Endless pit

Hi All

I had a colonoscopy in January after having some blood in stool, more so around my menstral cycle.

I had been put forward by my GP to go see someone about this, but it seemed to take ages so I went and saw a gynae privately, thinking it was likely to be endrometriosis of the bowel. I am only 33 and never imagined anything much worse than that.

I then was put forward to a colerectral surgeon for the bleeding and because my father passed away from bowel cancer at 62 three years ago, the surgeon put me forward for a red flag colonsocopy.

I had the colonoscopy without anasethic and just gas n air, I heard him say they found a polyp and that they would remove it on the way out.

There was only one polyp found and this was removed on the way out. The person doing the colonoscopy came to me afterwards and told me that they he removed this polyp but it doesnt look like anything to worry about and the bad news is that I would have to come back every 3 years to be monitored.

Things turned very dark from there on in, I got a call to go and see the colerectal surgeon, his secretary told me he does this all the time, even to close files when I asked if it was necessary to bring someone with me to the appointment.

I then got a call from the secretary that mornong to say she thinks I should bring someone with me... It was too late to organise this.

Got to the hospital and instead of seeing the surgeon, I saw a young person who asked me how much I knew... and as I knew nothing he continued to say that they had found the polyp to be cancerous and that he would fetch the registrar as he thought he might be able to answer the questions I had.

The registrar then told me that the polyp was cancerous and had just penetrated the wall, stage 1, and that this would mean a resection as he couldn't just leave it there. i was told I would need a CT scan as proceedure and that I shouldn't worry as it was all prevention from here on in.

I then went for a CT scan of chest and pelvis that showed up a mass on my liver.

The original surgeon contacted me and told me that this is likely to be from the pill or a bit of fatty tissue, but that an MRI would be needed to confirm.

I asked to see him in person as I never saw him when I was given the bad news.

When I went to go and see him, he told me that he wasn't sure why his registrar had told me the cancer penetrated the wall, as he said the cancer was only at the very tip of the polyp and not in the base near the wall. He told me that he would be monitoring this if I chose not to have a resection as there was no evidence of it spreading to any nodes. The person who conducted the colonoscopy never put a marker in either as he didn't suspect anything.

I was so happy about this news.... Next was the MRI. I was then called in again and was told that the radiographer found the mass to be highly suspicious and that it seems like the cancer has spread to the liver from this small polyp. He said I was 'very unlucky and had more chance of winning the lottery than this happening to me"

I was then booked into see a liver surgeon who has now said she is likely to do a resection, but has now ordered a pet scan to ensure the disease is nowhere else.

I find myself in this dark place... how can this change so much from person to person and so quickly. Everytime I've seen the doctors or gone for scans it goes from bad to worse.

I have never felt so unwell in all my life and I'm not sure if it's in my head or there's something very wrong goingon inside of me. 

Before I had the colonscopy, I had bloods taken a month before and the result was 2, it's now near 7!!! But they say that can be a number of things.... I feel so vulnerable and so disappointed in how everything has been dealt with.

  • Oh no im so sorry to hear this..

    I havnt got any advice on this, but i am going through cancer and am still at the early stages and very confused. I am 34 and have triple negative breast cancer. 

    Here if you want a rant, and hopefully we will both get the treatment we need asap...

    Big hugs.. xx