I'm not on anything at the moment.

I had surgery after the first time and surgery plus chemo after the second. As far as I know I am clear at the moment. Have colonoscopy in 2 days so will hopefully feel better after that.

So glad you are going in the right direction now and your tumor is shrinking. It's very hard isn't it the treatment but if it works it is all worth it.

Be strong and positive.

That’s fantastic that you’re all clear.

wishing you luck with the colonoscopy.

I need to get my liver mets small enough for surgery or ablation but I think I’ve still got a long way to go.

I’d give anything for my old normal life back 

take care 

Aaaaagh! This is never ending! 

So today I went for a sigmoidoscopy, it was an urgent referral.

They found a polyp which was 1.4 cm. The surgeon said it was benign but it's been sent off for testing. 

I asked if that was the reason for the bloody mucus,  she said she didn't think so, it's more likely from the internal piles they also found.

So today was a pointless exercise. I'm now back on the non urgent waiting list for colonoscopy because they found a polyp they have to check the whole colon.

I think it's made me even more worried. I still don't believe piles can cause bloody mucus like I have and I'm still very constipated. Even the enema I had today didn't really clear me out.

Off to see my go again on Monday. 

Hi

At least you have been told the polp was benign and you've got the ball rolling for having the colonoscopy. I had mine yesterday and he said it all looked ok but still he took a biopsy, so then your mind runs away and asks why the biopsy....

Good luck with your results and if they rule out the worst then they can treat whatever is causing your problem and you can stop worrying as much.

I know we always think the worst, it's a horrible scary feeling and leads to anxiety etc.

At least you have some reassurance! I’m still awaiting my colonoscopy but I’m so happy to hear it’s been clear so far! Please keep us updated

I’m glad to hear your colonoscopy was clear too, ineedabreak. 

Upthewall, that’s quite interesting you say that. I see mucus far more often than I see blood so I’m hoping that’s nothing sinister. All the best. 

Thanks everyone for your input. 

I'm now starting to wonder how the consultant who did my sigmoidoscopy knew the polyp was benign just by looking at it or whether she just said this because I was really anxious and was panicking when she saw it on the screen. It's quite a big polyp 1.4 cm and doctor Google says about 4 percent chance of cancer at that size. 

So I have test results for that to worry about first. Then trying to push for colonoscopy again, then worrying about what that's gonna find.

This has been going on for 3 months now and I think it is a bizarre way for the nhs to deal with it. I don't think my obvious anxiety has helped my cause because I think doc's are doing and saying things just to placate me. 

Strangely,  today my stools are back to normal, not constipated and don't appear to have blood or mucus. *** knows what's going on.

I just keep taking the diazepam the doc's gave me for health anxiety and trying to live day to day until someone for definite tells me what's going on.

I'm so tired and bored with it. I could have been referred months ago and would have known what I was dealing with by now. . 

Last year they knew straight away that my very large polyp was cancer as soon as they saw it during the colonoscopy. They know what they are looking for. The Dr's that do the test are usually colorectal surgeons. I was lucky yesterday to have mine done by the surgeon that actually did my bowel surgery, so in a was he was inspecting his work almost a year on from the inside!

Ok, so the polyp was not cancer. That's all I know, never actually saw the histology report.

Since I found this out a lot has happened to me. Not seen any more blood but constipated all the time now. 

Had my liver function bloods done again a month ago and ALP came down by 1 but all the rest went up, still in normal range but some had doubled. 

I also noticed that I was not passing urine as much as I used to and it was always dark. I figured this was due to the raised bilirubin on my liver bloods.

Two weeks ago I noticed my eyesight has changed its blurry with or without my glasses and I have a ringing in one ear with strange headaches. 

One morning I had what I thought was a seizure,  shaking, headache, breathless so I called an ambulance. They took me to hospital and said it was a panic attack. Whilst there I told doc's all my other symptoms. They think I'm nuts and a hypochondriac put me on to a psychiatrist and gave me some anti depressants. 

I was not having that and went back to my gp. They also think I'm a hypochondriac but I asked for my liver function bloods to be done again as it had been a month since the last time and I was certain that they would be through the roof, due to the dark urine and occasional dull ache under my right rib.

When I went for the bloods the nurse did my blood pressure and it was high, she told me to take a machine home and take readings the rest of the week, I had it checked last week at the hospital and it was fine.

Took readings the next morning and blood pressure was sky high! Hypertensive crisis. Rang 111, they said go to gp. So I did he took it again and it was lower but still high. He said stop taking it for while because it is putting me in a vicious circle with my anxiety.  He also told me my liver blood results, they had all come down, the ALP was still outside normal but was down by 27 from previous. 

I started to wonder if I am a hypochondriac but there are too many things now to be coincidence. 

The blood in stool, polyp found at sigmoidoscopy, raised liver enzymes, high blood pressure and the scariest thing is the blurred vision, headache and ringing in my ears,  which is getting worse, all symptoms of brain metastases. 

Today the hospital rang and I have my colonoscopy next Thursday. I am certain they will find cancer and that it has spread to my liver and brain.

I know what this sounds like from the outside. That I'm a nut who has self diagnosed with Google but the symptoms are real and there's medical evidence also with the polyp, etc.

You’re not a hypochondriac at all. I didn’t want to keep bothering drs even though I felt something was wrong for ages and this was a massive mistake.

You know your own body and are the best person to judge if something is wrong or not. I commend you for keeping pushing them to listen. I wish I had.

good luck for next Thursday, please keep us informed.

I think the waiting for all these scans and results are one of the worst parts in all this.