Raised CA125 tests - unusual symptoms - ultrasound booked

Hi there. I'm new to the site. I'm really anxious and nervous, and I just don't know how to cope currently. I feel like I'm in limbo. Late last year I started getting flair ups, which included indigestion and feeling sick, constipation and bad pain in my middle tummy which went over the my right hand side. It would then go back to normal, and I'd be fine. I had about 4 of these flair ups from late last year up until today. The last flair up was really intense and lasted 4 days, the same thing happened constipation, sickness, middle tummy pain and then left side pain around hip area. Last couple of days of the flair up, my stool was yellow diarreah. I went to drs and had numerous tests, and the drs suspected I had gallstones. When I was initally tested for inflammation my placelets were a little high, but my last blood tests my placelets were normal and upper abdmoninal scan came back fine. I went back to the dr, because since my last flair up, for a month I kept getting this niggling pressure pain on the right hand side of my belly button, and also pain on my upper right hand side . I also had the tinyest little bit of blood in my stool on about 4 occasions since last year. The dr decided to take another full blood count, stool sample (which came back fine) and she decided to check on my overy, just incase. Last week I had a call from my dr, and she sounded pretty serious and explained that my CA125 test came back abnormal. I was really shocked, because I just didn't even think it could be to do with my ovary, I thought it was more to do with my bowel/ gastro. Since last friday I've been unable to hardly eat, I'm losing weight mainly because I've been eating so much healthier since I was suspected gallstones, but I'm really hardly eating anything the last couple of days since my results currently cause of the stress. Last couple of days I've been having yellow diarreah again, similar to what I get at the end of the flair ups and I feel like I'm getting indigestion more often the last month, and weeing a bit more. I'm also getting pains on the bottom right, but really bad sharp pains at times on my upper right abdomen. Today I woke up and had diarreah, and I felt so nausious, and more pains especially top right abddomen, but I'm also feeling like a pressure on the right hand side of belly button that I've had since my last flair up a month ago. I don't know if it's stress that's making it all worse etc, but I'd really appreciate some advice. My Dr has sent an urgent referall for an abdominal scan the week after next, and I'm a mess. I'm so scared of what they'll find. I'm 36, and I just didn't think that ovarian cancer could strike, especially with these types of symptoms. I feel weak currently, probably because I'm not eating but I feel like every symptom I'm getting makes me feel worse, like they're going to find something bad. I am ovrweight, and I wadn't eating healthy before all this started last year, so I'm worried I haven't helped matters, but the last 1-2 months I've been eating really healthy, so I can explain the weight loss, but I just can't understand what's going on within my body. I'd be grateful if I could get a response, and anyone who's possibly been in the same kind of situation. 

  • I'm so sorry to hear about your aunt, atleast she's in the best hands now. With my bloods they came back much quicker than a week, but prob cause they were bad. I'd imagine they should be in before then. I got one set of bloods I did the day after when my placelets were high.I'm exactly the same, I've got proper paranoia eith every pain, but some of the pains I know I'm not imiagining it, and the tummy issues I'm having with the toilet in the mornings. I wish you all the best with your results/scans/bloods coming up.

  • Hiya

    Trying to answer both your queries. I had my blood tests on a Wednesday lunchtime and they rang me  Thursday morning to say ca125 was raised... immediately think the worst as that was what happened with my hubby. When I had the ultrasound I did get a bit upset and spilled out to the sonogrspher, she was lovely and talked me through everything she could see, which my GP confirmed when I saw her again as she fastracked me.

    Jo, my only symptoms are a crampy pain, same time every month but I dont bleed as I had a procedure 18 months ago to stop my periods. My GP did mention, appendicitis, gallstones, bowel cancer and ovarian cancer, so wanted a full blood count and ultrasound. 

    I am like you every niggle, ache, you think the worst. The mind is very powerful and you can overthink, try and distract yourself if you can, we've just been out for a  walk. I've now got my 3 year old granddaughter sleeping so she takes myind off it.

    Bea, try some deep breathing, your tummy troubles could be high level of anxiety. 

    Glad your aunt has a plan in place. 

    Much love to you all x

  • Thank you! So hopefully I won’t get a phone call before my appointment. Do they tell you on the phone or just call you in to be seen? 

     

    God its it’s so nerve wracking isn’t it. 

     

    I hope your tummy tummy problems are unrelated. They could be due to stress I know when I’m stressed my tummy goes mad! One time it was so bad my husband called an ambulance. I was on the toilet and the pain I was getting was in waves like contractions it was horrific. The people on the phone were adamant I was in labour it was so embarrassing! Luckily when I laid down on the sofa with a wheat bag it stopped and we cancelled the ambulance. I thought I was dying it was so painful :( 

  • Thank you for your reply! 

    So it definitely seems I’ll get a call if they find something  which is good really. 

     

    Thats lovely they were so good with you in so used to moody doctors it puts me off seeing them. I’ve had too many bad experiences with them. Main one being they refused me a smear test as I was too young even though I was having symptoms, I had to really push for it and I ended up with having CIN3 cells. The nurse said bad I left it any longer then I wouldn’t have been very lucky, she compared it to jade goody so I don’t know if they can tell how fast the cells can spread on these tests but if I didn’t get the treatment I wouldn’t have seen my second child’s 2nd birthday and I wouldn’t have my other three now! I’m trying to keep busy with work etc and obviously the kids keep me occupied but when I’m sitting with my son (I still breastfeed him) my heart my breaks thinking of the things I would miss with them all of something happened to me. I know anything could happen at any time but it just makes it more real when you’re having these tests and the pains constantly :( 

     

    how is your husband doing with it all?x

     

     

    also has anyone told family members about the tests? My husband knows the pains etc that I’m having and he knows I went to the doctors yesterday and he’s not even asked what they said. Only said to him tonight I need to fast for my tests in the morning (having cholesterol test too) and he’s still not really asked. I had my mum over to watch my youngest while I took my 4yo to a reception taster session and I had my appointment afterward so she had them both, and when I got back she didn’t even ask why I went. Just went on about my sisters wedding. I’m so glad I’ve found this thread with you all on here c

  • Hiya, 

    My GP gave me blood results over phone and then I was asked to see her a couple days later when she fastracked me.  It is good they tell you sooner rsrath than later.

    I have told all my family, and woirk colleagueso that God forbid it's bad news tomorrow, they are there to support me. 

    My husband is amazing,bhe had his prostate removed on 13 April was told last Monday that it had all gone, they don't want to see him for 4 months, his turn to support me now!

    Xx

  • That’s great that they do tell you over the phone I’d be in a mad panic if that didn’t as I’m having so many tests at once. 

     

    So pleased for your husband what a relief! Let’s hope you get the good news you deserve too please keep us updated xx

  • Bless her I hope it’s not too harsh on her :( 

    hope everything goes well for us all and we can put it all behind us x

  • Hi

     

    I got my appointment back with the conusltant for the 9th July - seems such a long time away......... 

    I got speaking to the consultants secretary and she wouldnt give me any indication of the test results, said they cant give them out over the phone.  (I am waiting on CT Scan results and Tumour markers CA19-9 and CEA)  I am out of my mind with worry.  Is it a good sign that they havent rang me with results or is the appointment for that?

    I have only told my husband and two close friends what I'm going through.  I have 2 children aged 22 and 19 and my dad (my mum passed away 4 years ago after suffering with breast cancer twice)  I find it really difficult putting on a brave face everyday when I really just want to curl up in the corner and be on my own.  I think the worry of the unknown is very draining........

     

  • Thats what Im hoping too Beatricex

     

  • I would say the appointment is to discuss results, I would have thought they’d call you for a sooner appt if they found something urgent

    the waiting game is so hard :(