Hello Luc50,

I'm in a similar boat.  I am 52.  Hadn't had a period for 18 months, then had bleeding.  Went for an ultrasound and also had a hysteroscopy at the same appointment.  The ultrasound detected the thickness of my uterine lining was at 8mm.  The hysteroscopy showed fibroids.  They took a biopsy and I was told I would get the results in 1-2 weeks time.  It's 2 weeks today and after ringing I was told they have a backlog of typing and so no letter has gone out and they can't give me any information as yet.  My bleeding stopped just under a week ago so I'm pleased about that but the waiting game is tough.  Without having the bleeding, I have been able to forget about things a bit but on the whole have had a pretty rubbish few first weeks with dark thoughts and lots of crying.  I'm now trying to carry on with a positive attitude as there's not much I can do until I get some results.  It is very worrying but in the meantime I keep trying to keep myself informed so that when I get to talk to someone medical, I will at least understand what they're talking about.  I have also started to eat better and tried to lose weight - have lost half a stone in the last two weeks - as I understand that oestrogen excess can be caused by being overweight.  Have you had a hysteroscopy?  Not a pleasant experience!  If you haven't yet, and you have to have one, I only read after having had mine that it helps to take a couple of paracetemol before you have it!  And make sure you have someone who can drive you home afterwards!  I'm presuming that if my biopsy shows that it's got abnormal cells, then I'll be heading for a hysterectomy but if they're not abnormal, it'll be hormone treatment first.  Seems like you've had a different suggestion as to what happens next with your treatment but I would have thought they'd have to see the results of your biopsy before recommending a hysterectomy.  Or maybe they mean a hysteroscopy (the camera) first rather than a hysterectomy?  Anyway, I wish you all the best and to hear from you again.:)

Ho ladies.

I've been down this route and believe me the waiting is by far the worst. Once you know what you’re dealing with, whatever that is, it is much easier. I was diagnosed with endometrial cancer in April 2018, had a hysterectomy, further surgery for removal of lymph nodes and three sessions of internal radiotherapy. I got my all clear in April of this year and am on regular checks now. 

Just to say if you have  any questions now or in the future just ask and I’ll be happy to answer them based on my experience.

Sending a virtual squeeze from my hand to yours.

Sundial

Hello ladies,

May I ask whether your post menopausal bleeding felt like a period or was it just bleeding with no other symptoms? I'm nearly 53, last had a period in 2017 and yesterday started with brown discharge, a vague period pain feeling and a headache which won't shift - I always got these type of headaches with a period. I am thinking it is just a very, very late and hopefully last period. 

Prior to this I had been having phantom period pains for months, including pain down the front of my legs which I used to get prior to my periods. I had an ultrasound scan on my womb last year with no evidence of any abnormality. The phantom period pains eventually went away. 

Thanks for reading.

Hi

i was 64 when I had my hysterectomy and hadn’t had a period for 10 years. I had no pains just bleeding. 

Sundial

Thanks Sundial

I am nearly sure mine is just a very late period. They don't mention pain as a symptom for uterine cancer, just unexplained bleeding. I'm wondering whether to bother going to the GP. It is the period headache which has more or less convinced me it's nothing to worry about. 

Hi my post menopausal bleeding felt just like a period . I had stomach cramps and sore back lasted 4 to 5 days just like my normal period did even though I had not had a period for three years . Hysterectomy showed up everything looked ok no masses no build up off cells . My uterus lining was six mm should be 4. I am awaiting results from byopsy for this and trying to remain positive get them in a weeks time .

Well ladies my endometrium was 16mm so quite a difference.

Sundial

Hi Luc50, your symptoms sound like mine at the moment. I do hope you have a positive result in a week's time. It certainly looks very promising from what the doctor said but I'm sure the waiting is awful. 

I do have a family history. My mum's only sister had womb cancer and her dad's only sister also had womb cancer. Neither had had children which is a risk factor I have read (neither do I).

In fact my auntie only found out she needed a hysterectomy after being admitted to a trial - she was given an internal ultrasound whereas others were given blood tests or no preemptive treatment. She was very lucky to have been offered to take part in the trial, and to be given the ultrasound. 

I've now decided to definitely go to the GP. 

Hello all.

Looks like I'm playing the waiting game again.  I was expecting my biopsy results within 1-2 weeks of my appointment but have received a letter over the weekend (so nearly 3 weeks) with just another appointment date which isn't until the 14th June - no information about the results, nothing.  I was kind of expecting that the letter would give me some indication of what is going on and what might happen next.  Do they prefer to let you know things face to face rather than by letter?  Is it normal that I have to wait over 5 weeks until I am actually told what's happening - ie,whether I have cancerous cells or not and do I need a hysterectomy?  I will ring and check with the clinic tomorrow but I think they will just tell me again that they can't say anything over the phone.

This waiting must be awfull for you . I know how I feel and I am getting results a week later for edimetrial byopsy and hydroscopy for post menopausal bleeding . I went private as waiting was so long . I find the waiting torture as everything goes through you’re mind . I really hope you get your results soon thinking of you . X

Hi I was just wondering how you got on if you were any further forward after calling them . I go for results soon at 540 today and yeah I am very nervous even though he said all looked ok I still have that nagging doubt in my head that he can only see with the naked eye and a biopsy willl show more . Thinking of you . 

Hello Luc50,

Wishing you the absolute very best of luck for today.

I called the clinic this morning - a letter with more information has been authorised to go out but they still can't give me any information over the phone so have to wait until the letter turns up over the next few days.

Thank you for your message.  It's so good to know you're out there!

Hello Luc50,

Wishing you the absolute very best of luck for today.

I called the clinic this morning - a letter with more information has been authorised to go out but they still can't give me any information over the phone so have to wait until the letter turns up over the next few days.

Thank you for your message.  It's so good to know you're out there!

Thank you . I really do hope that we both have good news . Thinking of you and hope you get that letter soon . Take care x

HI just to let you know my byopsies were clear . I am so relieved . My thoughts are with you and thank you for chatting with me it has really helped please let me no How you get on x

Yay!  I am so very pleased for you, Luc50. That is brilliant news!  So chuffed.  Wow!  Bet you feel amazing!  Time to celebrate.  I guess these things make us appreciate what we have even more xx

Totally . Please let me no How you get on when you get your letter . My thoughts and prayers are with you . X

Hello Luc50!

I was out today but got home tonight to find the letter.  I am so relieved and so happy to be able to tell you that it says that only polypoid tissue has been found and my sample is normal.  I go to have the polyp(s) removed on the 14th with another hysteroscopy-type thing.  So so happy.  Thank you for being there for me.  xx

I Am so happy for you that is amazing news . Enjoy life every day and live it to the full . I am so glad I have been able to chat with you throughout this waiting time for us both it has really helped . Take Care x 

You too! xx