Hi Lou

I went to the GP in 2019 when I had noticed some bumps in my neck, after noticing a swelling in the collarbone area. I put off going to the GP when I noticed the swelling in the collarbone putting it down to a possible strain as I'm constantly turning my neck/looking over my shoulder at work, but shortly after I noticed a few bumps in the side of my neck. I also had an increase in tiredness but thought it was a change of working environmet/hours etc  After the doctor did an examination, he told me I had enlarged lymph glands in the neck and armpit which was caused by either an infection or cancer. 

Around 6 weeks later I was diagnosed with stage 4 Hodgkins Lymphoma.

I would definately try to get another appointment if you're worried

I hope it's nothing serious

All the best

Tim

Hi 

Firstly sorry to all those who have been diagnosed, i hope you are keeping as well as you can? 
Im hoping someone here can advise.
Since january ive been suffering with severe sweats and due to having a hysterectomy at 29 we just assumed hrt had run its course. I went back on the 14/6 went through symptoms and she referred me to Haematology on suspected cancer referral. She had felt enlarged lymph nodes that i wasnt even aware of. I do however feel the right side of my neck is more swollen, i struggle to swallow and choke on food ( thought i was just eating too fast)
so basically 

14/6 GP- Bloods and referral

17/6 Chest xray - clear

22/6 Consultant & Bloods - he had a good feel around, slight rise in some of my bloods but nothing alarming. Felt more lymph nodes but said he would be suprised if it was cancer but wanted CT. 

24/6 CT done

13/7 Original Consultant appt cancelled and brought forward to the 7th. 
 

After i had seen the consultant my GP received the report within a few days but nothing from ct has been sent. Now im driving myself insane as the nurse said if they find anything on CT they will bring appointment forward! 
Im a single mum to 3 and my youngest is disabled. His father doesnt bother with him and im working myself up! 
I know there could be any number of reason why the appointment was brought forward

Hi, the waiting is really the worst bit of this. I'm surprised they didn't refer you to ENT first, I hope you are now being able to eat now without choking. My mouth was so dry it made me choke especially at night. My cancer was in my submandibular gland which could have caused this. I'm really glad you have had the tests required so quickly. My GP referred me once she examined me, my lump was hard and not movable, I think she knew it was suspicious. At least your X-ray was clear which means there is probably none in your chest. Did they do a biopsy? They usually do that before the ct scan as that is the only way to diagnose lymphoma, maybe they didn't think it was necessary and just doing the ct scan as a precaution. I wish you well and good luck getting your results, my fingers are crossed for you xx

Hi, the waiting is really the worst bit of this. I'm surprised they didn't refer you to ENT first, I hope you are now being able to eat now without choking. My mouth was so dry it made me choke especially at night. My cancer was in my submandibular gland which could have caused this. I'm really glad you have had the tests required so quickly. My GP referred me once she examined me, my lump was hard and not movable, I think she knew it was suspicious. At least your X-ray was clear which means there is probably none in your chest. Did they do a biopsy? They usually do that before the ct scan as that is the only way to diagnose lymphoma, maybe they didn't think it was necessary and just doing the ct scan as a precaution. I wish you well and good luck getting your results, my fingers are crossed for you xx

Hi scones 

thanks for replying. I already had an appointment with ENT as i have suffered from hearing loss on the same side but that has been since before this! I didnt for one minute think i would be referred under suspected cancer. I have been having severe sweats day and night, lost 5kg since last month but god knows how cause i dont stop eating. 
My mouth is constantly dry but i had the feeling that there was something there sropping me swallowing. I even got a tiny piece of dried cured bacon stuck, less than 2mm in size! 
My doctor said she thought my liver was enlarged and something to do with spleen? I just panicked as appointment was brought forward. I just hope to god he is of on his jollys! My 1st appt was just for his clinic but the new appt was to new referral clinic? 
No biopsy done. 
I hope your well in your recovery and thank you so much for taking the time to reply xx

That's good you have an ENT appointment, they will prob put a wee camera up your nose to check things out. Mine did it so quickly I didn't even see him doing it or feel it. He said my mouth was very dry, then referred me for an urgent biopsy and ultrasound. I have auto immune problems and honestly thought my symptoms were a flare. I only had night sweats where I woke up and had to change, none during day. I get Salivax pastilles prescribed and they are my saviour when I wake up choking. Strangely enough during my chemo my dry mouth got better. Hope you hear soon, let us know how you get on. Take care xx

Will do, fingers crossed for wednesday xx thank you again scones xx