My son is 13 and has been having a number if issues - mostly GERD and Vomiting (ince he was a baby) over the last 12 months he started to have dizzy spells and fainting as well as very low BP, coldness  - cardiologist dont lots of checks and al seem ok - mild POTS (postural orthastic tachycardia) I have hEDS and beleiev he too has hypermobility as his beighton and brighton scores are high, although can t get referred for a diagnosis. He was udner a children's hospital in Liverpool for gastro issues from age of 4-9 when they dscharged as couldnt find anything wornmg and said prob anxiety! He has always had a very heightned sense of smell, tiuch and su=ound - we couldnt even sing happy birthday it would cause him to block his ears and cry when a toddler!

Anyway - Cardioloist ordered an MRI to rule anyting else out - he had an MRI on the 1st April -  was called back as not clear enough for an MRI with contrast on 8th April - I got a call on the 9th saying they found "something" not in brain but the radiologist ahdnt seen it before, so ot was referred to Neorologist at Alder hey - he said same thing so it is going to be discussed at the MDT meeting at the children's hospital in Liverpool next Tuesday - What would you do? Would you order a copy of the MRI? am I panicking unnessecarily? i purposely dodnt google until today and now I am so unsure what to do next? 

thansk, xxx