Driving myself mad, haematology results tomorrow.

I think i am just after support these last 6 weeks waiting for results ends tomorrow and if i am honest i just want to cry. 

Im under investigation for lymphoma have loads of symptoms and found a lump a few days ago that i will tell them about tomorrow. I feel soooo anxious and stressed right now.

Work has been a good distraction until today where i dnt know if im just being sensative or the customers are being horrible.

  • Hey well ive had a range lot of symptoms. Ive been under a few specalists aswell for a chronic problem. In terms of the fevers, night sweats, fatigue, strange rashes ect ive had blood tests which showed some inflmmation but turns out its nothing haematological, chest xray, contrast ct scan to rule out lymphoma apparently but still getting the same symptoms and no amswers. I even felt a lump under my arm that the haematologist told me wasnt a lymph node so nothing to worry about but she was quite dismissive. Im just sat waiting to be discharged from respratory and gastrology before my gps will be willing to look at my symptoms again :/ i hope your doctors are a bit more proactive x 

  • Im glad lymphoma was ruled out for you but im sure you are still so frustrated. How are you dealing with the fevers and night sweats? I hate night time now as I cant predict what sort of night I will have. Like you, a couple of times a week i get a fever and wake up sweating and feeling awful. It seems to be happening more often which is worrying me further. 

  • Yup, still frustrated but at this point theres not alot i can do bar go to a different gp practice. Im not 100% sure everything was tested at haem because one of my blood numbers dropped in the space of 6 weeks and they thought nothing of it. At for the night sweats im sleeping with the window open and the fevers im jist trying to ignore. Have you had any results at all yet ? 

  • Are your fevers worse at night? Mine can be normal during the day but the second I go to sleep my temperature goes up and it wakes me up either feeling too hot or shivering. 

    My bloods were normal, unsure of what shes going to do next. My doctor is only part time in my surgery, shes back in on wednesday so I'm going to try and book a phone call with her and see what her opinion is and what she wants to do next. 

    Do you have any more appts coming up? 

  • My fevers come on during the day or night, all my other symptoms are vague that the drs are at a loss of wherre to go with it now. I have an appointment with a resps consultant in august and my next gastro app in october which im hoping i can get brought forward as i had the last test for them a week and a half ago and im not waiting till october for results. 

    Hopefully your doctors figure out your symptoms? Is the only symptom fevers? 

  • Yes my only symptom is the fevers, so far anyway! About 2-3 months ago I would randomly shake and get chills in my sleep, but I never actually took my temp when it was happening. So I think the fevers have been happening for a while. Then a month ago the doctor told me I had tonsillitis but my throat wasnt even sore! She gave me a week of antibiotics and the puss and all went away and the doctor said my throat looks okay. But I've had fevers on and off since then. All bloods normal so not sure whats going on. Just wish the fevers would go away but they are happening more often now :( 

    October is such a long wait! I hope you are able to bring it forward, have you phoned the consultants secretary and asked them? 

  • Yeah i plan to ring the secutary once enough time jas passed to see the results from the video capsule endoscopy i had around 2 weeks ago. 

    Fevers on there own is strange and infections can linger for a while as can symptoms weirdly. I had treatment for a urine infection and had finish the antibiotics before i had the back pain that goes with a urine infection which was odd but they tested my blood and it was fine. Also conditions can present differently as well hence no throat pain but you having tonsilitis. Has your doctor mentioned anything else this can be or what they are thinking of doing if the fevers are continuing in the future? 

  • I find it hard to believe that I had tonsillitis with no throat pain at all. She said there was puss and everything so def infection. I was hoping the fevers were from that and would stop. I havent had a discussion with her about what it could be as when I last seen her she was hoping it was some kind of viral thing that would go away. Which it hasnt and is getting worse and happening more often. Atm all I can go by is google and its worried me alot! What did your doctor say about the fevers? 

  • Google doesnt really help when we are worried about our health so please try to avoid it. They havent said much about the fevers other than some blood results that indicate inflammation are up and at this poing they think its linked to my gastro issues as haematology has cleared me and the auto immune tests came back negative. Im going to get a copy of my most recent blood resaults today as i like to have copy myself. I have some lumps under one arm that i am hoping are just viral as that has been mentioned to me also.

  • Its maybe good your bloods show inflammation which give them more of an idea what it is. Im worried because all my bloods are normal and I dont have one symptom to point towards what this could be. That automatically makes me concerned that its serious :(