Scared.com

A month ago to day I was taken into a and e as an emergency, I hadn't been well for a few months and was being treated for diverticulitis, anyway I was given a cat scan and the news knocked me for six, they found a mass or "something" in my pancreas, they told me it was inoperable,  they sent me home, the discharge letter states likely probable cystic advanced carcinoma of the pancreas head, they did other scans but it states that there are no signs of spreading,. The following week they held a meeting of all the team and it was decided I need a biopsy to tell them more,. I finally get this tomorrow a month later, .The specialist nurse said it was early stages and was contained, my doctor says it isn't, one consultant states cancer,another a possible cyst,  one nurse says they may operate, another radio and chemo, another consultant even said maybe no treatment!  Now my doctor says they are doing a biopsy because they don't know for sure what it is! And to make matters worse they've been sending letters to an address we haven't lived at for 9 years!  Every time I mention pancreas there's a sharp intake of breath, I'm at rock bottom now,  not coping at all,. How do they know it's inoperable,  why say cancer when according to my doctor they don't know? I've been sat here a month knowing nothing but thinking the worst, I'm 51, in pretty good health, and have not got the stereo typical symptoms,at least up to now... I'm terrified they've left it to long, going slightly mad, .Any advice please

  • Hello Stewie1 and welcome to the forum.  I feel for you.  Do the medical staff not talk to each other rather than bouncing their different opinions all over the place!  Once they had their meeting they should have agreed their approach and kept their alternaitve opinions to themselves until they knew definitely what was happening.    If people aren't sure, well that is fair enough and  honest  they should just wait until they do have a definite diagnosis.    The only good (if dubious) good point is that it may turn out to be something less serious that can be treated without too much worry. I am not quite clear if your biopsy is tomorrow (by which  I mean a month since you first went to the hospital) but hope it is so that you can at least know the outcome.  I hope you have a good circle of family and friends to whom you can let off steam and hope even more that this can be dealt with quickly.  You might (or might not) like to write to the hospital's PALS (Patient Advice and Liaison Service) when this is over and suggest a bit of thought for the patients who find themselves in this unacceptable situation.  I hope we will hear from you again soon and that you will be feeling better by whatever is being done.  Best wishes.  Annie

  • Thanks Ann, yes the biopsy is tomorrow, I'm hoping whatever the results now they act quickly, I feel like the clock is ticking, I've already lost my job due to time off, just playing a waiting game, my partner is my rock, fingers crossed I will know more soon, can't wait another month