Waiting for results.

Hi, I was coping ok. My back story is that I suddenly has difficulty swallowing, hoarse voice, breathing issues and a lump in the front of my neck. I saw my gp after a bad bleed in my throat and she referred me under the two week referral system. I had a camera down my throat and the discovered issues in my throat but that weren’t cancerous. Then they said my lump was worrying. So they sent me for an ultrasound scan. This came back and they said I needed a biopsy. I had that two weeks ago. I was told it would be less than two weeks for the results. I feel like my life is on hold waiting. I just need to know. I feel like I darent book holidays etc. I’ve managed to hide it from my youngest child but my middle child worked it out, right in the middle of his GCSEs! So I feel really guilty that I hid it and that I may have messed up his exams. My oldest has known from the start. I just don’t know how to deal with waiting. Each night I’m struggling to sleep and it’s getting worse each night. How long does it normally take? Can I ask someone and if so who? I don’t even know who my consultants are because it was all done in a rush! One night they’d call and I’d be there a few days later. Not once did they write down who I should go to if I had questions? 

  • Hi Lisa, welcome to the forum the club nobody wants to join, as you've said "waiting" it takes some doing not panicking, we've all been through it, it might help trying your GP alot of times they know before you, it can go straight to their computer,. Also ask GP who you kneed to talk to when kneaded they should have information on that,. Best wishes,.

    Billy 

  • Thank you! I will give my gp a call in the morning. I was a bit surprised as everything else was so fast and so efficient. To suddenly find myself waiting so long, the poor postman must be wondering why I’m grabbing my post from him each morning as soon as his van pulls up! 

    I appreciate you replying. Everyone else just refuses to talk to me and keeps saying “it will be nothing, look on the bright side”. But I’m one of those people who likes to think through each scenario. So I’m not shocked whatever the answer I get. 

    Thanks again

    lisa 

  • Hope i don't sound grusem but if you can let us know how things are going on,. It nice to know if you're OK or not,. Alot of people come here ask for info and we never hear from them again, so we don't know if there OK or not. I noticed your up early or not gone to bed yet,. I've got a disabled wife to look after she can wake up at any time in agony i have to keep moving her about to ease the pain so i don't get much sleep, I've also got non curable C, it makes it orquard but we manage,. Again hope you can get things sorted soon best wishes.

    Billy 

  • I know how you feel my 2 sons are 25 and 23 youngest son just had exams at college so they are both unawre of my drs and hospital trips had a biopsy done on fri and dont want to look when letter comes as my mums had cancer  3 times and i know how i felt with hers  feel terrible  if its bad news that I have to tell them   hope everything goes ok kids are better at copping than we are don't stress out 2 much  x

  • update....

    after 27 phone calls and almost a day trying to get hold of someone I’ve discovered they mistakenly didn’t add me to the system and  have no idea where my biopsy results are!? I’m a total mess. I feel like my life has been on hold for weeks now. I have to wait for them to work out where my results went to and then they’ll contact me. So more waiting. 

  • I hope everything goes well for you. I’m now back waiting until they find my results! I’m going to concentrate on my sons prom this week if I can. And just hope I don’t have to have another biopsy done. Do let me know how things go for you. Fingers crossed. X

  • Thank you for replying. I haven’t been sleeping very well since all this began. So I’m up at all hours. Plus I’m disabled too so I’m in pain at night frequently. I’ll let you know how things go if I ever get an answer. I hadn’t anticipated them losing my results! Hopefully they will find them soon . 

    Lisa 

  • Hi Lisa, it's no good trying to be organised with the NHS couple of times i had appointments through the post,. Got things arranged someone to look after my disabled wife then got phone call can I come in tomorrow morning, so it's rearrange everything, there was no panic just a cancellation,. Hope they find your results soon, hospital should still have them, send them out again,. Best wishes.

    Billy