Hi All, I am a 41 year old mother of two. I've have referred ear and throat pain for about 4 months or more now. I seen specialist who gave me the all clear mainly due to me being young so wouldn't refer me for an mri. I went privately to pay for an mri and the consultatant wouldn't refer me as she said there were risks attached to mri's. Safe to say I really did not like her. I found her very condescending. I went back to NHS consultant who referred me for an mri. I waited 3 weeks for the results and the wait has sort of tipped me over the edge and I am struggling to get back from it. He told me yesterday the mri was clear but the thing is, he was not very convincing in the slightest. He was much more convincing in my first appointment where he actually stated it was his job to reassure people and it was too dear to send everyone for an Mri. He seemed worried and like he didn't fully believe in what he was saying. Now, today, with my ear and throat pain worse than ever, I have a bit of another meltdown. I was part of a support group on Facebook for months and then all of a sudden, last week, they kicked me out the group as I didn't have a diagnoses. I made it clear from the start I had no diagnoses so when I questioned it, they then said people had complained about me and my posts being too graphic. I'm at one of the lowest points in my life so this was such a blow. I still can't quite believe it. My posts were me venting that I was having a bad day or feeling low. Really nothing more and everyone was supportive. I'm still gobsmacked. Anyway, I can't seem to find any support groups for people like me and wondered if anyone here had been through a similar situation awaiting diagnoses.
The problem is, I just cannot imagine what else it could be as I have googled it non stop and in my head it has to be something pressing on the gloss...somethingother nerve. I feel like it's just a waiting game now but I can't bear it. I am just not a strong person unfortunately. I was thinking of asking for a copy of my mri to make sure it is not blurred as I was very uncomfortable in the machine and I was moving my tongue and now I have read any movement can blurr it. It was very rushed. I didn't get told anything and my head squashed in with me ears bent backwards. The guy was getting impatient when I asked him to fix pillow under my head as I felt noxious with angle of my head and I was going to be in for 40 minutes (something I just found out seconds before they shoved me in!) anyway...
I feel so desperate I am so lost. They obviously can't see a tumour but I know with all the soft tissue they can be difficult to spot. What now...any advice would be appreciated.
Thanks xx
