Hi everyone, I’m new here and wondered if anyone had been through something similar. Last June (2018) my Daughter (age 8) was referred to a Paediatrician for frequent infections, chronic fatigue abd tummy pain. Lots of tests later and although ANA positive with high IGM, she was blanket diagnosed with chronic fatigue syndrome following glandular fever she had age 5. Fast forward to last October (2018) she developed a lump in her neck. In December 2018 she had an ultrasound on it and we were told it was a harmless cyst. Back and forth to the GP we went as it steadily grew; kept being told it’s just a cyst. Now, 8 months later, following a routine Paediatrician appointment last Monday, we got an urgent referral to ENT and another ultrasound scan, that scan was last Thursday and we were told it’s not a cyst it’s a huge lymph node. I feel awful having watched this lump grow and grow thinking it’s just s cyst. The urgency in which we’ve been referred to ENT is great but worrying. We see ENT tomorrow. The Paediatrician said they will probably do a biopsy. I’ve looked up lymphoma and my Daughter fits the symptoms to a T. I’m so worried and feel I’ve got nowhere to turn? Any similar experiences? Her lump is 3cm X 2cm and sticking out of her neck at the back. Thank You.
