I had my appointment with my consultant today and my my ct scan was clear and cyst was benign. Consultant still concerned about high ca 125 results so I had another blood test test and will wait on results.

Thank you Beatrice and Joanne! I’ll make a note of those things to ask and that’s really helpful having an idea of what will happen when I go in. I think my bf will be coming in with me too, although I feel a tad embarrassed I think it can be easy to forget things that have been said once you come out of the appointment. 

Joanne I feel you on the brain playing up!! It’s so so hard not to let the waiting around fill you with anxiety and like you said I’ve been incredibly lucky with how quickly I’ve got my testing so far and even then I’ve been worried sick and a week has felt more like 3! It’s not easy. It’s also so hard to know if some of our pains are physically related to it or not. I think it’s very normal for us all to be very hyper aware of any pains at the moment whilst we’re in limbo.

 Beatrice, I too have just lay in bed at times trying to sleep off the time... it’s easily done. I think we just need to cope as best as we can and if that means lying in bed, that’s what it means and to try not to feel guilty for that either, which can be difficult. 

I’m sorry you’re having to wait so long for your results, it’s the waiting that’s the killer! Is there any chance you can call them back in say 5 days instead just in case they come in sooner than expected. I hope you don’t have to wait as long as that and all the best with your results when you do get them xx

Good luck with your blood test results, I hope you hear from them soon, but in the mean time that’s great news that the ct scan came back clear and the cyst is benign. 

Wishing everyone all the best with their results and would love to hear how you’re all doing. It’s so important that we can all share things on here as we’re all going through similar things. 

Big hugs xx

Helps a lot! Thank you :-) I’m not a prude usually but for some reason when it comes to my women’s health stuff I become all coy. My bf has been fantastic though and very supportive for which I’m incredibly grateful. X

My husband came with me for all my appointments and was even there when I had my Transvaginal ultrasound. It’s important to have someone with you gmgir support. Just a familiar face in the background is reassuring. Hope all goes ok for everyone. x

Yes it’s great to share here you guys are really my lifeline right now. I don’t like talking to people about my problems even my husband. I know I shouldn’t, but I prefer going to appointments alone. I’ve got my scan booked but I also got a letter saying I’ll get an appointment for enhanced community gynaecology service - RAS and if I don’t hear anything by the 15th to call and book.. anyone know what that will be like? 

Hi guys, just an update.

I went to drs today about bad acid reflux I was getting and he happened to have my ultrasound results that had just come in. He was a brilliant dr, explained everything about the test not being a reliable marker and he explained my level of CA125 was 45, which I was not told this previously by the other dr over the phone. Anyway my pelvic ultrasound has come back clear, normal sized overies, no abnormalities or growths and lining is the right thickness etc, I was stunned. I’m going to have another CA125 Monday and he said hoping it will go down but he did say that my level of it id only a bit over and the CA125 can be raised for so many reasons including inflammation, it’s was reassuring and I hope it reassures some of the other ladies on here’s going through that’s awful waiting period.He said if the CA125 was in the 100’s then that’s would be a different story, but it was slightly raised. I’m getting tablets for 2 months for my acid reflux andhe reckons the problem I saw with my gut, which I originally thought was the problem anyway. I’m having meeting with surgical team at end of month about bowel screening/ colonoscopy etc so least it’s  going in right in right direction. I’m just so relived about the ultrasound tho, thought I’d let you know as I did originally start the thread. I hope to hear good new stuff from all you ladies soon :)

Hi,

I just wanted to let everyone know that I got my 2nd CA 125 test back and the level was at 132 compared to 370 the first time round.  So consultant believes the readings could be due to endometriosis and has given me a review appointment in 6 weeks with another scan and a discussion on my symptoms.  So just to give everyone some hope who have high readings from the CA125 test, it can be due to non cancerous reasons.

I hope everyone else is doing well and thankyou so much for your support over this past month. xx