Hey guys, losing my *** a little at the mo, very concerned for my little guy. He has many symptoms of something which doctors just don’t seem worried about, we’ve had 4 GP visits plus A&E in the last month. All his therapists (we have many as he has cerebral palsy) have also shown concern and this past week 2 of them have taken it upon themselves to call through to our GP surgery to discuss their observations which has resulted in another appointment today and us being referred on to the “hot clinic” at the children’s. But I have no idea when they will call to invite us in so I’m just left waiting and worrying by my phone.
So since his last illness (a tummy bug) well over a month ago he has had an almost continuous low grade temp (37.5ish, sometimes a little higher and sometimes a little lower), he’s had lymph nodes up the whole time, not massive but definitely swollen, in his neck, hairline and groin. He’s floppier than normal and listless, isn’t interested in the things he usually loves and to me he looks more pale than usual. I just don’t understand why they’re not worried enough to have taken bloods already. My brain is screaming at me he has leukaemia or lymphoma. It’s so hard as he’s non verbal so can’t tell me exactly what’s going on for him but he’s definitely been getting more pain than usual. I’m so worried, just wondering if anyone has any suggestions of things it could be other than what I’m fearing or if you think I might be right then please say. Just to mention the doctor did a urine dip stick a week ago which showed nothing in that.
Thanks in advance :)
