Scared it could be ovarian cancer.

Back history. 

In 2008 I had CIN3 cells which were treated with heated loop. I was having bleeding after sex for a long time before I got the courage to go to the gp as I was under the age limit for a smear. She (their specialist gynaecologist) has a look and she said all looks fine. No smear needed. So I fell pregnant with my 2nd child and during one of my check ups I asked the midwife to have a look at my cervix and see if it was ok. She said it was inflamed and they couldn’t do anything til after I had the baby. I went back after having her and pushed for a smear test which showed I had CIN3. The nurse said I was very lucky that I pushed for it and I should have been offered it sooner due to the nature of my symptoms. 

Since then I’ve been diagnosed with pcos, they looked like cauliflowers in the scan. 

Fast forward a couple of years, another child came, then I was having painful sex again shooting right up into my stomach and bleeding a lot afterward. Smear tests all negative so I was sent for an ultrasound which showed that my ovaries were fine, no more pcos. They were baffled by my pain still and said that I would need further tests but I’d have to go back to my gp. I then found out that week that I was pregnant again. So that ended the investigations. Sex was still painful and I’d still bleed but due to my daughter having issues with her tummy and never slept I never found time to have sex anyway so it wasn’t a recurring thing. I always have pain when I ovulate so I know that it’s happening. I just assume it’s another cyst. I had another child (5 if you’re counting lol) and now I’m still getting the pain during sex and bleeding. But my smears are fine so I’ve been put back to the three year testing. 

The past few months I’ve had a burning feeling in my pelvic area where I get my ovulation pains. The past few weeks I’ve had constant pain as if it’s ovulation and cramps like I’m on my period. I’ve also been bloated for a few months, I thought it was just fat as I’ve had five kids but no amount of diet or exercise is shifting it. I used to be bloated after eating and I’ve suffered with ibs for years but I’ve not had an episode for a while. But usually in the morning the bloating is gone but it’s here all the time and when I lay down I find it hard to breathe. Even when sitting. The past few weeks I’ve been so tired it’s unreal. I’ve never been this tired before even with 5 kids and work I’ve always had energy at some point. Sleeping is hard as I’m having trouble breathing and I’m constantly going to the bathroom to urinate. My aunt has just been diagnosed with ovarian cancer and it got me looking at the symptoms and now I’m scared I have it too. I’m 33. 

Can anyone shed some light? I don’t want to be fobbed off at the gp like I was with my cervix. I called for an appointment this morning but they had none so I’ll call again in the morning. If you got through all this thank you!  

  • Little update on my scan

    she said my bladder wasn’t full enough for the abdominal to be clear. Transvaginal was hard I had to lift my bum up so high I was doing a crab almost lol! She had a look around both sides, she took measurements of a grey circle on my right side, but not my left? Was she measuring my ovary? She said ovaries looked okay but she was whispering to the other nurse while I was getting dressed so that was weird. And kept saying I need to wait for the specialist in 5-7 days when I asked more questions. Frustrating but I understand it. 

     

    Im getting much more pain in my right pelvic area and back, the pain under my ribs is getting worse too but it’s not constant like the pelvic pain. 

     

    I just want answers  

     

    any ideas what she was measuring? And why only one side if it were ovaries? 

  • They called me at 3pm saying the doctors needs to speak with me so said I have a telephone appt next Tuesday I asked why it wasn’t a regular appt and she had a look and said one had just come available for tonight so at least I don’t have to wait four more days

  • Thanks for the update Joanne. That's good that you get to hear earlier. I can't really comment on the actual ultrasound process, mine was so quick I barely knew that was going on I think it's different for everyone though. My problems are more with gut and esophogus now, so I'm having a colonocopy and endoscopy, I'm pretrifed. The surgeon said if I was 50 years old plus my symptoms would be very converning, but my age is helping. Doesn't make me feel any better though. I really wish you all the best, keep us updated. 

  • I hope everything goes well please do keep us updated!! 

     

    Well it was all a bit of a kerfuffle. She got the blood and swab tests up and was talking about those and I said that I’d seen her already for that and that I was there for my scan results. Then she couldn’t remember the password for the system so had to ask reception to print it out which was handy as she let me keep it. She said it’s suspected adenomyosis as there’s a mass in my uterine wall, she couldn’t tell me the size or how deep or how bad it was etc she even had to google it to see what it was. It’s when the Endometrium layer starts growing into the uterus muscle wall. They put on there that I have irregular periods and heavy bleeding with it but I don’t which is annoying as that would have contributed to the suspicions. I told her about the pain I’m having in my groin and the numbness in my legs but she just went mmmmm mmmmm yeah that’s for the gynaecologist to talk about. So I still don’t have proper answers as she couldn’t even tell me what the gyne would do like more scans etc. She said it can be managed by the pill for the heavy periods (which I don’t have) but there’s no cure besides hysterectomy. I’m still waiting over two weeks for this gyne appt so I’ll be calling them Monday as I can’t keep waiting like this. :(