Kidney Tumour

Hi everyone I am new here tonight as I am a worried wreck, not for me but my 2 boys. I have simple cysts on both kidneys pancreas liver and more. In short the largest cyst is 12cms on my right kidney and I also have another which is 6cms. I am only 8stone and they take up a lot of space. I have had chronic back pain and for 2 years having had morphine fired at me every 2 weeks along with tramadol and now recently replaced tramadol for Gabapentin, I was given a routine CT scan - eight days later on the Friday I got a letter to go for an. Ultrasound on the Monday! So I knew something was up. I have chronic pain and severe nausea which I had put down to the cysts. I took sick after Christmas and my body couldn’t fight it and I ended up with a resting heart rate of 148 and hospitalised on 3000 mg of antibiotics a day and I lost over half a stone. I am self employed so I can take a back seat in the family business a little and I was of a month and have never felt right ie my nausea and pain got even worse. Since having my ultrasound where the lady doing it let slip I was called back as there was a solid mass on my kidney I am having meltdowns - not for me - but the thought of my boys not having me around - last night i felt a hard golf ball size lump just below my ribs on my back and well that was it I lost it. This limbo is killing me and my husband comes across as uninterested and I know it’s not that. I know he’s worried and doesn’t want to have to talk about it or think about it. How much longer will I have to wait and should I call my specialist and tell them what I found last night? I was hoping I would get a letter this week but I don’t know mentally how much more I can take. I go to work and I spend the rest of my time with my boys. I don’t goniut and they are my absolute world along with my husband. Please can anyone offer any words of advice. I am trying to remain calm but it’s so hard when I’m the limbo stage - thank you alll so much in advance and sorry for the long post Elli x 

  • Hi ElliAlli,

    Welcome to Cancer Chat. 

    You should definitely tell the specialist about what you've found recently. The waiting can be nerve-wracking, but only a doctor can diagnose you so while you wait you should try to keep positive, talk to your husband about how you feel and focus on your 2 boys. There are some tips here, which I hope can help.

    Warm regards,

    Moderator Anastasia

  • Hi Anastasia 

    many thanks for your reply. The waiting is horrendous but trying to change my mindset to no news is good news. I have just read the attached link you sent and it does make sense. I am now planning a few outings next week with my boys to keep busy, and I am very lucky in the sense we have our own business so I can get the time of work. I am focusing on the fact I have such huge cysts on my right kidney and they could be the cause of my pain pressing on my organs and indeed my referred pain pressing on nerves.  Again many thanks for your reply. I really do appreciate it. I had just got myself worked up because of my boys. I wasn’t worried about me just them. What will be will be and I can not change it but I can keep busy in the meantime :).