I too have PCOS. I actually went through all this in my thirties with thickend womb lining and one very large and several smaller polyps (no fibroids though) - it was at the time my PCOS was dignosed. Treatment then ended up being a d&c under GA (polyps and extra thickness of womb removed) and then a mirena coil fitted and I had no more problems. Womb lining and its thickness is difficult to judge as post menopause the lining should be thin but if you still have periods it can be up to 16mm depending on where you are in the cycle.

I'm now in my late 50s and was referred for post-menopausal bleeding , only for them to say at ultrasound that I'm actually not quite there yet. I have cysts and fibroids, one of the fibroids is 5cm but that apparently is classed as small. I have the bleeding, bloating and abdominal pains - especially at night as lying on my side is when it seems to hurt most. I recieved details of an appointment for a myosure procedure to remove the fibroids - it was for early December but postponed to Feb . All my tests and scans were in July and the outcome for me was to repeat ultrasound (for cysts) and womb biopsy (for thickness) after 6 months. My case has been complicated by abnormal blood test results but prior to this the specialist nurse had suggested if no cancer found it would be a case of fibroid removal and the mirena coil

The waiting is really difficult - it took over 4 weeks for me to hear back initially and then it was 3 letters one after the other and received in the wrong order so they didn't make much sense. I've not been able to speak to any of the doctors at the hospital since my intial unltrasound and hysteroscopy (same day), bar a phonecall last week about the MRI - and that was only because they wanted me to have blood tests for kidney function first - letter telling me I need MRI came today - several days after the MRi appointment letter arrived and more than a week after the phone call.

I understand your worry from your letter about needing further biopsies but hopefully its to confirm its not cancer- I think if they had found cancercous cells already they would have told you. But as the letter says, it was a small sample and if they do more biopsies closer together on the womb lining they will get a better overall picture.

Hi had my general anesthetic today, I was also stressed about it, however I can only say please don't worry, it was over so quickly and the calmer you are the better you come through it. 

I hope you got the answers you needed for this. I've had issues for about 8 years and had a diagnosis of complex hyperplasia non atypia in 2014 and had numerous polyps removed plus 7 fibroids found for good measure. I had a Mirena coil fitted which helped me for a few years. 

Bizarrely I have had to have another biopsy today because 25 days a go my Mirena just came out with the most intense period and blood clots I've ever had. I bled for 25 days straight and ended up in hospital. I had an ultrasound and that's what meant I had to have a biopsy again. It's probably hormonal for me but I will see what is said. 

What I do know; is having had basal cell carcinoma removed in 2017 has made me much more interested in the research of cancers. And I have found it comforting to be honest. Knowing what the statistics are help  it's like getting in your car every day yet being more scared of flying. Even though driving is more dangerous! 

atypia is pre cancerous cell changes and the only reason they check again, is to test a different part of the womb. This is a good thing. 

I have lots of papers on it all - medical research - and while it happens it's fairly rare and is only there as a precaution. The percentages are really low. But better to check.  

The good thing is that the most common endometrial cancers are the most treatable. Given that it is one of the most common types - most cases are picked up early anyway thanks to those pesky periods. 

Yes the treatment is fairly harsh is it's Atypia but it has a high success rate. And remember. Only about 20 to 29% ever becomes cancer. That's an average I believe. While that is higher, I guess I'm saying the medical research is good to know. Because if you bought 29 tickets for a 100 ticket lottery, the balance of favour is still not in your court  Yes a higher chance, but more chance of it not being. 

I am now on a two week fast track referral for results due to my age. I suspect it's fine. I'm using the research for it tbh as it's a tiny percentage.  But if it isn't. Well even if my condition has become atypical - I will know that it's still precancerous. And I'll do what I need to to make it work. 

I used to suffer so much with anxieties and my basal cell cancer didn't help. However, I realised that knowledge is key to understanding what things mean and giving you the control to make decisions and know what realities are. 

It took me a few years to understand all the different basic types of cancer but I like to think that it has also enabled me to seek help when things aren't right. 

Equally I have more control over knowing what the options are and to be honest, ensure I'm getting the right service offered. 

No one can say don't worry. But try and focus on the most likely outcome and not the worst case. Sometimes we all worry and when we find it's all okay - we have made ourselves a mess.

Today I had the biopsy. I'm terrified of anaesthetic. So what did I do? I told myself that just 1 in 100,000 people have an issue that results in loss of life. You've more chance of completely guessing the last five digits of a phone number or for that matter dying in a sky diving accident. Or if you fly, the same chance of getting deep vein thrombosis in a short flight. 

So knowledge helps to alleviate our fears. I was scared today but I woke up. No problem. 

I wish you all a the best for 2023 and hope your medical issues get sorted. 
 

Hi shoblerone,

Thanks for replying to me. I actually had my second Hysteroscopy and biopsies done yesterday. The anaesthetist decided it would be safer to give me a spinal anaesthetic rather than general, so I was awake in the operating theatre. All felt a bit surreal, it took longer than normal for the numbing to wear off and for me to be able to move/feel my legs again, think it was about 7 hours, which made me start to panic but got there in the end.

The consultant came round later on to say it did look abnormal the lining but they would have to wait for the results to confirm anything. Which hopefully should be back in 2 weeks she said. They did offer to fit a mirena coil literally 5 minutes before I walked into theatre, I declined because I don't really know anything about it or it's side effects etc. 

Good luck with your results, let us know how you get on.

Take care x

Hi Leni56,

Sorry I've not been on here for a few weeks over Xmas so never responded to your last post. Did you have your MRI scan? How did it go? Have you heard anymore as to what's happening?

I had my second Hysteroscopy & biopsies yesterday, the anaesthetist decided it would be safer to use a spinal anaesthetic instead of a general on me. It went ok, took longer for it to wear off than normal. Just got to wait for these results now, consultant said they should be back within 2 weeks.

Take care x

Hi Jenna,

Sorry I didn't reply back sooner, not been on here over Xmas. Did you get your results back yet? I hope everything was ok. I had my second Hysteroscopy and biopsies done yesterday so just got to wait for them results now and then they'll make a treatment plan the consultant said. 
Take care x

I'm glad the hysteroscopy and biopsies went ok yesterday. And now the 2 week wait..... If they are offering you the possibility of a mirena coil, I would perhaps read up on it. I had one when I had the initial gyne problems about 15 years ago - had no side effects whatsoever and no periods either.

I had my MRI before Christmas and am currently awaiting results. They said it would be 7-10 days for them to reach the consultant and I got a letter today for an inperson appointment the week after next so not feeling too positive today as 1/its general surgery department and 2/its inperson which makes me worry they've found something.

To fill in time while I worry about that I have an ultrasound next week to check on the cysts - see if they are still there/any changes.

I'm still awaiting an appointment for a further womb biopsy - I'm assuming todays letter is from the MRI and would have said if it was for the biopsy.

I hope all works out well for you , take care

Hi Leni,

Did you have your ultrasound scan for your cysts, any results from that yet? Or have you heard anymore about what your in person appointment is for or your next womb biopsy?

Take care x