 years ago I started to get a extended stomach, especially when eating (I still do to this day). I've gained around 7kg in weight in those 4 years. Other symptoms were acid reflux (although I don't get that now), constant change in stools ie.. One day soft, next day rock hard, next day all fluffy, next day piles, next day diahrea, then back hard again,..etc. so they keep alternating, I've also get (although not lately) bright red dots of blood on the paper. I went to the GP, had a fecal test, blood test and it all came back fine so they diagnosed me with IBS. They adivised im way too young (31 at the time im 35 now) to have bowel cancer despite my nan and grandad (mothers side) both dying with bowel cancer at age 62 and 72.

Anyway, fast forward a number of years and im getting more and more concerned by my condition.

In the last 5 days my bowel habbits are still the same, but the colour is very much different. I am now pooping very dark (hard to class it has black, possible very very very dark brown) which I've never done before. When its this dark, its relatively hard and in the form of piles. It will also be accompanied with softer stool which is a normal light brown in colour. So the contrast each time I have a bowel movement is quite unique.

My diet has remained the same and nothing has changed in the last 5 days, hence my concern.

Obviously the first port of call should be a GP. Unfortunately its virtually impossible to get an appointment with my surgery. They now demand you call in at 8am (I cant as I am busy at that time), and on the rare ocassion when I could call in at 8am, the lines are so busy, I once got through after 25 mins to be told no appointments available.

So, i'd very much appreciate as much info from here if possible.

  • Thanks Ineedabreak, you're right, a colonoscopy is the only way. I will put the request forward to ny GP as soon as i can get an appt with them.

    How are you coping now? I take it you're free from it now? 

  • Please do, it's the only way. Once you get the all clear you can forget it and the stress. If it is IBS this will probably improve with less stress too. Don't let them fob you off, insist.

     

    As far as I know, I'm ok thank you. My 10 month post op CT was fine. I have a colonoscopy in 2 weeks, I was due one in about a year but my consultant knows I worry so said if if would put my mind at rest he would do it soon. I only have about a third of my bowel left so shouldn't take long.

    It does mess with your head though, every little ache/pain causes major panic and a visit to my GP, usually turns out to be nothing but my new theory is..... whatever it is, get it checked out straight away. If it is something, best to find it early and if it's nothing you can forget it.

     

    Let me know how you go on.

  • Get a colonoscopy just to make sure.

    Early detection is the key if it is something else. No-one was more shocked than me with my diagnosis.

  • Hi I don't know if you are diagnosed with anything more than IBS but my partner was suffering from reflux, IBS and pain in his upper abdomen and always feeling full. We were going several times to the Hospital and he was offered a fundoplication operation to make a new valve into his stomach. Not keen on this he went private, Hallelujah the wonderful consultant ordered different scans and results were he had neurendocrine tumours in his small bowel. Five weeks ago he had most of his small bowel removed, has one metre left but is doing great. 
    apparently he had tumours growing for years.

    All the best 

    Marni

  • How did you get on with a scope?! Have your symptoms improved? 

  • Hi.  This is my first time of joining on here.  I've been battling with awful stomach complaints since August last year.  I've had diagnosis from 3 different docs 1 saying diverticulitis, another saying inflamaton of the bowel and another saying small intestinal baterial overgrowth!  On Saturday my partner had to rush to me A&E as I was in awful pain.  I saw a senior Doctor who basilly said I've got chronic IBS.  I'm 50 now and always been a healty person.  I'm literally unwell everyday and my symptoms change here and there.  The level of pain in the stomach varies from day to day and when I have major flare-ups I feel very hot and extremely nauseas.  From today I'm starting a food diary, because at the moment anything I eat makes me feel crap!  I've also lost a stone in weight because I can't eat much.  Is anyone else experiencing the same?  Sorry long message.  Any advice would be helpful x

     

  • Hi sorry to hear this. I have a similar issue. My conclusion is that a radical change of diet and lifestyle is required. Its not an easy thing to do but worth it for your health. Getting into 'Gut Health' is potentially life changing. So I reccomend:

    1. https://thegutstuff.com

    2. atlasbiomed.com/  

    3. Gogole 'gut helath' and 'functional medicine'

    3. Following various gut health experts/ nutritionists/ 'functional health' doctors on Instagram 

    Best of luck to you

  • Hi, did he have it diagnosed via endoscopy/colonoscopy? As I've had both done in January and nothing came up but I still get trace amount of blood in my stools and a lot of abdominal pain etc

  • Hi, he had diagnosed by by blood and urine tests and scans after going private as the local hospital told him it was IBS and after a few years getting worse and now being treated for reflux he was offered a fundoplication operation. No blood in stools but pain, wheezing, reflux and sensation of feeling full all the time also flushing so he went private and the consultant knew I am sure what was wrong and after scans and tests Neuroendocrine tumour was found. He has now had operation and left with 1 metre of small intestine but doing really well.

  • I am 35 this month and have just had half of my bowel removed due to stage 3 bowel cancer that has spread to my blood vessels and tried to reform twice within my bowel. I have been to the GP for 10 years + and been told everything from IBS to endeometiotis. To be fair my bowel symptoms would often get worse at the time of my period but it was so uncomfortable and I had told the GP so many times. I have put in an enquiry with a legal firm regarding a case for negligence as I just don't understand why I wasn't offered a endoscopy before now ! I was told my tumour could have been there 10 years !! It's so conflicting as the care from my new GP and since diagnosis has been amazing but I feel like I could have been diagnosed at stage one with an endoscopy and not been going through chemo when I have a baby to look after etc !