I have been browsing this page for weeks, I wasn't going to post until i new more about what is going on, but here I am anyway!
My problems started a few months ago, although I didn't think anything of it at the time. I have had tonsilitis many times before so when a white patch appeared on my left tonsil and I started feeling really fatigued I just thought it was tonsilitis again. Fast forward a few months and the patch on my tonsil is still there, most of the time it doesn't bother me, but on a bad day it can become a little sore. Had the usual swab and blood tests to check for Strep and glandular fever all came back clear.
I was then given an urgent referral for ENT, but at the time this was a 6 week wait (18th july)
in the mean time my symptoms seem to be getting worse by the day, the worst is the chronic fatigue, like every little thing I do takes up so much energy and I just want to lay down all the time. This isn't easy when I work full time and have 2 young children to look after. My body aches, so much, like everything just hurts.
The glands in the left side of my neck are also constantly enlarged.
I rang ENT to let them know how awful I feel and that i felt it was a long wait and a long time for me to be left feeling so poorly all the time. I was told that I was referred to one particular specialist consultant which is why it's a long wait.
I have since read online that by law, we have the right to be seen within 2 weeks for an urgent referral. I'm going to try and see my GP again tomorrow.
I'm not going to lie, I'm scared! I'm really hoping it's just a cyst, but I don't think that would cause me to feel so poorly, and the thing on my tonsil doesn't feel like it has fluid in, although I'm no doctor.
How do people get through the waiting? I am so useless at work right now, but don't want to use any of my sick leave incase I need it more later on. It's likely that no matter what my tonsils will be removed and I will need time off for that. My GP said that the ENT Will most likely need to do a biopsy.
On top of everything I feel so guilty, my husband is worried sick ( his mind goes straight to worst case scenario) I'm slacking with house work and no energy for the kids. I just want answers so I can get better.
x
